Just responding again as I neglected to tick the "notify me..." option. Which I've now done. :D
I get it (the "tingling" feeling) primarily in my left arm. My neurologist insists that it's "positional" and not related to MS.
I get it very frequently, no matter if I'm laying on my back or sitting up.
I used to play the guitar basically all the time, (at least some every day) but the near loss of gross motor control in my left hand has made this frustrating and rather difficult.
"It" feels very similar to a limb "falling asleep," like it you're laying on it, and it can often be alleviated/mediated by moving my arm about and flexing the various muscles.
Which DOES lend some credence to my neurologist's diagnostic claim of it being "positional." That it occurs, however, regardless of what position that I'm in just makes me wonder... If it's positional and not MS-related, then why's it happening only on the arm most affected by MS, and even when I am flat on my back..? Wouldn't either arm be affected?
#MSIssues
Stay positive, stay strong, and (I'm preaching to all who will listen about this, it's really THAT good) ask about Rituxan/Rituximab.
It doesn't do much as far as symptoms, but it has virtually eliminated by relapses, which were debilitating beyond description, brutally agonizing, and had been happening about each month or so.
I hope this helps.
r
I meant "attention seeking". Who wants that kind of attention?
You all sound just like me....and I am still undiagnosed after 37 yrs, but I did have a negative LP when I was 20 yrs old because my Neurologist suspected MS due to seizures, falling down, weakness. But since the LP was negative I was basically written off as it being attended seeking/drug seeking/all in my head. Well, it has progressed for 37 yrs & I have been permanently disabled since age 24. I am finally being seen by an MS specialist next month. Still waiting patiently... and I KNOW it's not all in my head...maybe in my spine too!
hello, sammycung
same as you i have also same tingling problem in all body part please if you have any solution please tell me
thanks
Tej
Oh my gosh, finally you said exactly what I've been feeling but couldn't describe! The numbness feels like it's on the inside because I can still feel everything on the outside! Thanks for that. My face has been that way for 3 days.
I get pin and needles, tingling and numbness in my hands, feet and sometimes in my arms and shoulders. I notice that it happens more often on my right side. Also the numbness feels like its in the inside because I can still feel everything that touches me. It comes and goes throughout the day. My right side of my face has also tingled a few times, but it has never went numb. My coordination and balance has really been off the past couple of day. I'll start walking then stumble.
Hi I know this is old. But I have been looking for someone that get a line on the back right about in the area of the bra line. You are the first that I found. Mine only happen once, but i thought it would never go away. But i was under a lot of stress at the time bc of my daughter who was 8 months at the time was in the hospital. that was over 5 months ago. And I had serve weekness in my right leg.
I get the "buzzing" feeling too! :)
You are the only other person I have read anything by, that also uses the term buzzed, that is how I would explain my ms tingling or whatever is a buzzing feeling
Its feels sort of like electric tingles and it travels from my scalp down to the
very tip of my spine. I only experienced it once just now and can someone
tell me what it is?? And does anyone even know??
I have the identical feeling on my calf (feels like i forgot to dry it) and then sometimes there is a hot sensation. I would love to to hear what your doctors tell you about it. I hear that Germany has some of the best health care in Europe. You can email me at ***@****
can you tell me why you have them
anna
all the stories i have read sounds like me. i just went to a doctor because i thought i was going crazy. numbness in patches throughout my head time tand tingling like its sleeping.my spine in all areas my left arm and both my legs and feet/the doctor wants to run all sorts of test, but i am so burned out/ i have been in and out of the hospitals like a revolving door.i have had so many cat scans and mri's my hair is starting to fall out. its comforting to see other people experiecing the same thing,so i don't feel like i;am going nuts
I started experiencing that same thing just few weeks ago, is it MS? Should I go to a doctor?
well that muscle pain could b from a spasum - i have had them where it goes clear 2 the bone!?? - hurt very bad-
so it could b a nu. of things i hope! let us know! hugs tick
Hi. