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Avatar universal

I have action myoclonus. Does anyone else?

Hi  I too have action myoclonus and have been in hospital for two months and haven't been able to walk for three. My symptoms started 4.5 mths ago and I have it in my legs, arms, hip flexors, and neck. I have better days and bad days. I am in Australia and currently taking 2.5mg clonazepam, one fluoxetine tablet and 20mg of baclofen a day but i am still getting worse. Any advise would be greatly appreciated. Some days I can't even feed myself. Thanks hope
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Avatar universal
My girlfriend Paula has severe action myoclonus which also manifested after successful CPR rescusitation. She has bad days and better days. Much of it seems to depend on her mood. Kevin.
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Avatar universal
I am unsure if you still check this page...but..yes my husband has action myoclonus as a result of CPR resuscitation.  It was quite debilitating until neurologist dx Ed. And prescribed depakote. It helps drastically...very few falls now.  You are not alone!
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1312898 tn?1314568133
I have myoclonus too.  Mine started with my feet and has worked it's way up to my thighs and arms.  For me it's more annoying than anything  I take flexeril and clonazepam when it gets bad.

Sorry you are going through so much pain right now but welcome to our support group

Red
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338416 tn?1420045702
Here's another bump for you.

I have experienced what I suppose is action myoclonus - it's not as debilitating as yours.  It's worst in the mornings - I get up and my legs tense up, and it takes an effort to get them to relax so I can move.  Sometimes it's in my back as well.  It's weird because I'll get up, and just freeze.
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198419 tn?1360242356
Hi there,

Greetings. Are you dx'd with MS? I do not have this but know some on the forum do suffer with it so I'm giving your post a healthy bump back to the 1st page with hopes you'll get shared experienced.

I'm sorry you are going through this, Hope. I hope we can be a source of information for you and support.

Thanks for joining us,
~Shell
Helpful - 0
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