Aa
Invisible Illness Week - 30 Things
Did you know that there is an Invisible Illness Week (IIW) in September? I didn't and was pleased that Wonko (formerly from here) of the Lyme forum brought it to my attention. You can learn more at invisibleillnessweek.com.
One of the blogs for has a fun little activity that I thought you might enjoy doing here - so here's the idea. It is based on that email message everyone gets that you copy and provide the answers and then share it with everyone else about yourself and your likes or dislikes.
Take this list of 30 things, copy it and past it into a new reply and let us know a bit more about you and how you live with your Invisible Illness...........
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is:
2. I was diagnosed with it in the year:
3. But I had symptoms since:
4. The biggest adjustment I’ve had to make is:
5. Most people assume:
6. The hardest part about mornings are:
7. My favorite medical TV show is:
8. A gadget I couldn’t live without is:
9. The hardest part about nights are:
10. Each day I take __ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I:
12. If I had to choose between an invisible illness or visible I would choose:
13. Regarding working and career:
14. People would be surprised to know:
15. The hardest thing to accept about my new reality has been:
16. Something I never thought I could do with my illness that I did was:
17. The commercials about my illness:
18. Something I really miss doing since I was diagnosed is:
19. It was really hard to have to give up:
20. A new hobby I have taken up since my diagnosis is:
21. If I could have one day of feeling normal again I would:
22. My illness has taught me:
23. Want to know a secret? One thing people say that gets under my skin is:
24. But I love it when people:
25. My favorite motto, scripture, quote that gets me through tough times is:
26. When someone is diagnosed I’d like to tell them:
27. Something that has surprised me about living with an illness is:
28. The nicest thing someone did for me when I wasn’t feeling well was:
29. I’m involved with Invisible Illness Week because:
30. The fact that you read this list makes me feel:
One of the blogs for has a fun little activity that I thought you might enjoy doing here - so here's the idea. It is based on that email message everyone gets that you copy and provide the answers and then share it with everyone else about yourself and your likes or dislikes.
Take this list of 30 things, copy it and past it into a new reply and let us know a bit more about you and how you live with your Invisible Illness...........
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is:
2. I was diagnosed with it in the year:
3. But I had symptoms since:
4. The biggest adjustment I’ve had to make is:
5. Most people assume:
6. The hardest part about mornings are:
7. My favorite medical TV show is:
8. A gadget I couldn’t live without is:
9. The hardest part about nights are:
10. Each day I take __ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I:
12. If I had to choose between an invisible illness or visible I would choose:
13. Regarding working and career:
14. People would be surprised to know:
15. The hardest thing to accept about my new reality has been:
16. Something I never thought I could do with my illness that I did was:
17. The commercials about my illness:
18. Something I really miss doing since I was diagnosed is:
19. It was really hard to have to give up:
20. A new hobby I have taken up since my diagnosis is:
21. If I could have one day of feeling normal again I would:
22. My illness has taught me:
23. Want to know a secret? One thing people say that gets under my skin is:
24. But I love it when people:
25. My favorite motto, scripture, quote that gets me through tough times is:
26. When someone is diagnosed I’d like to tell them:
27. Something that has surprised me about living with an illness is:
28. The nicest thing someone did for me when I wasn’t feeling well was:
29. I’m involved with Invisible Illness Week because:
30. The fact that you read this list makes me feel:
I have now gone back and read everyones answers. we are so different but so much alike.
I would ask that anyone else who posts.... space between the questions...my eyes aren't what they used to be :)
terry
I would ask that anyone else who posts.... space between the questions...my eyes aren't what they used to be :)
terry
I am going to do this before I read everyone's post. That way I won't over think my answers.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is:Celiac Disease, Carotid Artery Disease, Generalized Anxiety and some unknown creature that disrupts my life aka demylenating disease
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: since my 20's
4. The biggest adjustment I’ve had to make is: the decline in my cognitive abilities
5. Most people assume: that because I look well I am well, I am sure many of us face this type of discrimination
6. The hardest part about mornings are: the pain that occurs while I am trying to get my body walking
7. My favorite medical TV show is: I don't really watch medical tv shows but i do wish House practiced locally
8. A gadget I couldn’t live without is: my computer (Is a computer a gadget?) If not then my Blackberry
9. The hardest part about nights are: the pain the pain the pain which contributes to little or no sleep
10. Each day I take 11 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: I don't practice any but would love to be able to afford massage therapy
12. If I had to choose between an invisible illness or visible I would choose: I would stay the way I am
13. Regarding working and career: Nada
14. People would be surprised to know: I have ridden across country twice on a motorcycle.
15. The hardest thing to accept about my new reality has been: the cognitive decline
16. Something I never thought I could do with my illness that I did was: continue to care for my animals. More days than not it isn't easy
17. The commercials about my illness: what commercials?
18. Something I really miss doing since I was diagnosed is: gardening both vegetable and flowers. Also making sauces/jellies etc from my garden vegetables to freeze
19. It was really hard to have to give up: being able to stay outside all day on a summer day
20. A new hobby I have taken up since my diagnosis is: going to the doctors (Yes I am being facetious)
21. If I could have one day of feeling normal again I would: Work in my yard
22. My illness has taught me: to worry less and accept more
23. Want to know a secret? One thing people say that gets under my skin is: Don't worry I do that too.
24. But I love it when people: I love your attitude
25. My favorite motto, scripture, quote that gets me through tough times is: Be strong and of good courage, fear not, nor be afraid...for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee, The Bible
26. When someone is diagnosed I’d like to tell them: Life doesn't end here. Life is what we make of what we have. But everyone will need to cry, vent, or rage at one time or another and that is okay.
