I got a copy of my medical records from my neurologist and was able to get a better understanding of his "leaning" towards MS. I think I just took for granted that he would tell me everything, but I guess some things that aren't maybe definite they keep to themselves. He thought he saw pallor in my left optic nerve head compared to the right (same eye that I had the red color desaturation in, and another thought I had abnormal pupil response at first then changed their mind) I don't know.... do all these "maybe's" add up to anything? These 3 findings were from 3 different doctors. I really don't have any eye complaints though.
Another issue was the comparison of the 1st MRI to the 2nd. He had told me no overall change. In his notes he says,"Counting every lesion in every slice, I count 10 T2 lesions in the 1st, 9 T2in the 2nd mri." Then he says in the FLAIR sequence there are 13 on both mri's. Okay--so this next part doesn't make sense... I believe there are 3 new lesions in the more recent scan, but slice angle variation may account for some of this. According to his count I should have one less, I don't understand where the 3 new lesions come from?? and there are no enhancing lesions...these mri's were only done 2 months apart because I was just having growing numbness down my back and he wanted to look at my c-spine. He went on to describe it as no significant change.
So, it seems that there couldn't really be anything new if there wasn't enhancement?? The second MRI was an open 1.5T and the first was a 1T.
I'm not really freaking out or anything, just trying to understand if this is even relevant or not. I think I have reached the point of not wasting my time on anything that really isn't definite.
I guess I see why he isn't so worried about all the numbness I have, because in the back of his mind it may be adding up to MS. I am sure that some of my "descriptions" are similar to his MS patients-most every thing I have posted someone else here has had the same thing happen to them. I guess I just don't get why the length of my symptoms, 4 months now.