Aa
I will be here
Hi, All. No need to respond to this. I'm having a lot of pain and just started the new med for the TN. It makes me spacey. I see all the questions and I promised some people some answers. I hope to be on later today. Just wanted you to know, I'm fine and not ignoring anyone, but for right now I'm "non compos mentis." Not in my right mind. Carry on, and I'll be back soon. Again, no need to respond.
BUT, I have THE new name for the kind of neuros Cowboy, Cjacks, Rena and others have found!
They be: DODO-DOCS !
Love you all, quix
BUT, I have THE new name for the kind of neuros Cowboy, Cjacks, Rena and others have found!
They be: DODO-DOCS !
Love you all, quix
WE NEED TO GET OUT OF THESE DEFUNKED RELAPSES FROM HEY-DEY.
LAST NIGHT AT THE MS CLINIC THEY GAVE ME PAPER WORK ON DEPRESSION,WHICH I KNOW I HAVE A BIT OF,BUT MY GP TAKES CARE OF THAT.
I GUESS IF WE ARE RELAPSING MAYBE OUR MS SPECIALIST ARE WRONG ABOUT THE PROGRESSION.
I KNOW I'M TIRED OF THE SOLU-MEDROL INFUSIONS,I HAD THEM FOR 5 DAYS BEFORE CHRISTMAS THEN THE SPECIALIST RAN THAT ONE LAST NIGHT IN 15 MINUTES TO SHOCK MY SYSTEM.
GEEZ HOW MANY ATTACKS CAN WE HAVE IN A YEAR?
I TRY TO STAY ACTIVE,I CAN'T EVEN GO TO THE FITNESS CENTER RIGHT NOW.
HOW LONG DOES IT TAKE TO GET A ARM BACK TO WORKING.I'M RIGHT HANDED AND IT ISN'T GOOD TO HAVE THE RIGHT ARM AND HAND GO BAD.
QUIX,I'M GLAD YOUR FEELING BETTER YOU HAVE BEEN THROUGH THE WRINGER AND BACK FOR A LONG TIME.
PRAYERS THAT YOU GET OVER THIS QUICKLY
T
LAST NIGHT AT THE MS CLINIC THEY GAVE ME PAPER WORK ON DEPRESSION,WHICH I KNOW I HAVE A BIT OF,BUT MY GP TAKES CARE OF THAT.
I GUESS IF WE ARE RELAPSING MAYBE OUR MS SPECIALIST ARE WRONG ABOUT THE PROGRESSION.
I KNOW I'M TIRED OF THE SOLU-MEDROL INFUSIONS,I HAD THEM FOR 5 DAYS BEFORE CHRISTMAS THEN THE SPECIALIST RAN THAT ONE LAST NIGHT IN 15 MINUTES TO SHOCK MY SYSTEM.
GEEZ HOW MANY ATTACKS CAN WE HAVE IN A YEAR?
I TRY TO STAY ACTIVE,I CAN'T EVEN GO TO THE FITNESS CENTER RIGHT NOW.
HOW LONG DOES IT TAKE TO GET A ARM BACK TO WORKING.I'M RIGHT HANDED AND IT ISN'T GOOD TO HAVE THE RIGHT ARM AND HAND GO BAD.
QUIX,I'M GLAD YOUR FEELING BETTER YOU HAVE BEEN THROUGH THE WRINGER AND BACK FOR A LONG TIME.
PRAYERS THAT YOU GET OVER THIS QUICKLY
T
alas...my days of tyranny are over.
This is what I think happened. I finished the 3-Day steroid pulse last Wednesday. The new and improved L'Hermitte's did go away. Thursday I started the Tegreto (carbamazepine) and it added unsteadiness, dizziness and ataxia to my already permanent vertigo. oh, joy.. Th
Thursday eve I had the worst attack of Trigeminal Neuralgia I have had.
Friday I had myalgias, a headache, chills and maybe a fever and a lot of face pain. I also started to get a fever blister (Herpes I) Typically I have a viral syndrome-like illness the first day of a fever blister due to a viremia (replication of the virus that spills over into the blood. this is fairly common.)
This stimulated my immune system and triggered an MS relapse.
Saturday I felt better
Sunday both legs and my right arm became very weak. They stayed very weak for three days. Momday and Tuesday. Also I had new parasthesias in my right foot. I called my Neuro and he said it was too soon to give any more steroids, so there was nothing he could do. This would be correct. So I wait it out.
So this is the anatomy of another Flair up. I'll keep you posted about how quickly and completely it all resolves. It's kind of reassuring to actually have one more relapse (though maybe I had one right after Christmas) to know that I really do have RRMS.
I've read through a lot of the forum today. Boy, you guys are really handling yourselves well! There really is good info here!!. Would someone chase down the oldies, but goodies for the new people? The threads on MRIs, and all the rest and bump them up.
Thanks, see you in the morning. The ice packs are melting from the hot little butts of all the dodo-docs we've sent packing. We may need to find a greener way to dispose of all these maroons! Voodoo it is!
Today some of my strength has returned. Hence, I'm back on the forum and hopelessly behind. But, I've run out of ooomph for now and will see you tomorrow.
Quix
This is what I think happened. I finished the 3-Day steroid pulse last Wednesday. The new and improved L'Hermitte's did go away. Thursday I started the Tegreto (carbamazepine) and it added unsteadiness, dizziness and ataxia to my already permanent vertigo. oh, joy.. Th
Thursday eve I had the worst attack of Trigeminal Neuralgia I have had.