27. Something that has surprised me about living with an illness is: That I worry less than I did before I became ill.
28. The nicest thing someone did for me when I wasn’t feeling well was: all of those wonderful words of support I receive from my friends here on MH
29. I’m involved with Invisible Illness Week because:
30. The fact that you read this list makes me feel: not alone
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is:Celiac Disease, Carotid Artery Disease, Generalized Anxiety and some unknown creature that disrupts my life aka demylenating disease
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: since my 20's
4. The biggest adjustment I’ve had to make is: the decline in my cognitive abilities
5. Most people assume: that because I look well I am well, I am sure many of us face this type of discrimination
6. The hardest part about mornings are: the pain that occurs while I am trying to get my body walking
7. My favorite medical TV show is: I don't really watch medical tv shows but i do wish House practiced locally
8. A gadget I couldn’t live without is: my computer (Is a computer a gadget?) If not then my Blackberry
9. The hardest part about nights are: the pain the pain the pain which contributes to little or no sleep
10. Each day I take 11 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: I don't practice any but would love to be able to afford massage therapy
12. If I had to choose between an invisible illness or visible I would choose: I would stay the way I am
13. Regarding working and career: Nada
14. People would be surprised to know: I have ridden across country twice on a motorcycle.
15. The hardest thing to accept about my new reality has been: the cognitive decline
16. Something I never thought I could do with my illness that I did was: continue to care for my animals. More days than not it isn't easy
17. The commercials about my illness: what commercials?
18. Something I really miss doing since I was diagnosed is: gardening both vegetable and flowers. Also making sauces/jellies etc from my garden vegetables to freeze
19. It was really hard to have to give up: being able to stay outside all day on a summer day
20. A new hobby I have taken up since my diagnosis is: going to the doctors (Yes I am being facetious)
21. If I could have one day of feeling normal again I would: Work in my yard
22. My illness has taught me: to worry less and accept more
23. Want to know a secret? One thing people say that gets under my skin is: Don't worry I do that too.
24. But I love it when people: I love your attitude
25. My favorite motto, scripture, quote that gets me through tough times is: Be strong and of good courage, fear not, nor be afraid...for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee, The Bible
26. When someone is diagnosed I’d like to tell them: Life doesn't end here. Life is what we make of what we have. But everyone will need to cry, vent, or rage at one time or another and that is okay.
27. Something that has surprised me about living with an illness is: That I worry less than I did before I became ill.
28. The nicest thing someone did for me when I wasn’t feeling well was: all of those wonderful words of support I receive from my friends here on MH
29. I’m involved with Invisible Illness Week because:
30. The fact that you read this list makes me feel: not alone
thank you all for doing this exercise - I really do feel better reading your responses and seeing how similar we are all reacting to the MiSerable disease. I have read each and every response here.
I hope others will join in be well, Lulu
I hope others will join in be well, Lulu
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: ?2007? but those were easier to ignore...
4. The biggest adjustment I’ve had to make is: giving up on my urge to get married outdoors in the middle of summer, or to ever enjoy lying out in the sun on a hot and humid day again
5. Most people assume: I have a "normal" life because they can't visually see anything wrong with me. Or they assume that I won't be capable of much of anything impressive, because they are ignorant about MS.
6. The hardest part about mornings are: That I often have to take sleeping aids to help me sleep well through the night, and sometimes I'm still very groggy and just don't want to get out of bed!
7. My favorite medical TV show is: Dr. House
8. A gadget I couldn’t live without is: I used to not be able to live life without a pencil, because I loved to draw. Or without a pen, because I loved to write. These days I couldn't live without my planner, so I can remember what I'm doing when!
9. The hardest part about nights are: Going to bed and hoping I will sleep well though the night, and actually get satisfying sleep. The nights when I feel like my skin is buring are the worst.
10. Each day I take _only a few_ pills & vitamins.
11. Regarding alternative treatments I: highly recommend doing extensive research on the treatment and all it's side effects before purchasing or trying any.
12. If I had to choose between an invisible illness or visible I would choose: This is a tough question..... an invisible illness is good in that you can't be the victim of others' prejudices as readily. However, the invisible illnesses are bad, in that you are a victim of their ignorance more often. I would likely choose an invisible illness, but perhaps a different one?
13. Regarding working and career: I have learned that there are some things which are to my best interest in helping me to be a strong and capable worker, which may not be liked by others who do not have this diagnosis and who do not understand, and do not necessarily care to understand. I have learned that although there are many protections out there for us, I am still fearful, because the law is open to interpretation. I have learned that I can't predict the future, I can't control everything, but I can do my best to educate myself, to advocate for myself, and to accept what I cannot change, while being willing to plan for that which I can change.
14. People would be surprised to know: I may not be overconfident, but I refuse to underestimate myself. There's a difference.
15. The hardest thing to accept about my new reality has been: The ignorance of others.
16. Something I never thought I could do with my illness that I did was: I suprise myself - and congratulate myself - regularly. I think it is good for one's self-image and self-respect to remind oneself of all the things you can do, rather than to focus on things you think you can't.
17. The commercials about my illness: commercials?? I have never once seen a single commercial about MS. I have never once seen a charachter in a television show with the diagnosis either. I would like to, although it could be dangerous territory as well, because sometimes people tend to see one charachter and ascribe that character's ficticious strengths and weaknesses to an entire population.
18. Something I really miss doing since I was diagnosed is: lying outside in the sunshine on a hot day.
19. It was really hard to have to give up: caffiene, although when I learned the difference in how I felt, I developed an entirely new appreciation for water.
20. A new hobby I have taken up since my diagnosis is: well, none, yet, although I would one day like to learn to quilt. I think it would be fabulous to combine my artistic ability with an ability to quilt, and to design some custom, handmade quilts for needy children.
21. If I could have one day of feeling normal again I would: go to the beach!
22. My illness has taught me: that remaining hydrated is important. That time to oneself is important, but so is staying open to others (to varying degrees according to person). That everything can be re-framed, and there are multiple paths that all lead to the right destination.
23. Want to know a secret? One thing people say that gets under my skin is: "You're no fun anymore."
24. But I love it when people: compliment my intelligence, my kindness, or my abilities.
25. My favorite motto, scripture, quote that gets me through tough times is: "There are very few things I cannot do. Just some things which I may need to do a little differently."
26. When someone is diagnosed I’d like to tell them: Although it seems scary at first, you will learn that you are so much stronger and so much more capable and adaptable than you ever thought possible. And, if you are scared of the injections.... think about how many small children with diabetes are doing their own insulin injections - if they can do it, so can you!
27. Something that has surprised me about living with an illness is: that I feel like I have become a better person because of it, even though it frustrates me when others don't see it.
28. The nicest thing someone did for me when I wasn’t feeling well was: gathered a large group of their coworkers to sign a card and deliver it to me. I've realized that just knowing someone is thinking of me means a tremendous amount.
29. I’m involved with Invisible Illness Week because: I feel it touches many many lives - many more than most people realize.
30. The fact that you read this list makes me feel: validated and supported
1. The illness I live with is: MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: ?2007? but those were easier to ignore...
4. The biggest adjustment I’ve had to make is: giving up on my urge to get married outdoors in the middle of summer, or to ever enjoy lying out in the sun on a hot and humid day again
5. Most people assume: I have a "normal" life because they can't visually see anything wrong with me. Or they assume that I won't be capable of much of anything impressive, because they are ignorant about MS.
6. The hardest part about mornings are: That I often have to take sleeping aids to help me sleep well through the night, and sometimes I'm still very groggy and just don't want to get out of bed!
7. My favorite medical TV show is: Dr. House
8. A gadget I couldn’t live without is: I used to not be able to live life without a pencil, because I loved to draw. Or without a pen, because I loved to write. These days I couldn't live without my planner, so I can remember what I'm doing when!
9. The hardest part about nights are: Going to bed and hoping I will sleep well though the night, and actually get satisfying sleep. The nights when I feel like my skin is buring are the worst.
10. Each day I take _only a few_ pills & vitamins.
11. Regarding alternative treatments I: highly recommend doing extensive research on the treatment and all it's side effects before purchasing or trying any.
12. If I had to choose between an invisible illness or visible I would choose: This is a tough question..... an invisible illness is good in that you can't be the victim of others' prejudices as readily. However, the invisible illnesses are bad, in that you are a victim of their ignorance more often. I would likely choose an invisible illness, but perhaps a different one?
13. Regarding working and career: I have learned that there are some things which are to my best interest in helping me to be a strong and capable worker, which may not be liked by others who do not have this diagnosis and who do not understand, and do not necessarily care to understand. I have learned that although there are many protections out there for us, I am still fearful, because the law is open to interpretation. I have learned that I can't predict the future, I can't control everything, but I can do my best to educate myself, to advocate for myself, and to accept what I cannot change, while being willing to plan for that which I can change.
14. People would be surprised to know: I may not be overconfident, but I refuse to underestimate myself. There's a difference.
15. The hardest thing to accept about my new reality has been: The ignorance of others.
16. Something I never thought I could do with my illness that I did was: I suprise myself - and congratulate myself - regularly. I think it is good for one's self-image and self-respect to remind oneself of all the things you can do, rather than to focus on things you think you can't.
17. The commercials about my illness: commercials?? I have never once seen a single commercial about MS. I have never once seen a charachter in a television show with the diagnosis either. I would like to, although it could be dangerous territory as well, because sometimes people tend to see one charachter and ascribe that character's ficticious strengths and weaknesses to an entire population.
18. Something I really miss doing since I was diagnosed is: lying outside in the sunshine on a hot day.
19. It was really hard to have to give up: caffiene, although when I learned the difference in how I felt, I developed an entirely new appreciation for water.
20. A new hobby I have taken up since my diagnosis is: well, none, yet, although I would one day like to learn to quilt. I think it would be fabulous to combine my artistic ability with an ability to quilt, and to design some custom, handmade quilts for needy children.
21. If I could have one day of feeling normal again I would: go to the beach!
22. My illness has taught me: that remaining hydrated is important. That time to oneself is important, but so is staying open to others (to varying degrees according to person). That everything can be re-framed, and there are multiple paths that all lead to the right destination.
23. Want to know a secret? One thing people say that gets under my skin is: "You're no fun anymore."
24. But I love it when people: compliment my intelligence, my kindness, or my abilities.
25. My favorite motto, scripture, quote that gets me through tough times is: "There are very few things I cannot do. Just some things which I may need to do a little differently."
26. When someone is diagnosed I’d like to tell them: Although it seems scary at first, you will learn that you are so much stronger and so much more capable and adaptable than you ever thought possible. And, if you are scared of the injections.... think about how many small children with diabetes are doing their own insulin injections - if they can do it, so can you!
27. Something that has surprised me about living with an illness is: that I feel like I have become a better person because of it, even though it frustrates me when others don't see it.
28. The nicest thing someone did for me when I wasn’t feeling well was: gathered a large group of their coworkers to sign a card and deliver it to me. I've realized that just knowing someone is thinking of me means a tremendous amount.
29. I’m involved with Invisible Illness Week because: I feel it touches many many lives - many more than most people realize.
30. The fact that you read this list makes me feel: validated and supported
What a brilliant post - well done Lulu - here is mine
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: RRMS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 1989
4. The biggest adjustment I’ve had to make is: not being able to do things spontaneously
5. Most people assume: they know how I feel
6. The hardest part about mornings are: I used to be out of the house in 20 minutes it know takes me 2 hours or more on good days
7. My favorite medical TV show is: Casualty (It’s a Brit thing)
8. A gadget I couldn’t live without is: Internet access
9. The hardest part about nights are: the pain and sleeplessness
10. Each day I take _10_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: regularly go for Reflexology and massage
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: my anticipated and hard earned career has now become just work to pay bills
14. People would be surprised to know: just how much life has changed – no one ever asks except you guys
15. The hardest thing to accept about my new reality has been: that I have been unwell for years but unacknowledged and the new me is permanent!
16. Something I never thought I could do with my illness that I did was: make so many wonderful friends without ever meeting them face to face
17. The commercials about my illness: what?
18. Something I really miss doing since I was diagnosed is: walking without pain or even walking at all on some days
19. It was really hard to have to give up: the walks that I used to do with my husband every day
20. A new hobby I have taken up since my diagnosis is: talking to strangers in forums
21. If I could have one day of feeling normal again I would: walk the cliffs at my favourite seaside town
22. My illness has taught me: nope I’m still learning and still new to this
23. Want to know a secret? One thing people say that gets under my skin is: I know exactly how you feel I had that too………..
24. But I love it when people: care enough to spend time with me or to answer my worries and support me in private messages on here
25. My favorite motto, scripture, quote that gets me through tough times is: ‘we must have faith, hope and chocolate fudge cake’ on the wall above my desk at work, it makes me smile.
26. When someone is diagnosed I’d like to tell them: talk and share it’s the only way to get through this
27. Something that has surprised me about living with an illness is: how difficult it would be to accept
28. The nicest thing someone did for me when I wasn’t feeling well was: took me for a 3 hour drive to see beautiful countryside because I could not walk to see it.
