The main thing is to treat symptoms and not worry so much what causes them. I am lucky to have a great Primary Care. I see my Neurologist once a year so my PCP helps with symptoms as does the pain clinic.
Not everything is MS. Like with me turns out I was allergic to acetaminfin and did not know it, which is in Percocet. Every time I took it I could not breath finally I figured it out It was also in a headache medicine and something else.
It is hard even for doctors to know what is MS and what is not. The worst doctors blame everything on MS. Now that I have Cancer the Cancer doctor says everything is MS and the Neurologist points to the Cancer.
The pain Clinic treats symptoms and does not care what is causing it.
The only important thing is to figure out if something is caused by muscles or nerves since they are different medications. With Ms it usually is both at some point.
The intestinal stuff is no fun at all. Mine has gotten better. I eat ground flaxseed which has made a big difference.
Alex
Thanks! I've been diagnosed for 6 years now, and think I'm on about all I can be for spasms & nerve pain & pain in general (Lyrica max dose so I can still walk, Baclofen near max & Oxycontin and then there is the backup Percocet for the bad pain. Not to mention the meds for my intestinal non-working well issues & severe fatigue at time....just to name some.
Had my Brain, Cervical & Thoracic MRI's done last week, got the cervical report back & there are 2 new lesions and one that has gotten larger, and throw in some moderate C5-C6 left foraminal narrowing and severe left foraminal narrowing at C4-5.
Having a lot of symptoms that I now am not sure what may be the "MS" in those parts & what may be other issues I have going on. All I know is that I'm not a real happy camper at this point. =( Having to wait to hear from my neurologist is the pits.
There are different medications which can help. It depends on whether it is Nerve Pain or Muscle spasms or both. My MS Specialist sent me to a pain clinic. It took a few years to get the right combination. There are no one size fits all medications. Each of us is different.
Alex