Hey you, it was so nice to see your face pop back up, welcome back! :D
oops owwwwwwwweeee sorry i'm slightly distracted lol i just fell over and landed on my hands and knees at my husbands feet and despite my protests, he's still insisting i'm not worshiping him often enough lol i'll have to get back to you later.......
Sorry about the symptoms. I take two Zanaflex several times a day for spasms. I hope you are enjoying the grand kids.
I absolutely remember you! Congratulations on the impending birth of a granddaughter. But boo-hiss to your current symptoms. I've little knowledge of Ohio laws or your personal stance, but I know that many people find medical marijauna of assistance in this specific MS arena. So throwing that out there.
JJ, hope you've gotten back up and are still in one piece! Your husband may be fantastic, but I think you took it a little too far! ;p
I remember you, too. I was more of a lurker than a poster in 2012 but I do remember you.
I haven't progressed much since 2012, the exception to that is that I've developed spasms in my quadriceps and hip extensors. Fortunately, I work in a Physical Therapy Clinic and the PT has been helpful in trying to find some relief for my spasms. I agree that being heavily medicated for these spasms is no way to live, and I have to be operating at MY 100% to be able to do my job. Meds and stretching can give me up to about 40% - 50% relief but she has experimented with dry needling and I can get 90% or more relief from one dry needling treatment and continue to benefit for about a week. That is by no means long term but a week without that kind of pain feels like quite a gift. I don't know if your insurance will pay for it, because there is some information out there saying that it isn't effective for people who's pain comes from a CNS disorder, but anecdotal or not it helps me a lot and makes necessary travel, etc. a whole lot more comfortable for me.
Thanks ladies, I am taking zanaflex the thing is I work in a pediatric office so can't get too drugged up as to not make mistakes. I am scheduling and triage because I can not walk like I use to.
I am sitting in my neuros office as I type this, hoping he can help me somehow.
I am going to discuss Plegridy twice monthly injections to see if he thinks it is a good option for me.
It's starting to really interfere with my work and that needs to be addressed. I'll be back later to update.
I was going to recommend physio and possibly changing your medication to see if something different gives you better relief.
Please let us know what your neuro is going to recommend for you!
Well Neuro didn't say or do much. We talked about what has been going on, he did recommend increasing my zanaflex but I can't function at work if I increase it. He told me stretching may help.
Have you heard of Plegridy? I am considering it but the blood work prior to starting is scary. Ever heard of the JC VIRUS? I haven't but have to be tested for antibodies. Just a lot of information that has me second guessing.
I'm at a loss right now. Not sure what to do. I will get through this like I do everything else but it stinks!!!! With a capital S T I N K S!
Technically stretching should help somewhat, but it's a little disappointing that your neuro didn't arrange a referral, for you to see a physio or occupational therapist to get your spasticity assessed and a tailored program worked out for you. Have you considered botox? Below are informational articles and how to pdf booklets on spasticity, that you might find of some help......