Hey there :)
I am sorry that you are going through this emotional as well as physical
time right now. I can soooo relate!
I guess we are in the same boat and I will find out more in June about it going from
RRMS to SPMS. Sorry I can not answer your question but rather let you know that
I am also a bit confused about when a "remission" should come....As I have not
gone back like I used to but rather stay the same and /or get a new sx or the original ones progress to some degree...and never go away.
You are awesome for staying active despite of the MS!!! ANd for not looking back at last year only to find out that you are not that person you were then.....I think for me, that is ONE of the hardest parts :(
I hope you get some answers at this coming visit.
glad your back and gave us an update on how your doing.. it's been awhile and we miss you.
when is your appt. I'm finding that my progression is slowly getting worse. My hubby and I notice little things and I'm alot more tired out easily. My balance is getting worse and my legs get weak easily now.
stay in touch and hope your appt goes well.. let us kow
Great to see your thread G-G :))))
When is your appoint.?????
Your right, we can't look back to where we were last year, or whenever a last flaire left us debilitated.
Good to hear that your still working hard, yoga, on your bike - it's the guitar playing hey? But at least you managed 12 mins -- maybe tomorrow or today it could be a bit longer?
We have to think positive, and your thoughts on composing sounds like another good idea.
Hi, GG. Good to see you. I'm sorry you're not really up to snuff, but you have a great attitude.
Please visit here more often.
Sorry things are not easy. I really wish you could have a long remission and do whatever you want.
I am glad you are composing.
Hi GG, It sure is good to see you check in, even if you don't plan on being here often. We all know how life can get in the way and keep us from doing the things we really want to do!
It stinks that you still have not found the remitting phase of your disease - I hope the doctors have some answers for you.
be well, Lulu
Hi, and thanks for all the kind thoughts, everybody.
My appointment is June 30.
I'm re-reading _The Tao of Pooh_ :-)
(((Hugs))) to all,
Hi there, good to see you. I haven't been on the forum much, so its good that I checked in when you did.
I just got out my copy of The Tao of Pooh. I haven't read it in years.
I'm wishin' you some remission.
Kathy (Fluffy says hi, too)
I can totally relate to the "no remission" stage. I have questioned my neuros about this and one says SPMS and the other says no.
I just know that the only time I've had any truly good time was 3 weeks in January. Am planning to see a pain management doc soon to rethink all my meds and perhaps find some way to increase my energy and decrease this early muscle fatigue.
I like your attitude of setting small goals each day and then concentrating on those instead of the big picture, which often is too much to encompass one's thoughts on any given day.
Take care of yourself and pop in when you feel like it.