Aa
I'm going naked....
I swear, the next time someone walks up to me and asks me how I manage to stay so thin, and they want to look like me, I am going to take off every stitch of my clothing and show them how awful it looks to weigh 84#s at 5'2.
This las time, really surprised me. I'm leaving my doctors office, can barely manage to walk, and this lady coming out of the office behind me says that to me. I looked her full in the face, and said, "No, you don't, it's the spine disease."
What is wrong with our society that people want to look this way?!
Sheila
This las time, really surprised me. I'm leaving my doctors office, can barely manage to walk, and this lady coming out of the office behind me says that to me. I looked her full in the face, and said, "No, you don't, it's the spine disease."
What is wrong with our society that people want to look this way?!
Sheila
Hi, Janet.
I'm glad I could make you feel at least a little bit better. I know you made me feel better. As for the weight, you know you need to lose it to be healthier, so you don't need any pressure from anyone else. I feel, when people put pressure on us to eat, or not eat, it just makes it worse.
Prednizone is noted for weight gain. I had the 3 day 500 mgl Solu-medrol Infusion last fall, ad then 30 days on Pred, but because of the Ankylosing Spondylitis, it didn't help me gain, it just made me MEAN. I'm not kidding, the 1st day without the Solu-medrol Infusion, I could have bitten somebody. Sadly, it didn't reduce the inflammation in the nerves in my spine.
I did not know that people with Fibro could get brain lesions. Thank you fro telling me. I have a close friend, in Wales, that has Fibro and oh, I know how she suffers with it, so I really feel for you.
Doctors can be so ignorant sometimes, telling you to take a walk around the block when you are in so much pain.
I'm so glad your Neuro reassured you that no amount of walking would help you.
Before this hit me, I was just like you, so active. I never saw it coming.
I cannot begin to tell you how sorry I am that you lost your husband. Life goes on, but never the same again. (I know that is my husbands biggest fear as he sees me wasting away. I'm not going down without a fight!)
We just have to take life a day at a time, and like you said, pray, and pray, and then...pray some more.
I like your idea of carrying around some signs, so what if it wouldn't be nice! LOL
Janet, we have to hold onto hope, that better days, will, indeed come.
Hugs,
Sheila
I'm glad I could make you feel at least a little bit better. I know you made me feel better. As for the weight, you know you need to lose it to be healthier, so you don't need any pressure from anyone else. I feel, when people put pressure on us to eat, or not eat, it just makes it worse.
Prednizone is noted for weight gain. I had the 3 day 500 mgl Solu-medrol Infusion last fall, ad then 30 days on Pred, but because of the Ankylosing Spondylitis, it didn't help me gain, it just made me MEAN. I'm not kidding, the 1st day without the Solu-medrol Infusion, I could have bitten somebody. Sadly, it didn't reduce the inflammation in the nerves in my spine.
I did not know that people with Fibro could get brain lesions. Thank you fro telling me. I have a close friend, in Wales, that has Fibro and oh, I know how she suffers with it, so I really feel for you.
Doctors can be so ignorant sometimes, telling you to take a walk around the block when you are in so much pain.
I'm so glad your Neuro reassured you that no amount of walking would help you.
Before this hit me, I was just like you, so active. I never saw it coming.
I cannot begin to tell you how sorry I am that you lost your husband. Life goes on, but never the same again. (I know that is my husbands biggest fear as he sees me wasting away. I'm not going down without a fight!)
We just have to take life a day at a time, and like you said, pray, and pray, and then...pray some more.
I like your idea of carrying around some signs, so what if it wouldn't be nice! LOL
Janet, we have to hold onto hope, that better days, will, indeed come.
Hugs,
Sheila
1 Comments
From a man, you are absolutely right. I think the bottom line is people in general are trying to raise themselves up, but do we have to step on one another. What would happen if we were so busy helping one another get to the top we loose the track of time. I'll tell you what. We would all be there in no time at all. And we would enjoy the journey. Being happy in a crowd of happy people. Can you imagine it.
Thanks so much for your kind words. I do need to get the weight off because it's hard for me to walk but it didn't help when the doctor put me on predisone and I gained 100 lbs in 4 months. Some times I'm afraid that is what I have is MS. But they never really tested me for it, oh except for an MRI and showed I had lesions on the brain but they don't stay, they come and go and I guess that's what happens with fibromyalgia.
But I do try to ignore people's remarks but I'm like you, would just love to say something LOL.... I love it to when they say, even doctors, say "You need to get out and walk around the block" Well when I got this way I was doing vending in 2 factories and sometimes a 3rd and believe me, you can walk blocks in a factory, besides putting up some times 800 cans of pop a day in the machines and the other ones too. I rode my bike a lot and some times especially in the summer I'd walk to the one factory and back home again which was 7 blocks one way. I said if walking is suppose to help then how come after all of what I did do help me at all.
Finally when I talked to my nuerologist about what the other doctors and family said, he said no amout of walking would help my condition. I lost my husband at 55 in 2005 and it's not been easy but I manage day to day. Guess thats all we can do and pray pray pray.
I guess we could carry around these little signs or cards and say "here's your stupid sign" and give them one. but no that wouldn't be nice LOLOLOL....
you get to feeling better and take care of yourself hon, better days will come.
Big HUG,
Janet (trixierose)
But I do try to ignore people's remarks but I'm like you, would just love to say something LOL.... I love it to when they say, even doctors, say "You need to get out and walk around the block" Well when I got this way I was doing vending in 2 factories and sometimes a 3rd and believe me, you can walk blocks in a factory, besides putting up some times 800 cans of pop a day in the machines and the other ones too. I rode my bike a lot and some times especially in the summer I'd walk to the one factory and back home again which was 7 blocks one way. I said if walking is suppose to help then how come after all of what I did do help me at all.
Finally when I talked to my nuerologist about what the other doctors and family said, he said no amout of walking would help my condition. I lost my husband at 55 in 2005 and it's not been easy but I manage day to day. Guess thats all we can do and pray pray pray.
I guess we could carry around these little signs or cards and say "here's your stupid sign" and give them one. but no that wouldn't be nice LOLOLOL....
you get to feeling better and take care of yourself hon, better days will come.
Big HUG,
Janet (trixierose)
Hi, Trixierose.
You've explained it so well. People see what we look like, and they don't, for the most part, stop to think, there may be a medical reason why this person looks that way.
I guess I started the thread because it just stuck me as so odd, that the woman coming out of the doctors office didn't have the sense to think, "Gee, the lady can barely walk, she's coming out of the doctors office, must be very sick".
I'm glad I started the thread though, because our family here, under- weight, and over-weight, is finding some understanding, and hopefully, it is helping them feel a bit better.
And I guess, I also feel, why do people think it's their business if someone is over-weight or under-weight? I was raised to respect people.
Trixierose, it's none of people's business if you eat too much and are over-weight. I say, when someone starts paying our bills, then they can dictate our lives.
And no one can measure their pain against yours, because they don't live inside your body, they cannot feel what you feel.
I wish you better health and ignore insensitive people! We love you here and understand you!
Hugs,
Sheila
You've explained it so well. People see what we look like, and they don't, for the most part, stop to think, there may be a medical reason why this person looks that way.
I guess I started the thread because it just stuck me as so odd, that the woman coming out of the doctors office didn't have the sense to think, "Gee, the lady can barely walk, she's coming out of the doctors office, must be very sick".
I'm glad I started the thread though, because our family here, under- weight, and over-weight, is finding some understanding, and hopefully, it is helping them feel a bit better.
And I guess, I also feel, why do people think it's their business if someone is over-weight or under-weight? I was raised to respect people.
Trixierose, it's none of people's business if you eat too much and are over-weight. I say, when someone starts paying our bills, then they can dictate our lives.
And no one can measure their pain against yours, because they don't live inside your body, they cannot feel what you feel.
I wish you better health and ignore insensitive people! We love you here and understand you!
Hugs,
Sheila
Hi, Angela.
Oh, it sounds like I am your long lost twin!!!! You know, I think, if people actually did see us naked, they may not be so quick to think it's so attractive. Or if they had to find a way to sit that didn't hurt cause there's no fat padding on their bones, they may be grateful not to be like us.
How 'bout the people that say, "Oh, I'll bet you can eat anything!!!!" They should see me trying to force down a piece of toast in the morning, in order to take my meds.
And on the other side, I have a very close very that is over-weight, and I know, for a fact, that she does NOT over-eat. (And by the way, when she gets dressed up, she is so elegant, that I envy her!) She's healthy and I tell her to thank God for that, and believe me, she doesn't envy me. I believe in many instances, there is some gene they are going to discover that causes people like her to be over-weight.
Hugs,
Sheila
Oh, it sounds like I am your long lost twin!!!! You know, I think, if people actually did see us naked, they may not be so quick to think it's so attractive. Or if they had to find a way to sit that didn't hurt cause there's no fat padding on their bones, they may be grateful not to be like us.
How 'bout the people that say, "Oh, I'll bet you can eat anything!!!!" They should see me trying to force down a piece of toast in the morning, in order to take my meds.
And on the other side, I have a very close very that is over-weight, and I know, for a fact, that she does NOT over-eat. (And by the way, when she gets dressed up, she is so elegant, that I envy her!) She's healthy and I tell her to thank God for that, and believe me, she doesn't envy me. I believe in many instances, there is some gene they are going to discover that causes people like her to be over-weight.
Hugs,
Sheila
I hope this finds everyone doing better, and you are in my prayers too.
Doesn't seem to matter if you are skinny or over weight they see that before they see your other qualities and struggles.
I think people don't understand what we all go through including mostly family, my friends understand me more than anyone I think. I'm extremely overweight and yes some times I eat wrong or too much and some times I go all day with out eating which isn't good either.
I have fibromyalgia and degenerative disc disease, OA and beginning to think it's also RA, I don't know what it is like not to be in pain, trying to find a way to sleep at night that I'm not putting pressure on anywhere.
Like today my niece came and got me to go to the store with her so I could pick some stuff up. We were gone 3 hrs, I came home and slept for 5 hrs at least. It just zapped my energy level something awful.
One of my nieces has M. Gravis. my sister told me (who never seemed to believe I was in as much pain as I was) told me to take my worse day and times it 3 times and that is how much pain and all her daughter was in. that really upset me because she shouldn't judge my pain against what her daughter is going through and if it was 3 x mine then she would be in the hospital not functioning.
The one person who suprised me with understanding what I was going through was my mother in law, besides my husband of course.
I wish you all better health, sure isn't any fun living this way but we all learn to cope some how with it, but some days are able to handle it better than others.
take care,
God bless,
Trixierose
Doesn't seem to matter if you are skinny or over weight they see that before they see your other qualities and struggles.
I think people don't understand what we all go through including mostly family, my friends understand me more than anyone I think. I'm extremely overweight and yes some times I eat wrong or too much and some times I go all day with out eating which isn't good either.
I have fibromyalgia and degenerative disc disease, OA and beginning to think it's also RA, I don't know what it is like not to be in pain, trying to find a way to sleep at night that I'm not putting pressure on anywhere.
Like today my niece came and got me to go to the store with her so I could pick some stuff up. We were gone 3 hrs, I came home and slept for 5 hrs at least. It just zapped my energy level something awful.
One of my nieces has M. Gravis. my sister told me (who never seemed to believe I was in as much pain as I was) told me to take my worse day and times it 3 times and that is how much pain and all her daughter was in. that really upset me because she shouldn't judge my pain against what her daughter is going through and if it was 3 x mine then she would be in the hospital not functioning.
The one person who suprised me with understanding what I was going through was my mother in law, besides my husband of course.
I wish you all better health, sure isn't any fun living this way but we all learn to cope some how with it, but some days are able to handle it better than others.
take care,
God bless,
Trixierose
1 Comments
One thing my father said to me was "it beats the alternative" but I'm not so sure. Except I know you're no good to anyone if you are dead. If you can do anything good for someone else, life is worth living. I've lived with pain so long I think it keeps me in check. Sometimes it's all I have and I know it won't leave me.
Are you my long lost twin? :-) I feel ya, sista...I'm in the same boat. I'm 5' and 84# soaking wet. It's so frustrating because, just like those who try to lose weight, I can't gain it! And I know what you mean. I feel sad that people come up to me and say "Must be nice to be so skinny." It's not actually, because it draws comments like that. Like you said, how offensive would it be to say to someone "Wow, you're overweight." I would never think to say that to someone. Yet people, for some reason, feel it's okay to pick on the skinny people. :-) Anyway, just wanted to let you know I know EXACTLY what ya go through. Angela
Hi, Moki.
