I am undiagnosed, could anyone tell me what they think,please?

[1AJ1776]

Starting at 18,out of the blue I lost my voice;it just up and went as was about to talk. It came back eventually, but it continued to occur over the course of a week or so;and quickly as it came it disappeared. So I thought nothing of it. Then at 21,my left leg became heavy and I had pins and needles, then the right side of my face hurt. Then I started bowel problems and incontinence. I felt like I was going crazy, doctors telling me it was stress, that a young mother and wife. But then the symptoms went away and I just put all my attention towards my children and husband. But over the years these same symptoms would pop up and put me though psychological hell I'd reach out to the doctor, go to neurologists and they'd do the test to check my electrical pathway or whatever and tell me oh its fine,perhaps you see a therapist we have an excellent psychologist in our practice.
Now in the spirit of full disclosure I wondered if it was all a psychological isdue, because I would have moments of mania, just out of no where. .it was scary. But then I'd be symptom free and move on...it's been nearly 20 years I'm almost 40 and yet again experiencing these symptoms..I am beyond frustrated and yet again being told to go a neurologist after seeing a spine specialist who was referred by my chiropractor after not being able to rid me of the pins and needles and heavy sensations..it's being sent to another mri..and I just do not see the point. The spine doctor gave Lyrica for the pins and needles..which after two doses..it seems to quiet it down..but the heaviness is still there as well as the facial pain. I think I am just going to medicate myself and wait for inevitable disappearance of these weird sensations..because as time has shown me..this to shall pass. Oh and I was diagnosed with Meinere's disease two years ago with a thirty percent hearing loss..but that diagnosis never made sense bc I've never had vertigo, just ringing fullness sensitivity to noise and hearing loss. .I don't know what to think.

[supermum_ms]

Hi and welcome,

Could you please brake up your future posts into smaller blocks of text, people with MS commonly have visual and or cognitive issues that makes reading and following large blocks of text too difficult - ta :D

It's possible you were misdiagnosed with Meinere's disease, if you've not experienced the typical triad of symptoms but keep in mind that diagnosis of anything is based on not just your symptoms but your objective medical evidence.

Mental health conditions that include mania (eg bipolar) are not typically the cause of symptoms in only one side of the body, so i understand why your questioning mental health as the only explanation for these episodes.....it's possible the situation is reversed, your mental health situation is not the causation but is being worsened each time your dealing with physical symptoms, if you start to get more and more anxious about your health during the diagnostic investigation.  

eg someone usually with a generally stable mental health condition eg anxiety/depression, can additional experience severe or escalating mh episodes throughout their life for their individual or unique triggers. If one trigger is their health, their anxiety will continue to escalate to extremely high levels of anxiety when experiencing symptoms and medically related testings, and it wouldn't be outside of expectations for the physiological medical issue to seem worse or get overlooked because of the psychological issues escalating.

You've been seeing a chiropractor and have also been referred to a spinal specialist, which makes me think you might actually have been diagnosed or are suspected of having a structural spinal issue(s) with peripheral nerve damage, nerve conductor tests and a spinal MRI definitely wouldn't be a waste of time now your older, after 20 yrs if it is a problem with your spine it should be more obvious, so please reconsider it could find your answer and make all the difference...

Hope that helps....JJ  

[Cynthiaa89]

Your story is very similar to mine. I posted a question a few minutes ago. Undiagnosed as well.