29. I’m involved with Invisible Illness Week because: we need to spread the word and not take each other for granted
30. The fact that you read this list makes me feel: you know me a little better
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: RRMS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 1989
4. The biggest adjustment I’ve had to make is: not being able to do things spontaneously
5. Most people assume: they know how I feel
6. The hardest part about mornings are: I used to be out of the house in 20 minutes it know takes me 2 hours or more on good days
7. My favorite medical TV show is: Casualty (It’s a Brit thing)
8. A gadget I couldn’t live without is: Internet access
9. The hardest part about nights are: the pain and sleeplessness
10. Each day I take _10_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: regularly go for Reflexology and massage
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: my anticipated and hard earned career has now become just work to pay bills
14. People would be surprised to know: just how much life has changed – no one ever asks except you guys
15. The hardest thing to accept about my new reality has been: that I have been unwell for years but unacknowledged and the new me is permanent!
16. Something I never thought I could do with my illness that I did was: make so many wonderful friends without ever meeting them face to face
17. The commercials about my illness: what?
18. Something I really miss doing since I was diagnosed is: walking without pain or even walking at all on some days
19. It was really hard to have to give up: the walks that I used to do with my husband every day
20. A new hobby I have taken up since my diagnosis is: talking to strangers in forums
21. If I could have one day of feeling normal again I would: walk the cliffs at my favourite seaside town
22. My illness has taught me: nope I’m still learning and still new to this
23. Want to know a secret? One thing people say that gets under my skin is: I know exactly how you feel I had that too………..
24. But I love it when people: care enough to spend time with me or to answer my worries and support me in private messages on here
25. My favorite motto, scripture, quote that gets me through tough times is: ‘we must have faith, hope and chocolate fudge cake’ on the wall above my desk at work, it makes me smile.
26. When someone is diagnosed I’d like to tell them: talk and share it’s the only way to get through this
27. Something that has surprised me about living with an illness is: how difficult it would be to accept
28. The nicest thing someone did for me when I wasn’t feeling well was: took me for a 3 hour drive to see beautiful countryside because I could not walk to see it.
29. I’m involved with Invisible Illness Week because: we need to spread the word and not take each other for granted
30. The fact that you read this list makes me feel: you know me a little better
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: Probable MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 2009
4. The biggest adjustment I’ve had to make is: Is making myself accept I'll need other people to help
5. Most people assume: Theres nothing wrong
6. The hardest part about mornings are: Waking up!
7. My favorite medical TV show is: HOUSE!
8. A gadget I couldn’t live without is: my phone
9. The hardest part about nights are:
10. Each day I take __ pills & vitamins. (No comments, please) 11 pills n 1 vitamin
11. Regarding alternative treatments I: Havent looked into them but would love to learn
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: I'm not working right now and I'm scared i wont reach it
14. People would be surprised to know: I actually do care and i'm scared inside
15. The hardest thing to accept about my new reality has been: accepting my feeling
16. Something I never thought I could do with my illness that I did was:
17. The commercials about my illness: Havent seen any actaully
18. Something I really miss doing since I was diagnosed is: Still do the same
19. It was really hard to have to give up: JUNK FOOD
20. A new hobby I have taken up since my diagnosis is: Basketball
21. If I could have one day of feeling normal again I would: Probally do wat i do everyday
22. My illness has taught me: alot about who i am
23. Want to know a secret? One thing people say that gets under my skin is: Judgmental n narrowminded people
24. But I love it when people: Debate with me
25. My favorite motto, scripture, quote that gets me through tough times is: Don't have one but I look n talk to God alot
26. When someone is diagnosed I’d like to tell them: If you have any questions feel free to ask and i'll try my best to answer them for u
27. Something that has surprised me about living with an illness is: It really isnt that bad
28. The nicest thing someone did for me when I wasn’t feeling well was: ?
29. I’m involved with Invisible Illness Week because: It's what i have
30. The fact that you read this list makes me feel: That u care
1. The illness I live with is: Probable MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 2009
4. The biggest adjustment I’ve had to make is: Is making myself accept I'll need other people to help
5. Most people assume: Theres nothing wrong
6. The hardest part about mornings are: Waking up!
7. My favorite medical TV show is: HOUSE!
8. A gadget I couldn’t live without is: my phone
9. The hardest part about nights are:
10. Each day I take __ pills & vitamins. (No comments, please) 11 pills n 1 vitamin
11. Regarding alternative treatments I: Havent looked into them but would love to learn
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: I'm not working right now and I'm scared i wont reach it
14. People would be surprised to know: I actually do care and i'm scared inside
15. The hardest thing to accept about my new reality has been: accepting my feeling
16. Something I never thought I could do with my illness that I did was:
17. The commercials about my illness: Havent seen any actaully
18. Something I really miss doing since I was diagnosed is: Still do the same
19. It was really hard to have to give up: JUNK FOOD
20. A new hobby I have taken up since my diagnosis is: Basketball
21. If I could have one day of feeling normal again I would: Probally do wat i do everyday
22. My illness has taught me: alot about who i am
23. Want to know a secret? One thing people say that gets under my skin is: Judgmental n narrowminded people
24. But I love it when people: Debate with me
25. My favorite motto, scripture, quote that gets me through tough times is: Don't have one but I look n talk to God alot
26. When someone is diagnosed I’d like to tell them: If you have any questions feel free to ask and i'll try my best to answer them for u
27. Something that has surprised me about living with an illness is: It really isnt that bad
28. The nicest thing someone did for me when I wasn’t feeling well was: ?
29. I’m involved with Invisible Illness Week because: It's what i have
30. The fact that you read this list makes me feel: That u care
Re #17: funds raised by MS Society go to the EndMS campaign. It's mandate:
"To raise $60 million to recruit, train, support and retain the next generation of MS researchers in Canada, and to accelerate their research activities to find a cure and improved treatments for MS. The flagship of this investment is the new $20 million endMS Research and Training Network."
Lots of good info at:
www. endms .ca/english/what-canada-is-doing-to-endms.aspx
"To raise $60 million to recruit, train, support and retain the next generation of MS researchers in Canada, and to accelerate their research activities to find a cure and improved treatments for MS. The flagship of this investment is the new $20 million endMS Research and Training Network."
Lots of good info at:
www. endms .ca/english/what-canada-is-doing-to-endms.aspx
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 1994
4. The biggest adjustment I’ve had to make is: The "new normal". Sometimes changes as months go by.
5. Most people assume: I'm strong and I must have a pretty light case (I probably do, but I still feel cruddy a good deal of the time).
6. The hardest part about mornings are: The spasms that jolt me right out of bed swearing/whimpering.
7. My favorite medical TV show is: No TV since 1985.
8. A gadget I couldn’t live without is: Strap wrench for opening jars.
9. The hardest part about nights are: See #6.
10. Each day I take _6_ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: Use acupuncture once a week, Yoga 2x/wk.
12. If I had to choose between an invisible illness or visible I would choose: Invisible - I have a good poker face.
13. Regarding working and career: Some days my hands shake while I'm scanning, and I wonder if my patients have any confidence in me at all. No one has said anything, yet...
14. People would be surprised to know: I'm still fairly athletic, even though it takes 3 days to recover from a bike ride.
15. The hardest thing to accept about my new reality has been: Grieving for lost strength.
16. Something I never thought I could do with my illness that I did was: Kayak class IV rivers.
17. The commercials about my illness: ? (No TV)
18. Something I really miss doing since I was diagnosed is: See #21.
19. It was really hard to have to give up: Biking 2 days in a row.
20. A new hobby I have taken up since my diagnosis is: N/A
21. If I could have one day of feeling normal again I would: Be able to do the arm balance and inverted poses in Yoga I used to do, and hold them for as long as I used to.
22. My illness has taught me: One Day at a Time!
23. Want to know a secret? One thing people say that gets under my skin is:"You're just not trying hard enough"!
24. But I love it when people: Hang out with me when I need to rest.
25. My favorite motto, scripture, quote that gets me through tough times is:One Day at a Time!
26. When someone is diagnosed I’d like to tell them: I'm sorry you have to go through this, too.
27. Something that has surprised me about living with an illness is: I'm still the same goofy me.
28. The nicest thing someone did for me when I wasn’t feeling well was: take the paddle to move us through the water and let me know he knows I'd do the same for him, and that's what partners are for.
29. I’m involved with Invisible Illness Week because:I'm one of 'em.
30. The fact that you read this list makes me feel: Validated.
#23... "A doctor who wants to blame everything physcially wrong with MS. " as something that gets under your skin...
I found that funny Sarahsmom because my situation is the opposite...my doctors want to blame everything that goes wrong with me on everything EXCEPT MS...perhaps we should trade doctors hehe
Lulu...I have a t-shirt and matching baseball hat with that on it that my hubby found when he was in Newfoundland a few weeks ago! I will try to get a picture of me with them on and will post it for you! I have been saying Dat's It Bye for years now but it does apply to situations we have no control over...just a relaxed way of saying it!
Lots of hUgs,
Rena
I found that funny Sarahsmom because my situation is the opposite...my doctors want to blame everything that goes wrong with me on everything EXCEPT MS...perhaps we should trade doctors hehe
Lulu...I have a t-shirt and matching baseball hat with that on it that my hubby found when he was in Newfoundland a few weeks ago! I will try to get a picture of me with them on and will post it for you! I have been saying Dat's It Bye for years now but it does apply to situations we have no control over...just a relaxed way of saying it!
Lots of hUgs,
Rena
Dat's it bye is going to be my new saying if I can remember it. Perhaps I should have it tattooed on my bicep or chest? I love it.
This has been great to read your responses and learn a bit more about each and every one of you. Thanks for caring and sharing Lu
This has been great to read your responses and learn a bit more about each and every one of you. Thanks for caring and sharing Lu
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 2005-2006
4. The biggest adjustment I’ve had to make is: Depending on others
5. Most people assume: I am handling everything so well.
6. The hardest part about mornings are: Can't get out of bed without falling.
8. A gadget I couldn’t live without is: cell phone.
9. The hardest part about nights are: Leg spasms.
11. Regarding alternative treatments I: Not ready for that yet.
12. If I had to choose between an invisible illness or visible I would choose: Neither
14. People would be surprised to know: I have MS. I don't tell many people.
15. The hardest thing to accept about my new reality has been: Knowing that my physical limitations are not temporary.
16. Something I never thought I could do with my illness that I did was: Give myself daily injections. I hate needles, really scared of them.
18. Something I really miss doing since I was diagnosed is: Money. More and more of it is going into paying for meds and co-pays for doctors appointments/ PT etc.
19. It was really hard to have to give up: Running/jogging
20. A new hobby I have taken up since my diagnosis is: Puzzles, crocheting, playing with Play-Do, massages, games for eye hand coordination. All therapeutic of course.
21. If I could have one day of feeling normal again I would: Go out for a run.
22. My illness has taught me: To be patient and slow down.
23. Want to know a secret? One thing people say that gets under my skin is: A doctor who wants to blame everything physcially wrong with MS.
24. But I love it when people: Let me take my time to cross the street.
25. My favorite motto, scripture, quote that gets me through tough times is: "One step at a time...One day at a time"
26. When someone is diagnosed I’d like to tell them: Don't be afraid, you are not alone with this.
27. Something that has surprised me about living with an illness is: How it changed my way of looking at others around me. For eample, I see someone in a wheelchair or using a cane and I wonder what reason they are using these aides. I see someone who is young and wonder if they also have MS.
28. The nicest thing someone did for me when I wasn’t feeling well was: My friend brought me home-cooked chicken curry while I was in the hospital recovering from a relapse. Oh, she brought a home-made chocolate cake too. Messy but delicious.
1. The illness I live with is: MS
2. I was diagnosed with it in the year: 2009
3. But I had symptoms since: 2005-2006
4. The biggest adjustment I’ve had to make is: Depending on others
5. Most people assume: I am handling everything so well.
6. The hardest part about mornings are: Can't get out of bed without falling.
8. A gadget I couldn’t live without is: cell phone.
9. The hardest part about nights are: Leg spasms.
11. Regarding alternative treatments I: Not ready for that yet.
12. If I had to choose between an invisible illness or visible I would choose: Neither
14. People would be surprised to know: I have MS. I don't tell many people.
15. The hardest thing to accept about my new reality has been: Knowing that my physical limitations are not temporary.
16. Something I never thought I could do with my illness that I did was: Give myself daily injections. I hate needles, really scared of them.
18. Something I really miss doing since I was diagnosed is: Money. More and more of it is going into paying for meds and co-pays for doctors appointments/ PT etc.
