MRI today on 3 Telsa (new uploads under my pics)

[MSChrise]

Hi,  I was diagnosed with MS in 2007 (after years of symptoms) and have been on and off copaxone for the last two years.  Had a followup MRI today on teh 3Telsa machine.  I see lesions on these that were not visible on my last mri on (1.5 telsa)  I was hoping the scan time would have been shorter but it wasnt.  I also see lesions on my sag flair images that were not on the mri in 2007.  

Images should be viewable under my profile photos.

[MSChrise]

LOL,  sorry about the goof up of your name!   But I cant remember things from looking at it 5 seconds ago and got it wrong :(

Ohvehh,  that is one of my major problems.  Memory.  strange, I can remember things from 30 yrs ago, but not 5 minutes, or hrs ago.

[raekay35]

Just a little comment about the above posts...I was a nurse for several years, however, after working with a new family practice doctor it became clear to me that many MD's are in it for status and money and not for the love of helping people.  That was/is not me at all.  I have since given up the nursing field because of it, I care to much about people in general to let some person think that they are better than me to bring me and the patients that I care about deeply down.  I know not all docs are the same but many many are, just have to find a good one!!! I haven't been dx with MS yet but  have 7 lesions in my brain, greater than 5 O bands in CSF, negative Spinal MRI...All labs r/o RA, Lupus, etc...only abnormal was elevated platelets and eosinophils.  Waiting to see the docs at UCSF MS Clinic...I have been comparing my MRI's to other's I find online, very interesting indeed.  Let us know what the radiologist has to say about your most recent MRI...Stay healthy and don't get discouraged!!!

[Quixotic1]

I now walk in those shoes, though I was not one to dismiss patients' complaints.  First, Believe the patient.

Before you criticize someone, walk a mile in his shoes.  That way if he gets mad, you are a mile away and he is barefoot.!!

And I love the new name.  Quinn Toxic - that sometimes aptly describes me.  ;-))

We have had many a long rant against those docs who would dismiss, disparage, belittle, humiliate or insult us.  You are in good company!

Welcome!  Q

[MSChrise]

also,  Quintoxic,  I agreed to a Lumbar Puncture in 2004 and guess what!  Negative.
Also saw a "MS Specialist" at the University of Penn who didnt even look at my MRI's or listen to a timeline of syptoms, but concluded I didnt have MS,  but had the balls to put in the note to my PCP, "consider latent depression"  what a "jerk", my PCP actually wrote him and the hospital he worked with and teh Insurance company and all money was reimbursed to the insurance company and myself.

I work in teh medical field as a nurse(and feel forturnate that I do) and I see more than I would like sometimes, there are Dr's out there with a God complex and they look at anyone in pain as drug addicts/seekers or psyc cases when they fail to diagnose properly.

sorry for the vent. but that irritates me to no end and I have had to remind Co-worker Dr's not to judge people so harshly, you never know when you may walk in anothers shoes.

[MSChrise]

Im new to this so didnt see anyone replied, I guess i have to check the add to watch list. :)
Yes Quixotic, many symptoms for many years.  My PCP I believe had an inkling to what was going on, sent me to a neuro for chest pain, I thought she was nuts!  But back then my MRI was clear.  
MRI results said no evidence of enchancement to indicate active plaque, but the lesions are still there.  I have reviewed previous mri and this one and I see more lesions, but that could be the difference in 1.5 and 3T.  Honestly was wondering if this new radilogist reading a new MRI (went to a different facility) was going to say"  what the heck is she doing here, theres nothing wrong with her , its all in her head"  well nope it really is all in my head/brain and the MS is still there.
At least I have a reason for feeling like **** 20 out of 24 hrs every day.

[rendean]

Hi and Welcome!

I have a question regarding part of your original post. You said you were tested for
pheochromocytoma, could ask what symptoms caused them to check for this?

I, too, have been checked twice for a pheo due to huge spikes in my BP (210/110) while on meds and once while inpatient , zonked out on Ativan and lying supine at midnight.

Curiously,
Ren

[Quixotic1]

I don't see the atrophy.  The sulci look nice, deep, and well-formed.  The space between the brain and the skull can't really be evaluated on this slice.

[Quixotic1]

Hi, from me, too!  I saw something in your story that I want the whole forum to notice.  Your symptoms clearly began by 2001 (or earlier), yet your MRI was not positive until 2004.

That speaks for itself.

Quix

[jensequitur]

Have you gotten the report from the radiologist yet?  Looks like you've got a bit of atrophy.

[Wobbly]

Hi there.. just wanted to say hi and welcome to the forum.. I've not had a MRI on a 3T yet..I was Dx in Aug of this year after searching for 4 years.. I'm Dx with PPMS.

can't really help with your question.  Let us know when you get the results from the Neuro..when do you see him/her?

take care
wobbly
dx

[MSChrise]

Hi LuLu,

You had scans on a T7 am I correct?
No we have not crossed paths as I have not been very active in these forms.  I havent loaded my old mris on this forum but they are on daily strength.org if you go there.
THanks for the comment on my photos, I love photograpy and have a small side line doing portraits.
I see more on these sscans then my ones from 05 and 07.  Have been having a hard time since my flair that led to dx in 07 adn this past weekend was especially bad.
I hae had symptoms probably since my late teens, early 20's.  But never thought MS
In 2001 when i was having chest pain, numbness in my leg and the dr. wanted to send me to neuro for the chest pain, i thought she was nuts! (but i also was not a nurse then either :))  had a mri back then that was clear.  then when i got sick in 2004 had another mri and lestions were there.  
I wasnt dx then either, just ruled out alot of things,  pheochrocytoma, stroke, lymes, syphliss etc...
I live in PA, where ae your from?
Christine

[Lulu54]

Hi, I'm thinking we have not crossed paths so let me say a belated welcome.  If I'm wrong, sorry for my poor memory.

I took at look at your pics - but got really distracted by your photo of the trees and stream - that is an especially lovely photo.  

I wish I had training as a radiologist and could comment on your MRI shots, but alas I am not.  I do see lesions, but don't know what you prior MRI looked like.

Aren't these amazing machines?  It always amazes me to see inside the body. It's cool stuff.

take care,
Lulu