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1128488 tn?1265053382

HY Cy INFORMATION

I was treated back in June 08 at Hopkins with an "experimental" treatment of High-Dose Cyclophosphamide for Moderate to Severe Refractory Multiple Sclerosis. It was a 3 day treatment much like Chemo, my immune system was wiped out, and my blood counts taken to near zero. I spent 3 weeks having my blood counts being brought back up. Since then the unwelcome visitor has been quite and all subsequent MRI's and blood work have confirmed that the MS I HAD is in remission! Johns Hopkins is doing great work with MS research and they have a great WEBSITE, thats what lead me to them.

2 Responses
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572651 tn?1530999357
That is great news.  Has this moved from "experimental" to mainstream treatment yet?

We would love to know more about your experience at JH.

be well, stay well-
Lulu
Helpful - 0
198419 tn?1360242356
Glad you are doing well. In addition to what Lulu askes about the treatment, can you fill us in a bit on the moderate and severe refractory MS.

Thanks much,
-shell
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