19. It was really hard to have to give up: Running/jogging
20. A new hobby I have taken up since my diagnosis is: Puzzles, crocheting, playing with Play-Do, massages, games for eye hand coordination. All therapeutic of course.
21. If I could have one day of feeling normal again I would: Go out for a run.
22. My illness has taught me: To be patient and slow down.
23. Want to know a secret? One thing people say that gets under my skin is: A doctor who wants to blame everything physcially wrong with MS.
24. But I love it when people: Let me take my time to cross the street.
25. My favorite motto, scripture, quote that gets me through tough times is: "One step at a time...One day at a time"
26. When someone is diagnosed I’d like to tell them: Don't be afraid, you are not alone with this.
27. Something that has surprised me about living with an illness is: How it changed my way of looking at others around me. For eample, I see someone in a wheelchair or using a cane and I wonder what reason they are using these aides. I see someone who is young and wonder if they also have MS.
28. The nicest thing someone did for me when I wasn’t feeling well was: My friend brought me home-cooked chicken curry while I was in the hospital recovering from a relapse. Oh, she brought a home-made chocolate cake too. Messy but delicious.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: SPMS
2. I was diagnosed with it in the year: 1993
3. But I had symptoms since: about 1989
4. The biggest adjustment I’ve had to make is: not being able to do what I want to do WHEN I want to do it!
5. Most people assume: that I am exagerating when I have a relapse and although it may be in my own head I think that people think I am faking horrible symptoms because they can't see them!
6. The hardest part about mornings are: the ice pick that is being jammed into my temple EVERY morning when I wake up (thankfully it disipates soon after getting up but it is a reminder every day that I am not "normal")
7. My favorite medical TV show is: Mystery Diagnosis
8. A gadget I couldn’t live without is: Cane
9. The hardest part about nights are: Not to much trouble now but previously the muscle spasms and pain in my legs.
10. Each day I take 15__ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: tried accupuncture but noticed no difference in symptoms
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: I miss working terribly
14. People would be surprised to know: that I am terrified at what the future COULD bring me.
15. The hardest thing to accept about my new reality has been: believing that I really have this disease.
16. Something I never thought I could do with my illness that I did was: struggle through a myriad of horrible doctors to come out with a neuro that almost seems to give a damn.
17. The commercials about my illness: at times anger me because they are trying to usually raise money to find a cure for this illness but the money seems to always go through the MS Society of Canada and in my part...they are a group of people that judge, abuse, assume and I have yet to hear just where the heck all that money is going!
18. Something I really miss doing since I was diagnosed is: Living on the edge and daring to do things for the fun of it...now I don't know if and when my body will let me down due to my brain.
19. It was really hard to have to give up: Driving when I was having seizures...thankfully with the help of meds I can drive again.
20. A new hobby I have taken up since my diagnosis is: Trying to help out as many people as I could with this disease and that meant also becoming a member of MedHelp
21. If I could have one day of feeling normal again I would: Hike to a pristine mountain lake that you can only hike into and flyfish for a monster Lake Trout
22. My illness has taught me: that you have to have patience with the people who are your true friends and the ones that are not your true friends will have NO patience for me.
23. Want to know a secret? One thing people say that gets under my skin is: why do you only have to use your cane sometimes...I thought MS was a chronic disease! Some days I feel strong and level headed (literally) and can go short distances without my cane BUT there are times that I know if I went without it I would fall on my face and I would rather not do that in public thank you very much!
24. But I love it when people: understand that if I can't do something because I am not feeling strong enough understand why and don't give me a hard time about it but offer to do it at a later date when I am feeing better.
25. My favorite motto, scripture, quote that gets me through tough times is: Dat's It Bye! a Newfoundland saying that basically means "that's the way things are and there isn't anything I can do about it so suck it up and get on with what you can"!
26. When someone is diagnosed I’d like to tell them: not to get too upset until you know what you are dealing with. I think that doctors in general don't explain the disease and how small the odds are of becoming so disabled that you have to function from a wheelchair...too many think that everyone with MS is going to become severely disabled.
27. Something that has surprised me about living with an illness is: just how much my family really loves me and is concerned for my welfare...my commonlaw husband has been there for me 100% and has never complained or denied a request to help me be it dr. appointments or the bad times when I need help in the washroom or help with the laundry...I am truly blessed and if I could I would shout to the world what a wonderful man he is!
28. The nicest thing someone did for me when I wasn’t feeling well was: answer my prayer for a new neurologist by offering me the name of their neurologist and digging for answers for me when I didn't have the strength and felt like I was at the end of my rope...she was an angel and she still it and I think she will know who I am talking about! THANK YOU!!!
29. I’m involved with Invisible Illness Week because: People need to know that this disease does not make us deaf to hurtful, ignorant comments, blind to rolling eyes and disbelieving looks. The trials and tribulations that those of us with this disease go through with the medical community also need to be known by the public. We certainly need friends and confidante's to talk to and if people took the time to know us and just ask us what is happening that makes us unable to do things like other people...they just might make a friend for life rather than just brushing us off because we can't live life like they can.
30. The fact that you read this list makes me feel: as though I might have helped someone with no knowledge about Multiple Sclerosis (MS) get an idea of what we are facing day to day. I hope also that this might make a fellow MS patient feel not so alone with this scary chronic condition. Mostly I would wish that a few Neurologists would read this and realize more than anyone that we are human being's that deserve to be treated as such and perhaps just one will change the way they treat their patients. We deserve to be treated with the same respect as they expect to be treated...please consider our thoughts and feeling carefully before you jump to conclusions in a 10 minute appointment.
1. The illness I live with is: SPMS
2. I was diagnosed with it in the year: 1993
3. But I had symptoms since: about 1989
4. The biggest adjustment I’ve had to make is: not being able to do what I want to do WHEN I want to do it!
5. Most people assume: that I am exagerating when I have a relapse and although it may be in my own head I think that people think I am faking horrible symptoms because they can't see them!
