Aa
Aa
A
A
A
Close
Avatar universal

Effects off going of Gilenya

Hey everyone, I was previously on Gilenya for over 6 months but was advised to go off it over a month ago due to the drop in my white blood cell count. Now I didn't see much change at first, however in the last two weeks I've stuggled getting any sleep. I have pains behind my eyes (something I am especially paranoid over due to my history with optic neuritis). I am over fours days now late on my period yet I've all the PMS symptoms like aches and pains all over. Plus my sinuses are affecting me much worse then usual with bad throat swelling and lots of mucus formation. I'm just not sure if im being over worried about a bad sinus infection or if it could have something to do with me stopping Gilenya and I was wondering if anyone has suffered similar symptoms after stopping the medication thanks. I'm 20 and was diagnosed with MS 8 months ago so im just not sure what symptoms to look out for.
1 Responses
Sort by: Helpful Oldest Newest
Avatar universal
Hi RoisinS,  I havent stopped taking Gilenya but I can relate to all the symptoms you were experiencing (late period, pain behind the eyes, sinus infection type symptoms) but on top of it I have terrible pain in my back as well. I dont have any answers for you unfortunately but I just wanted to let you know you're not alone. How are you feeling now??
Helpful - 0
Have an Answer?

You are reading content posted in the Multiple Sclerosis Community

Top Neurology Answerers
987762 tn?1671273328
Australia
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease