Wow! That was a great visit - but was he able to do anything for the facial pain? Pain first, dx you can keep working on.
It only makes sense to work part time right now - see if you can broker a deal with your employer.
I'm glad to read you are on top of this with your excellent PCP.
I'm so glad your primary doc is great. Hang on to him!
Yes, it's frustrating to start over with a new neuro, but you do have to. Your current one is ridiculous. To save time in this process, make sure you have records of all your test results, and have all your actual MRI images. Take these to your new neuro, along with a brief timeline of your symptoms. I'm sure your PCP will help with the information-gathering if need be.
Whatever is wrong with you, you seem just too ill to work at your current pace. Maybe you can't work at all. Of course, try to go part-time and see how that works out.
If at all possible, have your husband go with you to see the new neuro, and he should at least talk to your PCP soon. It's too much for you to have to try to function normally when you just can't, and your husband needs to understand this. Please work on this aspect of things because it's clearly a major stressor and only makes things worse.
Ladies, you are the best...I didn't even think to ask about the meds. I just called and asked the office that question. To continue with the Trileptal or get a different one. They will get back to me today.
I will also mention to my husband about going with me to the doc. My MRI is Monday and I am seeing my doc the following week. (he is on vacation next week). I will ask my husband to come with me to the PCP at that visit. Good idea.
I don't know what I would do without this board at the moment. It is truly a life-saver for me.
Thanks so much,
I may be way off base with this one. I suffered with face pain, got the run around between my family doc and ENT, My dentist dx'ed me with a blocked salivary gland
and he was correct. Fluid backs up. This pain was nasty
He explained to me that a dentist gets a lot more education about the face and head then some docs Go figure , Just a shot in the dark, sometimes something sour will release the plug
Hope this may help Linda
Where in your face did it hurt? Mine is between my upper cheek bone and goes towards my ear and nose, and then it hurts above that going towards my eye. It primarily is the "skin" that hurts, doesn't feel deep, just like the surface is on fire.and it shoots at times...that might sound strange, but that is the feeling of it. Even the air can "hurt" it. Does that sound like what you had?
It has been so long, ago, i can't remember.
All I can remember was the pain was horrible and shot up to my ear and side
of the face I thought I would go nuts. The dentist ordered a full mouth x ray even though
there was nothing wrong with my teeth.
It broke the day before I had the full mouth x-rayt I felt a pop. a few pieces on sand came out from under my tongue and all this clear fluid released The pain left instantly
I had ever in my life heard og a blocked salivary gland Hope this helps Linda