6. The hardest part about mornings are: the ice pick that is being jammed into my temple EVERY morning when I wake up (thankfully it disipates soon after getting up but it is a reminder every day that I am not "normal")
7. My favorite medical TV show is: Mystery Diagnosis
8. A gadget I couldn’t live without is: Cane
9. The hardest part about nights are: Not to much trouble now but previously the muscle spasms and pain in my legs.
10. Each day I take 15__ pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: tried accupuncture but noticed no difference in symptoms
12. If I had to choose between an invisible illness or visible I would choose: invisible
13. Regarding working and career: I miss working terribly
14. People would be surprised to know: that I am terrified at what the future COULD bring me.
15. The hardest thing to accept about my new reality has been: believing that I really have this disease.
16. Something I never thought I could do with my illness that I did was: struggle through a myriad of horrible doctors to come out with a neuro that almost seems to give a damn.
17. The commercials about my illness: at times anger me because they are trying to usually raise money to find a cure for this illness but the money seems to always go through the MS Society of Canada and in my part...they are a group of people that judge, abuse, assume and I have yet to hear just where the heck all that money is going!
18. Something I really miss doing since I was diagnosed is: Living on the edge and daring to do things for the fun of it...now I don't know if and when my body will let me down due to my brain.
19. It was really hard to have to give up: Driving when I was having seizures...thankfully with the help of meds I can drive again.
20. A new hobby I have taken up since my diagnosis is: Trying to help out as many people as I could with this disease and that meant also becoming a member of MedHelp
21. If I could have one day of feeling normal again I would: Hike to a pristine mountain lake that you can only hike into and flyfish for a monster Lake Trout
22. My illness has taught me: that you have to have patience with the people who are your true friends and the ones that are not your true friends will have NO patience for me.
23. Want to know a secret? One thing people say that gets under my skin is: why do you only have to use your cane sometimes...I thought MS was a chronic disease! Some days I feel strong and level headed (literally) and can go short distances without my cane BUT there are times that I know if I went without it I would fall on my face and I would rather not do that in public thank you very much!
24. But I love it when people: understand that if I can't do something because I am not feeling strong enough understand why and don't give me a hard time about it but offer to do it at a later date when I am feeing better.
25. My favorite motto, scripture, quote that gets me through tough times is: Dat's It Bye! a Newfoundland saying that basically means "that's the way things are and there isn't anything I can do about it so suck it up and get on with what you can"!
26. When someone is diagnosed I’d like to tell them: not to get too upset until you know what you are dealing with. I think that doctors in general don't explain the disease and how small the odds are of becoming so disabled that you have to function from a wheelchair...too many think that everyone with MS is going to become severely disabled.
27. Something that has surprised me about living with an illness is: just how much my family really loves me and is concerned for my welfare...my commonlaw husband has been there for me 100% and has never complained or denied a request to help me be it dr. appointments or the bad times when I need help in the washroom or help with the laundry...I am truly blessed and if I could I would shout to the world what a wonderful man he is!
28. The nicest thing someone did for me when I wasn’t feeling well was: answer my prayer for a new neurologist by offering me the name of their neurologist and digging for answers for me when I didn't have the strength and felt like I was at the end of my rope...she was an angel and she still it and I think she will know who I am talking about! THANK YOU!!!
29. I’m involved with Invisible Illness Week because: People need to know that this disease does not make us deaf to hurtful, ignorant comments, blind to rolling eyes and disbelieving looks. The trials and tribulations that those of us with this disease go through with the medical community also need to be known by the public. We certainly need friends and confidante's to talk to and if people took the time to know us and just ask us what is happening that makes us unable to do things like other people...they just might make a friend for life rather than just brushing us off because we can't live life like they can.
30. The fact that you read this list makes me feel: as though I might have helped someone with no knowledge about Multiple Sclerosis (MS) get an idea of what we are facing day to day. I hope also that this might make a fellow MS patient feel not so alone with this scary chronic condition. Mostly I would wish that a few Neurologists would read this and realize more than anyone that we are human being's that deserve to be treated as such and perhaps just one will change the way they treat their patients. We deserve to be treated with the same respect as they expect to be treated...please consider our thoughts and feeling carefully before you jump to conclusions in a 10 minute appointment.
You have hit # 23 squarely on the head. You have captured the most frequest and annoying comments I have encountered. The only thing I would add would be , "but you so good!" as the most annoying thing I hear from my co-workers/ex co-workers.
#23: another one that gets under my skin: I find the expression "everything happens for a reason!" to be trite and pointless, and made worse when delivered in a chirpy tone.
30 Things About My Invisible Illness You May Not Know
1. The illness I live with is: RRMS
2. I was diagnosed with it in the year: 2007
3. But I had symptoms since: 2006
4. The biggest adjustment I’ve had to make is: in my head.
5. Most people assume: I have handled this better than I actually have.
6. The hardest part about mornings is: blowdrying and flatironing my hair; harder because of the pain in my hand, and the heat making it feel like I have bugs crawling down my neck. But I do it because the last thing I need on top of everything else is a bad hair day.
7. My favorite medical TV show is: Mystery Diagnosis
8. A gadget I couldn’t live without is: cell phone
9. The hardest part about nights are: nothing at the moment. Night time pain under control and sleeping well.
10. Each day I take 23 pills & vitamins.
11. Regarding alternative treatments I: have not tried any.
12. If I had to choose between an invisible illness or visible I would choose: Invisible.
13. Regarding working and career: I missed an entire year due to MS and hope that the next time I stop working is to retire.
14. People would be surprised to know: I am in pain 24/7.
15. The hardest thing to accept about my new reality has been: comprehending the permanency of my condition.
16. Something I never thought I could do with my illness that I did was: ? can’t think of anything ?
17. The commercials about my illness: are few and far between, but the ones by MS Society of Canada/Global TV for the EndMS campaign are inspiring.
18. Something I really miss doing since I was diagnosed is: taking my excellent health for granted.
19. It was really hard to have to give up: driving for an entire year.
20. A new hobby I have taken up since my diagnosis is: reading medical journals.
21. If I could have one day of feeling normal again I would: appreciate every second.
22. My illness has taught me: that I have everything I need, and that I am one lucky girl.
23. Want to know a secret?
One thing (HEALTHY) people say that gets under my skin is: “I get tired too/I don’t care for the heat either/I always forget things too…Maybe I have MS too, ha ha!” and the directive: “think positive!!!” and “I knew a guy/girl with MS and she ended up in a wheelchair/with a walker/with a cane” etc etc.