Friday I had myalgias, a headache, chills and maybe a fever and a lot of face pain. I also started to get a fever blister (Herpes I) Typically I have a viral syndrome-like illness the first day of a fever blister due to a viremia (replication of the virus that spills over into the blood. this is fairly common.)
This stimulated my immune system and triggered an MS relapse.
Saturday I felt better
Sunday both legs and my right arm became very weak. They stayed very weak for three days. Momday and Tuesday. Also I had new parasthesias in my right foot. I called my Neuro and he said it was too soon to give any more steroids, so there was nothing he could do. This would be correct. So I wait it out.
So this is the anatomy of another Flair up. I'll keep you posted about how quickly and completely it all resolves. It's kind of reassuring to actually have one more relapse (though maybe I had one right after Christmas) to know that I really do have RRMS.
I've read through a lot of the forum today. Boy, you guys are really handling yourselves well! There really is good info here!!. Would someone chase down the oldies, but goodies for the new people? The threads on MRIs, and all the rest and bump them up.
Thanks, see you in the morning. The ice packs are melting from the hot little butts of all the dodo-docs we've sent packing. We may need to find a greener way to dispose of all these maroons! Voodoo it is!
Today some of my strength has returned. Hence, I'm back on the forum and hopelessly behind. But, I've run out of ooomph for now and will see you tomorrow.
Quix
You are really scaring me! I'm sending all my love and prayers your way.
Please, please, please call the DR and take care of yourself!
BIG ENORMOUS ((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))
Please, please, please call the DR and take care of yourself!
BIG ENORMOUS ((((((((((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))
This is very bad! Have you called your Dr. We don't want this for you.
Don't want this for anyone!!
Get well soon.
Praying for you. Hang in there.
Sally
Don't want this for anyone!!
Get well soon.
Praying for you. Hang in there.
Sally
I'm so sorry you are having such a rough go. Please, please get some rest. I hope this morning is a lot better for you.
Prayers and hugs
Moki
Prayers and hugs
Moki
I will go to Church tomorrow (Tuesday) at Noon EST and pray for you for a recovery back to our normal Quix,
We miss you.
Elaine (and Craig)
We miss you.
Elaine (and Craig)
Oh sh*t gal
You need to lie down and rest. You have someone there with you right? Wish I could be there for you. :( Is there anything we can do?
many many hugs
Jazzy
You need to lie down and rest. You have someone there with you right? Wish I could be there for you. :( Is there anything we can do?
many many hugs
Jazzy
suddenly I am very weak on the right side. I can barely hold my arm up to the kjkkepboard, walking gets me out ofg breath and I cnan only take liitle steps and drag the right leg, I cana't even knit tonight. maybe tomorrrow will bwe bvettr. (this is what uneditied stuff looks look, so your not alone) q
Q - Hope the meds work and have you back to yourself soon. Here's to better days ahead! Best wishes, Niki
HEY - Fell Well Soon!!!!!!!!!!!!!!!!!!!!!!!!
We are so disobedient! You know how little chicks get when they are told what not to do. . ha/ha. . .Hmmmm, wish I had a punchline for that one. Maybe someone can help me out and get creative and think one up, by the time you read this thread. . .
Be well Doc-Q,
SL
We are so disobedient! You know how little chicks get when they are told what not to do. . ha/ha. . .Hmmmm, wish I had a punchline for that one. Maybe someone can help me out and get creative and think one up, by the time you read this thread. . .
Be well Doc-Q,
SL
Sweet Wise One,
Wish we could take your pain away. Hope this drug works and things settle down.
Praying and sending you healing energy. Rest and be calm. Things will happen as they should.
Sally
Wish we could take your pain away. Hope this drug works and things settle down.
Praying and sending you healing energy. Rest and be calm. Things will happen as they should.
Sally
WISHING I COULD TAKE YOUR PAIN AWAY.HOPE THE NEW MED WORKS AND GIVES YOU SOME RELEIF.
WITH ALL YOUR PAIN YA STILL HAVE A SENSE OF HUMOR.
AND JUST THINK ALL THE SCIENTIST SAID THE DO-DO'S DIDN'T EXIST ANYMORE,THEY JUST TRANSFORMED INTO NEURO'S.
T
WITH ALL YOUR PAIN YA STILL HAVE A SENSE OF HUMOR.
AND JUST THINK ALL THE SCIENTIST SAID THE DO-DO'S DIDN'T EXIST ANYMORE,THEY JUST TRANSFORMED INTO NEURO'S.
T
Notice how well we listen to you? haha But as Carol said when you are in pain, we will reply. I do hope the meds will help you soon to find some relief. I'm sending prayers your way as well.
HUGS
Moki
HUGS
Moki
You know we are going to reply when you tell us your in pain. hahaheehee I'm so sorry that you are in pain and I'll say a special prayer to make it go away. Okay?
Hang in there sweetie, I'm sure that everyone understand when you can't post.
I'll be praying,
Carol
Hang in there sweetie, I'm sure that everyone understand when you can't post.
I'll be praying,
Carol
Quix,
We are all praying the pain away. Someone up there has got to hear us!!!!
Elaine
We are all praying the pain away. Someone up there has got to hear us!!!!
Elaine
Aww, sorry, hate pain. Hopefully it will become manageable for you soon. And, I'll respond if i feel like it, so there, too! lol ;-)
Erica
Erica
Quix,
Sending you best wishes and healing white light , full of sweet energy , from the Sunshine State. Be well , Oh Wise One .
Jo
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