I can understand what your going through with the Trigeminal Neuralgia, I myself was just in the ER about a month ago with a severe attack on my left side eye/cheek area. This has turned my TN into Bilateral Trigeminal Neuralgia due to a right sided attack in my cheek and jaw area about 2 years ago. I was ordered to see a Neurologist also and MRI's are being ordered. The TN on my left side has been coming and going ever since but minor and on occasion, Thank god!
I have been told by a few like others said above that Bilateral TN is usually associated with MS, this should be a huge alert.
I think mine if it is MS has progressed over the years from 5 years ago. I also have had a type of Spasticity in my foot a couple weeks ago that caused it to curl and completely cramp up for 24 hours while walking, I couldn't walk without assistance and my foot turned inward when walking, so bizarre to me and came on very sudden.
Pertaining to your tingling in your head, I have had tingling and numbness happen on my head/scalp, this feels strange. I think I have seen others posts that have experienced the paresthesia on their scalps also that may chime in.
Ask away anytime, there is always someone willing to listen and comment :)
Wellness to you!
Valarie
I have these symptoms and a diagnosis of RRMS. Bilateral trigeminal neuralgia is almost exclusive to MS. I have it as well to match my brainstem lesions.
As noted on one of my recent posts, dysautonomia can occur in MS with brainstem lesions so it may be tough to parse out the different symptoms to different diagnoses.
The bilateral trigeminal neuralgia points to MS. The rest of the symptoms I can't be so definite about. But I have done much research on the trigeminal neuralgia.
Read my recent post and look for the link 'supermum" added in the 2nd post. It has a link to an excellent article on autonomic dysfuction in MS.Actually, below is the link to the article:
http://www.hindawi.com/journals/ad/2011/803841
Good luck and keep us updated!
Ren
Trigeminal neuralgia is nearly always unilateral. In rare cases of bilateral trigeminal neuralgia, individual attacks are usually unilateral, with distinct episodes involving each side of the face at separate times. A change in the location, severity, or quality of the pain should be an alert to the possibility of an alternative diagnosis. Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g., caries, cracked tooth, pulpitis) - Localized; related to biting or hot or cold foods; visible abnormalities on oral examination
Giant cell arteritis - Persistent pain; temporal; often bilateral; jaw claudication
Glossopharyngeal neuralgia - Pain in tongue, mouth, or throat; brought on by swallowing, talking, or chewing
Intracranial tumours - May have other neurologic symptoms or signs
Migraine - Longer-lasting pain; associated with photophobia and phonophobia; family history
Multiple sclerosis - Eye symptoms; other neurologic symptoms
Otitis media - Pain localized to ear; abnormalities on examination and tympanogram
Paroxysmal hemicrania - Pain in forehead or eye; autonomic symptoms; responds to treatment with indomethacin (Indocin)
Postherpetic neuralgia - Continuous pain; tingling; history of zoster; often first division
Sinusitis - Persistent pain; associated nasal symptoms
SUNCT (shorter lasting, unilateral neuralgiform, conjunctival injection, and tearing) - Ocular or periocular; autonomic symptoms
Temporomandibularjoint syndrome - Persistent pain; localized tenderness; jaw abnormalities
Trigeminal neuropathy - Persistent pain; associated sensory loss