24. But I love it when people: are understanding when I have to cancel an evening out at the last minute.
25. My favorite motto, scripture, quote that gets me through tough times is:
“Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful.(~Buddha~)
and,
“Bridge Over Troubled Water” lyrics
26. When someone is diagnosed I’d like to tell them: It will be OK, really.
27. Something that has surprised me about living with an illness is: the emotional adjustment required.
28. The nicest thing someone did for me when I wasn’t feeling well was: bought me an eye patch when I first starting seeing double. And delivered it along with a venti non-fat latte, which was wonderful since I couldn’t drive myself to Starbucks.
29. I’m involved with Invisible Illness Week because: it’s a good reminder to not make assumptions about how well/unwell someone else may be.
30. The fact that you read this list makes me feel: productive, if it increased your understanding of MS, and/or if you have MS too, and it helped you to feel less alone.
1. The illness I live with is: RRMS
2. I was diagnosed with it in the year: 2007
3. But I had symptoms since: 2006
4. The biggest adjustment I’ve had to make is: in my head.
5. Most people assume: I have handled this better than I actually have.
6. The hardest part about mornings is: blowdrying and flatironing my hair; harder because of the pain in my hand, and the heat making it feel like I have bugs crawling down my neck. But I do it because the last thing I need on top of everything else is a bad hair day.
7. My favorite medical TV show is: Mystery Diagnosis
8. A gadget I couldn’t live without is: cell phone
9. The hardest part about nights are: nothing at the moment. Night time pain under control and sleeping well.
10. Each day I take 23 pills & vitamins.
11. Regarding alternative treatments I: have not tried any.
12. If I had to choose between an invisible illness or visible I would choose: Invisible.
13. Regarding working and career: I missed an entire year due to MS and hope that the next time I stop working is to retire.
14. People would be surprised to know: I am in pain 24/7.
15. The hardest thing to accept about my new reality has been: comprehending the permanency of my condition.
16. Something I never thought I could do with my illness that I did was: ? can’t think of anything ?
17. The commercials about my illness: are few and far between, but the ones by MS Society of Canada/Global TV for the EndMS campaign are inspiring.
18. Something I really miss doing since I was diagnosed is: taking my excellent health for granted.
19. It was really hard to have to give up: driving for an entire year.
20. A new hobby I have taken up since my diagnosis is: reading medical journals.
21. If I could have one day of feeling normal again I would: appreciate every second.
22. My illness has taught me: that I have everything I need, and that I am one lucky girl.
23. Want to know a secret?
One thing (HEALTHY) people say that gets under my skin is: “I get tired too/I don’t care for the heat either/I always forget things too…Maybe I have MS too, ha ha!” and the directive: “think positive!!!” and “I knew a guy/girl with MS and she ended up in a wheelchair/with a walker/with a cane” etc etc.
24. But I love it when people: are understanding when I have to cancel an evening out at the last minute.
25. My favorite motto, scripture, quote that gets me through tough times is:
“Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful.(~Buddha~)
and,
“Bridge Over Troubled Water” lyrics
26. When someone is diagnosed I’d like to tell them: It will be OK, really.
27. Something that has surprised me about living with an illness is: the emotional adjustment required.
28. The nicest thing someone did for me when I wasn’t feeling well was: bought me an eye patch when I first starting seeing double. And delivered it along with a venti non-fat latte, which was wonderful since I couldn’t drive myself to Starbucks.
29. I’m involved with Invisible Illness Week because: it’s a good reminder to not make assumptions about how well/unwell someone else may be.
30. The fact that you read this list makes me feel: productive, if it increased your understanding of MS, and/or if you have MS too, and it helped you to feel less alone.
So here is my list - its a bit haarder to do than I originally thought! - Lulu
1. The illness I live with is: RRMS
2. I was diagnosed with it in the year: 2008
3. But I had symptoms since: probably the past 20 years
4. The biggest adjustment I’ve had to make is: admitting I am really ill
5. Most people assume: I can handle this
6. The hardest part about mornings are: when I wake up I don't know what my body will do.
7. My favorite medical TV show is: ER because I liked the fast pace - too bad its not longer on the air. George Clooney was pretty nice to look at when he was on the show....
8. A gadget I couldn’t live without is: my laptop because it keeps me in touch with you!
9. The hardest part about nights are: they aren't long enough! I need more sleep. :-)
10. Each day I take __ pills & vitamins. 9 - but three of those are duplicates, and 3 are OTC, so I really take very few pills.
11. Regarding alternative treatments I: hope everyone choses wisely - complimentary treatments are ok, but alternative txs scare me
12. If I had to choose between an invisible illness or visible I would choose: Invisible, so I only have to admit having MS to those I wish to share it with.
13. Regarding working and career: its a necessity for medical insurance for me and my husband.
14. People would be surprised to know: I only knew my husband 6 months when we got married - and we are going on 36 years.
15. The hardest thing to accept about my new reality has been: not knowing where I will end up with this disease.
16. Something I never thought I could do with my illness that I did was: adopt a fairly rigorous exercise routine and stick with it.
17. The commercials about my illness: don't exist - I've never seen one on tv about MS
18. Something I really miss doing since I was diagnosed is: sitting in a hot tub on a cold day. That sounds wonderful
19. It was really hard to have to give up: see #18
20. A new hobby I have taken up since my diagnosis is: being on this forum and reading medical articles and books.
21. If I could have one day of feeling normal again I would: spend a day without thinking of MS - that would be a lovely change.
22. My illness has taught me: my compassion for others is pretty unlimited.
23. Want to know a secret? One thing people say that gets under my skin is: you look so good
24. But I love it when people: let me know that they care
25. My favorite motto, scripture, quote that gets me through tough times is: a misty morning does not signify a rainy day (ancient proverb)
26. When someone is diagnosed I’d like to tell them: join us here at MedHelp - we're in this together.
27. Something that has surprised me about living with an illness is: how my energy levels can change without warning
28. The nicest thing someone did for me when I wasn’t feeling well was: spent quiet time with me
29. I’m involved with Invisible Illness Week because: Wonko pointed me toward it - thanks!
30. The fact that you read this list makes me feel less alone.
Kathy, you and all others in limboland are suffering with the most Invisible Illness of all - go ahead and give this a go... this is your week too! Lu
Have an Answer?
You are reading content posted in the Multiple Sclerosis Community
Top Neurology Answerers
Australia
ON
Queensland, Australia
Queen Creek, AZ
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease
