My girlfriend Paula has severe action myoclonus which also manifested after successful CPR rescusitation. She has bad days and better days. Much of it seems to depend on her mood. Kevin.
I am unsure if you still check this page...but..yes my husband has action myoclonus as a result of CPR resuscitation. It was quite debilitating until neurologist dx Ed. And prescribed depakote. It helps drastically...very few falls now. You are not alone!
I have myoclonus too. Mine started with my feet and has worked it's way up to my thighs and arms. For me it's more annoying than anything I take flexeril and clonazepam when it gets bad.
Sorry you are going through so much pain right now but welcome to our support group
Red
Here's another bump for you.
I have experienced what I suppose is action myoclonus - it's not as debilitating as yours. It's worst in the mornings - I get up and my legs tense up, and it takes an effort to get them to relax so I can move. Sometimes it's in my back as well. It's weird because I'll get up, and just freeze.
Hi there,
Greetings. Are you dx'd with MS? I do not have this but know some on the forum do suffer with it so I'm giving your post a healthy bump back to the 1st page with hopes you'll get shared experienced.
I'm sorry you are going through this, Hope. I hope we can be a source of information for you and support.
Thanks for joining us,
~Shell