I am brand new to this group. Nice to meet you. I have read many stories similar to mine.
I have what have been called: basilar type migraines, hemiplegic migraines: I have a left side headache, and associated with this, I also have numbness/tingling along entire right side - face-arm-fingers-leg-toes, leg weak, can't walk properly, can't find words, confused, dizzy, worse with heat - caused by heat.
headache lasts an hour - other symptoms last days to weeks.
also - have all the numb-weak-can't walk-tremors-ringing in ears-fatigue symptoms with no headache at all.
exacerbated by heat and stress and exertion/exercise
To complicate things a bit more - 6 years ago, I broke my neck in a rollerblading accident. (Do not ever go rollerblading with a dog on a leash. It is really fun - but take my word for it. It is not worth it.) I have three fused discs in my neck, and now moderate spinal stenosis, and severe stenosis to the lateral nerves. There was some cord damage in the original accident. Most neuropathy was on right arm hand - C6 distribution.
So - sorry. What is my question, right? I am concerned that I have many symptoms of MS, but both of my neurologists (one is a "headache specialist" the other a general neurologist) have it in there minds that I am a "headache" patient. It seems that is their mindset....and they do not see my symtoms any differently.
I had a very poor quality MRI done about a year ago. (I'm an MRI tech. It was very low resolution and grainy. Impossible to see any thing like a subtle MS lesion).
Any advice on how to raise this possibility with my neurologist? I am pretty shy...and wimpy with my physicians.
Any words of wisdom will be greatly appreciated!!!Thank you.