Had my first Copaxone post-injection reaction

[LoveMyBostons]

Luckily I knew what to expect so I didn't panic. I was already sitting down. I had just done my right leg and there was a little bit of blood which is common for me. I looked down to clean it up and all of  a sudden my mouth started watering and I tasted metal. Then my heart & head started pounding and I got very warm. I asked my sister to grab me an ice pack.

The whole thing was over in about 10 seconds. While it certainly wasn't pleasant, it wasn't as bad as I imagined. I stayed calm, closed my eyes and waited for it to be over.

I've been on Copaxone for just over 3 years. I have a call into my doctor so I'm waiting to hear if/when I can resume my shots.

I just thought I'd share my experience in case anyone out there (like me before yesterday) has never had this happen and was worried about it. It was scary but only for a very short time. Afterward I felt completely normal.

[LoveMyBostons]

Thanks everyone! My neurologist said that hopefully it was a fluke so I've continued with injections. No problems since.

I'm thinking about maybe switching to a pill next year, mostly because of the lumps that have formed in my injection places. Sometimes I have trouble finding a good spot to inject.

[jujuminx]

Thanks for sharing.  Been on Copaxone for almost 2 1/2 yrs now. No post-injection reactions.

When I first started, sometimes I would have some lumps under the skin for a few days and stinging just after injection.  Now it's rare that I feel more than a slight sting and rarely get any lumps. Hoping not to have any major reactions but unless I develop an allergy, I am more afraid of what MS can do to me that the dmd's.

Hang in there. I would be interested to find out how your subsequent shots go this week.

Julie

[Maks322]

Glad you posted, information is good. Those of us who haven't been dx'd yet, are learning about the ifs and when's, if we do get our dx and out of limbo land

Hope all is well with you
Maureen

[Deb61]

I've had two reactions in the first year or maybe year and a half on Copaxone.  I haven't gotten them again, and I've been on the medicine for nearly five years now.  One of the reactions was very mild and the other one my face got red and my heart pounded for about 5 minutes.  I didn't panic, I just sat down on the bed and let it go away since I was warned that they are not serious and it went away.

I really like Copaxone.  I no longer get any injection site reactions at all.  Additionally, I don't have to pay at all for the medicine at all (just $35 one time a year) because of the copay assistance program that I have.  The Shared Solution people are really supportive and nice.  It has kept the major relapses away, too.  Best wishes.

[Mummy76]

My reaction was more like Kelly's.  It lasted about 10 minutes and I thought I was having a heart attack.  I was considering calling 911 when I remembered being told about this possible reaction with Copaxone.  My face started burning, my heart went crazy and it felt like there was a band across my chest.  Ive already told my neurologist that if I ever have a reaction like that again I'm quitting Copaxone.

[sllowe]

Hey there,

Sorry you had it - but glad you posted your experience with this. It's understandable from all of your descriptions and others why it's so feared. Heart-problem type symptoms are just simply scary.

Hope it doesn't happen again. Do you find yourself apprehensive for the next injection? I look forward to hearing what the doc says.

-shell

[anon07072023]

I had my first one 6 months into taking my injections. I thought I was going to die. I couldn't breathe, my heart was going so fast, I thought that it was going to burst out of my chest. Then, with all of these symptoms happening I started panicking and I'm sure that made my breathing even worse. My face & neck turned very red.  Mine lasted for maybe about 5-10 minutes.

[jensequitur]

It can be very scary, but it's nothing to be concerned about.  I kept having them, and although I know that they won't kill me, they did leave me very debilitated (exhausted, shaky, and dizzy.)  I eventually quit taking Copaxone, because the last IPI ended up being an allergic reaction.  (My face and scalp swelled, and I got very itchy.)

[JaneK1975]

Thanks for posting. I'm a little under a year out from my first shot, and every once in a while I think about the post-injection reaction (I haven't experienced it so far). I'm glad you got through it so well.

- Jane