I agree, it is a very sad world that dictates how we look. and I worry so much about young girls today, trying to emulate the stick thin models.
Celiac disease is a terrible auto-immune disease, it wreaks terrible havoc on the body, Osteoporosis, just to name one. I am so glad that your Mom was dx'd and has been able get back to a healthy weight. God Bless her for following the gluten-free diet. It's very limited, and almost impossible to eat out, safely.
You are making total sense.
Moki, thank you so much for keeping me in your prayers. I am so glad to be back here. I have a hard time lifting my arms, but my darling husband recently bought me a lap top computer with a raised key board, and I can sit up for periods of time, and type.
The biggest problem I have is often I make an error and when I go to correct it, my post disappears and I have to start all over again. I wish I knew just why that happens. I don't always have good control of my hands.
Hugs,
Sheila
I agree, it is a very sad world that dictates how we look. and I worry so much about young girls today, trying to emulate the stick thin models.
Celiac disease is a terrible auto-immune disease, it wreaks terrible havoc on the body, Osteoporosis, just to name one. I am so glad that your Mom was dx'd and has been able get back to a healthy weight. God Bless her for following the gluten-free diet. It's very limited, and almost impossible to eat out, safely.
You are making total sense.
Moki, thank you so much for keeping me in your prayers. I am so glad to be back here. I have a hard time lifting my arms, but my darling husband recently bought me a lap top computer with a raised key board, and I can sit up for periods of time, and type.
The biggest problem I have is often I make an error and when I go to correct it, my post disappears and I have to start all over again. I wish I knew just why that happens. I don't always have good control of my hands.
Hugs,
Sheila
It's a sad world that society dictates how we are to look. I see so many young girls where I work always struggling to remain thin. Some are anorexic because all the magazines show these slim women are what they are to strive for.
Before my mom was diagnosed with Celiac Disease, she went down to 86 pounds and almost died. People always went up to her and said the same to her as you have had. How do you stay so thin? It hurt her bad because she did whatever she could to gain weight. When she finally got diagnosed, she changed her diet and thank goodness she is now a healthy weight again.
I think you are right in telling people why you are so thin. They need to understand that it is not a healthy thing and that in a lot of cases, there is a health reason as to the thinness.
Gosh I hope I'm making sense here. I'm so plugged up from this cold that my brain is plugged too.lol
I'm always praying for you and am so glad to see you back on here.
Hugs
Moki
Before my mom was diagnosed with Celiac Disease, she went down to 86 pounds and almost died. People always went up to her and said the same to her as you have had. How do you stay so thin? It hurt her bad because she did whatever she could to gain weight. When she finally got diagnosed, she changed her diet and thank goodness she is now a healthy weight again.
I think you are right in telling people why you are so thin. They need to understand that it is not a healthy thing and that in a lot of cases, there is a health reason as to the thinness.
Gosh I hope I'm making sense here. I'm so plugged up from this cold that my brain is plugged too.lol
I'm always praying for you and am so glad to see you back on here.
Hugs
Moki
Carol, you have me laughing so hard I can barely type! Watch out, I might just post a naked picture. LOL
I needed a good laugh, thank you.
Yes, my energy level is very low. And I do try so hard to eat, but these diseases just rob us of our appetite.
No, people aren't trying to be mean, they say it as a compliment, and they want to know how to get this thin, and I find that scary. When the lady coming out of the doctors office asked me, I told her the truth, it's from the spinal disease. She was very compassionate. I just don't want people thinking being this thin is good. I was very nice to her, when she asked me what spinal disease I had, I told her, ankylosing spondylitis, it fuses the spine together. I think that is what I am going to do from now on, answer with the truth. Maybe people will walk away thanking God they don't look like me.
You know I'm praying for you, too.
Sheila
I needed a good laugh, thank you.
Yes, my energy level is very low. And I do try so hard to eat, but these diseases just rob us of our appetite.
