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393986 tn?1303825975

I HATE MS BOOK

Project "I HATE MS" BOOK, I am requesting trials and tribulations from everyone here on the forum. We want to write a book about it and get people in the world to really see MS for what it is and how it affects us. Even for those of us in Limbo.  I am going to try to get some collaberations from the so called experts but want to really put our lifes experiences into a new light.  I think that we as a whole can move the world with this.

Ada
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420469 tn?1217647363
lol I'd call the book something like " MS? Lazy? Or just plain Crazy?"

Christine
(un-dx)
Helpful - 0
393986 tn?1303825975
It is so sad isn't it?  Sorry I missed so much yesterday. I was hoping we could get Quix as one of the experts....
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398059 tn?1447945633
I read these stories of folks bouncing between pcp and a myriad of specialist with no concensus and I want scream at any doctor i come across.

Actually, I think the limbo land part of the book is the most important.
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393986 tn?1303825975
Yes, I agree with the medical history part. I also would like to do a special section for limbo land and for those of us who reside here.
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398059 tn?1447945633
yeah to the larger print.

I think some might have problems with auto-biographies, though medical history of present illness would a requirement.
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393986 tn?1303825975
   We can see how much info we could gather up and start categorizing it. We pherhaps can do  a small little autobiography of oneself. I don't know, we definately would have to scale down to make it an appropriate sized book.  And we would have to have LARPE PRINT  to make it easier on the eyes....:)

Ada
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398059 tn?1447945633
I think most folks will only write enough for to fill less than 5 pages.  I we get even 20 that is only around 100 pages.
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195469 tn?1388322888
I don't think the publishers would like it, if the book has as many pages as "War and Peace."  Whatcha think?

Heather
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398059 tn?1447945633
I wonder is "feeling the earth move under my feet" an MS symptom?
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398059 tn?1447945633
I feel the earth move under my feet
I feel the sky tumbling down
tumbling down, tumbling down...

--Carole King, Ada
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