Over the years here there seems to be a better success rate when pwMS have specifically gone to pain clinics and had an individualistic treatment plan tailored to their situation worked out for them, so with that thought in mind i would recommend you request a referral to a reputable pain clinic in your area to see how they can help make your pain situation better.
Hi Maria, it's been a while!!!
Anyway, my 2 cents worth of imput regarding MS and pain.
There's a significant component in the onset of MS and consequently fatigue and pain, which has to do with carbs (specially gluten), yeast ..
A harmful substance called tartaric acid, which needs carbs/sugars to grow and is antagonistic to malic acid-an instrumental factor in the Krep's cycle ( a sequence of biochemical reactions in the body to release stored energy)- has been associated with fatigue and pain.
Yeast and fungal toxins ( they feed off sugars) are a common finding among MS sufferers, as is low vitamin D (or normal D levels but with vitamin D resistance present)
When yeast and fungal micro-organisms escape into the bloodstream they can affect the brain and the nervous system and cause auto-immune reaction
( engaging a mechanism known as molecular mimicry )
The cells of the affected system(s) suffer a loss of energy (lowered voltage) unable to remove waste, to repair and to renew, resulting in impaired function, pain, fatigue etc.
Pain clinics, cannot address these underlying issues and are only there to help lower temporarily the pain perception through artificial means.
I have mentioned most of this several times in the group.
So the key is to act on it by first confirming the presence of substantial levels of yeast/fungal organisms, high tartaric acid (simple urine test which also shows other yeast byproducts),vitamin D levels and gluten intolerance assays including gluten cross reactivity testing (to rule out other foods to which the immune system reacts the same as gluten).
In lieu of these tests (how many neurologists have ever suggested any of them???... with the exception of vitamin D testing, which BTW cannot verify vitamin D resistance and thus nearly never checked by conventional doctors , consider a challenge--> A combination Gluten free diet, elimination diet, low carb diet, focusing on organic, fresh & nutrient rich foods,
taking raw unfiltered apple cider vinegar (best source of malic acid) 2 tablespoons daily, coconut oil 3-4 T daily,
no seed/vegetable cooking oils (pro-inflammatory!!!)
Taking 10000 IU vitamin D3 weekly and 1000 mg quality omega-3s.
If one feels better after 2-3 months, it would be very indicative of the aforementioned imbalances being contributing or causative factors.
Hi again Maria.
In regards to vitamin D supplementation, I neglected to mention that a deficiency of tissue magnesium -based on the principle that vitamin D needs a lot of magnesium in order to convert into its active form- would lead to a "functional" vitamin D deficiency.
Naturally the higher the D3 dose the more magnesium would be necessary
Vitamin A and K2 are also necessary for vitamin D conversion.
Blood tests for magnesium are not useful, since only tissue magnesium matters here.
Such a situation will impact calcium metabolism on top of all the consequences of low magnesium and low vitamin D, which would be enough to totally ruin one's health!
Unfortunately conventional doctors nearly never investigate and address such concerns, so patients must be proactive and take these health matters in their own hands, so to speak.