"How to train my neuro?..."

[jenandherboys]

Sorry if this gets too long, I suppose it's part vent part request for advice.  I am finding myself sinking further into the ranks of the undiagnosed and eternally frustrated!  My most recent episode (or "spell" as the NP at neuro's office like to call them) began 9/15 and quickly progressed to a searing spasm that ran from my left groin down past my knee which lasted 3+ days.  That acute symptom eventually resolved with much help from my beloved exercise/physical therapist(I swear she must moonlight as a psychiatric therapist as well, or at least a motivational speaker!)

Even though the inital, glaringly obvious problem has been worked through(sort of), many other symptoms still persist to this day-language issues with wrong word coming out, urinary hesitation(using Flomax), constant corset-like tightness around my entire ribcage with occasional, random spasms targeting specific focal points, unbearable fatigue, brain fog (I can't even think of the rest right now, LMAO!!).

Only the initial acute spasm was "new" to me, but the duration of the tightness around the ribs, the frequency of language problems(word finding, think of right word but wrong word still comes out, swapping beginning sounds of two consecutive words, words on my computer screen popping up in my phone conversation with a patient while working in the pharmacy!!!), prolonged level of fatigue...Many of these things are not new, but they are affecting me in new/different ways.

The MS Clinic in Milwaukee is where my local neuro and I agreed I need to go, but I have to wait til March(!!!) even though I made the appt in early October!  When I called back to the MS Clinic and asked about any earlier appt, the receptionist  told me that if my Dr. thought I needed to be seen sooner, he should call Dr. Rayman and discuss it with her.  I left a message with local neuro's RN about trying to get in sooner since I feel like I am continuing to decline.

Any ideas as to how to impart my feelings of urgency(not I not just referring to my bladder!) on my local neuro?  I'd like to find a way to somehow walk that fine line between firmly assertive and ranting, pushy hysteric!!!  I have the added pressure of not knowing what insurance options will be offered by my DH's employer for next year, but right now my deductable has been met for 6 months and I'd sure like try to get as much done as possible before the year is out.

Is pleading on my hands and knees going too far? LOL!!  Maybe not if that's the best ambulation I can muster at the time!!

Thanks for following my wandering train of thought all the way to the end!

Be well!

Jen

[jenandherboys]

Good idea!  I LOVE my primary Dr, and he is always helpful...couldn't hurt to ask for his help if my neuro seems hesitant!

Thanks for the idea!

Be well!

Jen

[MisterTimC]

Good Question!

Do you have a primary care Dr that would be able to help push the right buttons?
tc