I am feeling desperate for help. My husband nearly fell after his left leg suddenly went numb on him December 2020. No other symptoms to suggest a stroke. The leg numbness progressed and after a couple of weeks he had to use a cane to guard against falling from the leg suddenly going completely numb. A few weeks after that, his left arm started doing involuntary jerks. A few more weeks, the right arm started doing it. The leg that goes numb has started occasionally doing involuntary jerks. Last night he got up 8 times to go to the bathroom, and his need to pee has increased since all this started about 10 -11 weeks ago. He has had an xray of the hip, a CT scan of the lumbar (they were looking for a pinched nerve), blood flow tests, nerve conduction tests. They have established his left side is weaker, it's not ALS but it is some sort of brain pathology. Neuro consult said if he was 20 years younger he'd be pretty sure it's MS but it's rare, although not unheard of, to get MS at his age (he is 71). He was vibrant, healthy, hiking, working full-time, driving an hour each way to work when this started. He continues to work, drive, etc and do life in general, but needs answers.The arm jerks or twitches or whatever they are, are more frequent. It's especially bad when he is tired. He started making math errors at work today and he can do numbers in his head quickly and accurately usually. He also had a fall at work today as his leg simply gave out when he went to stand up from a meeting and was reaching for the cane and was mortified. The neurologist also said maybe it was some kind of stroke but it doesn't sound like it to us or the family doctor. In researching MS, we found it noted hearing loss and vertigo and other things. He started having strange vertigo symptoms that came and went years ago. His hearing loss started about 10 years ago and its progressed quite a bit and they have never been able to determine why. He had a brain MRI done 3 and a half years ago when they were examining his hearing loss and found nothing to pin point the hearing loss but the report notes white matter issues, lesions and demylenation (sp). We did not know what any of that meant, the specialist who ordered the MRI said there is nothing that helps with the hearing loss problem and did not have anyone follow up, as the report said should happen. We read the report for the first time a few months ago and I had my husband take it with him to the neurologist when his leg/arm problem started. Based on all that, the neurologist has ordered an MRI called an MS protocol. Another symptom was he used to get restless leg syndrome type issues with his upper arms. Now we wonder if he was displaying MS symptoms much earlier but because no one looked at all the things at once, no one ever caught it. I have read that late onset MS is often missed as doctors dismiss older people as possibly having it.
Although the neuro has ordered the MRI, his conversations suggest he really doesn't think so. He has only seen my husband once. I am writing here to ask if anyone can shed any light, any similar experiences, or ask any questions of us that might help with the diagnosis as the doctors seem to be in the dark mostly and very slow to do anything while he's losing feeling and function in a very short period of time. Sorry for the length of this.