This post is a duplicate which I am repeating on the advice of Rendean.
I am a 35 (36 next Tuesday) year old woman.
Summer 2006, I started getting severe pain in my left temple. It truely felt like a knife was slowing being inserted. This was not a stabbing pain, but constant and severe. It lasted for 2 months, sometimes it was not as bad as other times, but it was constant. I was told by my primary md that he thought I had trigeminal neuralgia. It was much worse in the heat and bright light. Pain radiated down my face. I couldn't stand any "extra" noise. Like if one person would talk to me and the tv was on, I could only hear one thing. I was put on Topomax and had miraculous results. I did have some side effects from the Topomax, but they weren't bad. And I lost 80 lbs!!!
About a year after that, summer of 2007, the Topomax stopped working. I thought I was going to die. MRI showed no signs of trigeminal neuralgia so I was told that "it must be atypical migraines" hmmm. I was placed on Propanolol. I have only had about 2 "migraines" since being on the propanolol. No side effects.
Then in March of 2008, my mother in law moved in with us due to complications from a surgery. I ended up being her health care giver. It was EXTREMELY stressful and we ended up in marriage counseling over it.... BUT during that time, EXACTLY one year today, I had what felt like a spot of heat in my left thigh. It felt like getting burned from the inside. I was like... hhhmmm weird. But when it didn't get better, I went to the doc because I thought maybe a blood clot. Also, when the headaches started, I have since had a continual buzzing in my left ear. He said he thought it was ms, and sent me to a neuro. He took FOUR MONTHS to get into, then ordered a new mri. He said that there is no sign of ms, must just be hormones. The mother in law is moved out, the stress is gone...still the problems are there.
I have had continuing worsening of symptoms over the past year. There is not an hour that goes by without something. NOW my symptoms are decreased feeling in face. Extreme periods of pain in neck, but only on one side at a time. Shock like sensations up and down my spine, but mostly in the middle of my back, and now the shock like sensations burn as well. Random pain and tingling in legs and arms. A sensation that feels like an arm band around my upper arms. Muscle twitches, weird feelings of vibrations in my legs. Sharp stabbing pains in the bottoms of my feet. Muscles around the eye, left eye only twitching. Lips tingling. Throat having a sensation of closing. Foggy brain, hard to communicate all the time. I can talk, I just have a hard time formulating the words. But NO HEADACHE. Yeah for me, the migraines are through. LOL. So the neuro orders a brain test with some scan. Negative. Mri. Nothing. Blood work. SOMETHING. Yeah for me! NOT CRAZY!! It is a "PROFOUND" b12 deficiency. This can mimic ms apparently, so I start taking injections. Once a DAY of a week, then once a week for 6, and now I am on once every 4.(It's been about 7 months of b12) Blood work shows that levels are now normal, but all the above symptoms are WORSE. Now I get pain in my left thigh that feels very deep, like in the bone. I have pain in my back and sometimes pain in my arms. The hot spots are throughout my whole body, so is the twitching. Everything is getting worse. Also, I have poor heat sensitivity. I got hot the other day and my skin flushed. I felt like I was on fire. It hurt so bad through my whole body and I had to get cold. I took a cold shower and then layed down and was back to "normal" about an hour after. Called neuro, he said hormones...early menopause, but ordered a new blood work up and a spinal tap.
The spinal tap showed "slighty elevated protien levels", but was probably caused by stress, so says neuro. Now he has a SUPER FUNNY joke about "drilling holes in me and letting out the evil spirits".
Then my left eye started to HURT. Nothing relieved it. Called neuro, he referred me to an optomologist who said I had nerve inflamation in that eye only. Good news though, I have 20/20 vision. He said he thought it was allergies, which I dont have, and prescribed prednisone drops. The drops kind of worked, but not really. After I stopped them, the pain came back. He looked again and said that he just didn't know, but here are some allergy drops. I never used them, but suddenly, my eye stopped hurting. It hasn't hurt since (about 2 weeks).
NOW neuro has referred me to University of Utah medical center to an ms specialist.. What???? I thought there was no sign of ms???? Appointment is in JUNE. I am freaked out. Does this sound like ms to you? I am not wanting to "borrow trouble" but seriously, if not ms, then WHAT????
Thanks for any advice or help you can give me.