Has MS Changed Your Mood, Thinking, etc.?

[yorkieville]

I have noticed that I feel very different. I am over-sensitive, don't 'think' the same, tend to 'react',  get irritated more easily.

Has anyone else oberserved these changes in themselves?

Often, I get upset, but I don't know why.....until later.

Sheila

[yorkieville]

Jeny,

Thank you so much.  I appreciate prayers, more than I can put into words.
I feel, if my Lymphocytic colitis could be put into remission, the nerve pain would lessen.

I am taking the medications, since December, that my G.I. Doc prescribed, and eating so very carefully.

Cream of Rice made with water, (no dairy allowed-due to the casein). Plain white toast for lunch, and again, my husband can only buy one type of bread from Panera. White rice for dinner. A banana for an evening snack.

Yes, since stress worsens our MS, I believe that anxiety would also worsen it.

Oh, I hope you do well on the Tecfidera! I've read it has the least amount of side effects.

I feel, that when we already have the type of personality that doesn't handle stress well, MS makes it so much harder.

You are just like me. I don't always know either, what is upsetting me, and that has been very difficult for my husband.

I think having a talk with your husband, really would help him, understand that your MS is affecting you.

I believe, your husband will walk the path of MS with you. After all, in our wedding vows, we said, "In sickness, and in health".

So, don't be afraid he isn't up for it.

Maybe you can both find support groups. Sometimes, talking with people going through the same thing, is very helpful. He may feel less alone.

Sheila

[debgen]

Oh Ssheila, I really want to reach through my iPad and give you a great big hug!
Everything you just said to me could have come right out of my mouth!

It really is comforting to know someone can totally relate, although I am sorry you feel this way too. Please feel free to private message me any time you want to talk. :)

(((more hugs)))
Deb

[jen673]

Oh I wish I had the magic pill for you!  It's not right to have to be in constant pain and not treated.  I will keep you in my thoughts and prayers that phase passes quickly like before.  

I have been wondering about stress making our MS worse.  Do you think anxiety mess help with that?  I've contemplated taking them for a long time.  

I will be startingTecfidera this week and hope that things get better.....therefore less stress lol.  I admit I do have the type of personality that gets stressed easily over little things.  I try real hard not to but just can't stop it at times.  It's one of the things I'd love to change about me!  

I get in little arguments with my hubby because I have trouble explaining or discussing things and it doesn't come out of my mouth right.  I guess I need to have a talk with him and explain it may be my MS.  This is new to us and I don't think he truly understands what my future holds for us.   I pray and hope he's up for it.  That's one of my biggest fears.  We are only 40.  Does he really want to deal with this for the ret of his life?  It's scares me :(

Jeny

[yorkieville]

When I was finally diagnosed, I was so grateful, so relieved to have the diagnosis. And I was doing pretty well for quite awhile.

But I wasn't "aware" that I was becoming over-sensitive. It wasn't until after a situation had occurred, that I would look back, and feel I didn't handle it the way I would have before.

No, I didn't mean the way we think about ourselves, just the way we think, in the sense, that they can't concentrate, as well, or unable to verbilize what they need from others, etc.

Although, I have said, and I will say it again, I don't like the MS me. Because I can no longer do the things I did before.

OK, now I understand what you mean about the words "stress" & "fatigue" being over-used. I agree, the general public, healthy people may tend to over-use those words.

For me, fatigue means an MS exacerbation that causes me to need 18 hours of sleep for days.

And stress, well, in that sense, there is so much negative happening in my life, that I can't deal with it, because I can't 'think'. I can't remember details.
So, my husband has had to take over even more.

My MS Specialist told my husband & I, that stress makes MS worse.

I used to be able to handle everything, without giving it a thought.

(Although, the death of my parents 9 months apart, left me emotionally drained for a long time.) They both suffered serious, long-term illnesses, but that didn't make losing them any easier.

JJ-like you, retail therapy is not possible for me, anymore either. I miss going out with friends. So, that depresses me, when my friends e-mail me and tell me all about what they have done that day.

Right now, I am stuck living with the pain, because I am not allowed to take any pain meds due to the Lymphocytic colitis. The meds make it worse.

[yorkieville]

Hi, Zoe.

Thank you for responding.

It appears that MS affects many of our moods/personalities.

I feel I am the same way, I am irritable, less patient, and I feel it is due to my high pain level.

Sheila

[yorkieville]

Hi, Deb.

I was away from the forum quite awhile.

Thank you for responding.

I agree, it is the disability caused by MS, that has changed my mood, thinking, etc.

I'm sorry MS has affected you in the same ways.

Sometimes my MS fatigue is so great, that I sleep for 18 hours a day, for a week.

Right now though, the nerve pain allows me very little sleep.

And yes, I do feel sad, very useless, as I watch my husband manage everything, the housework, the cooking, the property maintenance.

My husband and I have been trying to talk through a lot of what upsets me, but we both realize, so many things are out of our control.

I'm not the same person either, and we both miss the old me. (:

Sheila