Sorry for the delayed response ... been a crazy week. You guys are too funny. I will definitely avoid twirling on a mountain top. I'd be lucky if I even make it a few steps up!
Blessings,
ArmyGirl73
Good advice, hb, though you make me want to order that movie on DVD. Great music.
73, God bless.
Have a wonderful weekend in the Alps. Just be careful doing your Julie Andrews impersonations. That bit where she twirled on the mountaintop and sang "The Hills Are Alive" might make your vertigo worse.
Hi there,
Thanks for the advice. It is a difficult thing to talk to kids about. We are going camping this weekend in the Alps ... a nice getaway for us all. I think we may start discussing it after we return. I want her to see that while it may effect some of my abilities, for now, she can still expect mom to be mom. I don't want her to only think about the bad. My husband and I will have to play it by ear on exactly when to tell her.
It is hard for them for sure. I'm sorry about your mother. I'm sure it was very hard for you both. My prayers are with you.
Blessings,
ArmyGirl73
hi can relate to your story i have just been diagnosed and was wondering wheather to tell my 11yearold son or not, it was the worst day of my life my son broke his heart crying for an hour solid he is very sensative and i wished i hadnt told him once i did its a difficult one as i needed to prepare him for the future and did not want him to over hear anyone discussing me and ms,my mum had ms and passed away in 88 there was not alot of meds around then and my son knew that his grandmother had ms this made it worse for me to tell him although he is fine now and has acepted it as he knows i am waiting to go on a med to slow it down,i also wanted to make him realise that he has to learn to do alot more on his own and it has although he moans now and then about doig it and says when are the doctors going to help you mum, i am waiting to start a med called rituximab as i have bad arthritis and have to go on something to treat both so i hope this helps you make your mind up all the best with the future,maggs
Hello All,
Thank you so much for your responses. It has been so nice not to be alone in this process. You are all such a blessing.
As for meds, I have to go see a neuro for that they said. My PCM won't touch me with a ten-foot pole at this point. He said I need to see the neuro for that discussion. I am not sure when the next appointment will be as everything is up in the air with our move and who will provide my care. It's nice to have a diagnosis, but rotten timing with our move because everything is so delayed. They seem to feel confident that it's okay right for the moment because other than the vertigo which they treated.
And I know that some expressed concern about why they'd still want to do the LP when my record clearly states the clinical diagnosis. I will talk to the neuro about that. That was just a heads up from my primary care. I hope they don't have to since we do know that it may not show anything, but the MRIs did. Certainly those and my long list of quirky symptoms were enough for them to confirm and give it a name finally. I really don't want to have extra procedures done if they aren't necessary. I know a few who've been confirmed without the LP and they didn't have any terrible episodes preceding their diagnosis. I'm thinking that maybe it's just the judgement of whatever doc you are seeing.
Thank you all so much for your support. It's been invaluable. I will definitely be staying with this group because it's nice to have someone understand what you are going through. My husband is a huge support, as our family is as well, but unless you've experienced it it is really hard to fully understand it.
God bless you all. Take care and you are all in my prayers.
Blessings!
-ArmyGirl73
Sounds like you are in good care. Congrats! I'm sorry, but happy for you.
Be well,
Heather
Hi there,
So glad to hear no matter what happens w/orders, hubby is fine all the way.
Will say a little prayer for you that you get in w/someone good at the new base. Many adults don't understand MS, so daughter may only understand small limitations for now.
Hope you are feeling ok w/the dx info,
shell
Well, you finally got a name to what is happening in your body. It is an end to your searching, but the beginning of a new journey. I hope they won't take too long in getting you started on medication. What is the next step?
They said they may want to do an LP to confirm the diagnosis? Why? We all know that LPs don't confirm anything but just add to the clinical information if it is positive. But if that is what they want, eventually, then you might have to do it.
As far as your daughter and when the right time to tell her, well, there is really no right time. Maybe let the news sink in first and then you will know when the time is good. She is 10 and t0 year olds are pretty sharp these days. I hope you all will have a good and positive disucssion when the time comes.
Please know that we are all here for you anytime and in any way you need us.
Love and hugs,
Julie
So sorry to hear of your dx, but glad you now have some answers for your symptoms. It sounds like the military is taking good care of you and your well being.
As far as telling your daughter, I would let her know what is going on. She "probably" already knows something is going on, and I would talk to her. You can get some good info from the national MS society like Alex said, regarding telling your children.
I am thinking of you and wishing you the best.
Michelle
well, you got answers..that's good and I hope it all works out with moving and being able to get medical attention when needed.
take care
wobbly
dx
Gee, us Limbolanders are staring to feel lonely already.
Best wishes, young lady. Our prayers precede you, wherever you go.
Hi Armygirl,
It is good to hear that the military medical system works sometimes, and is working for you. I'm so sorry you have this MiSerable disease, but am glad it has been officially named so you can get on with your treatment.
When do you see your neuro next? Did they give you information on the DMD's to pick one to begin? I sure hope they didn't give you this news and then just leave you hanging.
Where is your next assignment going to be? Hopefully the move will still happen since it sounds like you are looking forward to it as well. An hour isn't too far to drive to medical help - I go more than that for my neurologist.
Anyway, welcome out of limbo - I hope you will stick around and ask questions and vent and hang out with us as you see fit.
my best,
Lulu
Having just gotten my diagnosis in April I can tell you I went through a roller coaster of emotions. Relief to get a diagnosis, sadness, fear, anger, depression, and even some good ones to.
I only see my neurologist twice a year. I had military health care from the time I was born until I finished college. I had very good care. Now I pay a whole lot for care and sometimes get pretty crummy care.
The MS Society has a brochure on telling children you can get it on line.
Be kind to yourself,
Alex
I'm glad the military is being so useful and that you've got such a wonderful, supportive spouse. Those are the two things you need most...well, that and probably some DMDs. I hope that all of your feelings get settled and that you and your family do, too, and soon.
Bio
Impressed the military didn't toss you into a corner and forget you. They put forth the time, effort and expertise to get you on the road of diagnosis and treatment. Doesn't make the news easier to sort through but i'm glad they respected you enough to listen to you and your symptoms and solve your case.
Sounds like you have a good man standing next to you, you two hang on to one another. Good luck to you and your family with your move.