No, people aren't trying to be mean, they say it as a compliment, and they want to know how to get this thin, and I find that scary. When the lady coming out of the doctors office asked me, I told her the truth, it's from the spinal disease. She was very compassionate. I just don't want people thinking being this thin is good. I was very nice to her, when she asked me what spinal disease I had, I told her, ankylosing spondylitis, it fuses the spine together. I think that is what I am going to do from now on, answer with the truth. Maybe people will walk away thanking God they don't look like me.
You know I'm praying for you, too.
Sheila
By the way how do you stay so thin? hahahaheeheehee I want to see if you would really post a naked picture of yourself.
I had to do that and I know you have a sense of humor or else I wouldn't have said that. It truly must be awful for you. I can just imagine that you had next to nil on the energy scale. Diseases can do some very horrible things to us.
I don't think people are trying to be mean it's just that most people don't understand. That's why we can say anything we want here because we know that someone will understand it. My advice would be to ignore them or else give them that beautiful smile of yours and say something like it's from all of the ________ I'm having? Put whatever you want in the blank. haha Who knows saying something like that may make people quit asking such dumb questions.
I'll be praying,
Carol
I had to do that and I know you have a sense of humor or else I wouldn't have said that. It truly must be awful for you. I can just imagine that you had next to nil on the energy scale. Diseases can do some very horrible things to us.
I don't think people are trying to be mean it's just that most people don't understand. That's why we can say anything we want here because we know that someone will understand it. My advice would be to ignore them or else give them that beautiful smile of yours and say something like it's from all of the ________ I'm having? Put whatever you want in the blank. haha Who knows saying something like that may make people quit asking such dumb questions.
I'll be praying,
Carol
Hi, Maggie.
Sweetheart, don't you ever let anyone make you feel bad about a few extra pounds, or I'll find the strength to come and whip them good, skinny body and all!!!!
My Dad had diabetes, and he struggled with his weight, so believe me, I understand. and a very dear friend has fibro, and it is so incredibly painful, so she struggles with her weight, as well.
You just focus on eating healthy, and tell people to get over it!
Oh, I'd gladly take at least 10#s from you, if you promise to line my spine and SI joint with it. :) The spine disease has eaten away all the fat and muscle. You're right, we'd both be much healthier.
Our society has it's idea of beauty very skewed.
God bless You, too.
Hugs,
Sheila
Sweetheart, don't you ever let anyone make you feel bad about a few extra pounds, or I'll find the strength to come and whip them good, skinny body and all!!!!
My Dad had diabetes, and he struggled with his weight, so believe me, I understand. and a very dear friend has fibro, and it is so incredibly painful, so she struggles with her weight, as well.
You just focus on eating healthy, and tell people to get over it!
Oh, I'd gladly take at least 10#s from you, if you promise to line my spine and SI joint with it. :) The spine disease has eaten away all the fat and muscle. You're right, we'd both be much healthier.
Our society has it's idea of beauty very skewed.
God bless You, too.
Hugs,
Sheila
Hi, Ada.
Well, I just feel bad for people asking me and wanting to be so thin. But you know, it's not considered polite to ask someone that is over weight how much they weigh (not that I would even think of doing that) but how come some people think it is ok to ask a thin person what they weigh?
I mean, here in the safety of our family, I don't mind if someone asks if I've gained any weight yet, because they know I'm sick, and not trying to be thin.
Hugs,
Sheila
Well, I just feel bad for people asking me and wanting to be so thin. But you know, it's not considered polite to ask someone that is over weight how much they weigh (not that I would even think of doing that) but how come some people think it is ok to ask a thin person what they weigh?
I mean, here in the safety of our family, I don't mind if someone asks if I've gained any weight yet, because they know I'm sick, and not trying to be thin.
Hugs,
Sheila
I guess, I feel bad for them, because they don't realize that it's not healthy to be this thin.
Sheila
Sheila
People just have no idea. I am among the one's who fight all the time to lose weight, due to my diabetes, DDD, and fibro. Dr's keep telling me to lose weight. I just can't no matter how much I REALLY try. Americans as a society are so focused on self-image and thin-ness is promoted so much, they don't realise the dangers of being too skinny also. Sure wish I could give you about 25#, then we would both be much healthier. God Bless, Maggie
Sweetie, I hear your frustration. I'm sorry they are doing that to ya. It is very insensitive of them to ask you that. There is something wrong with the society, they all want to be rail thin to look like all the models.
Love,
Ada
Love,
Ada
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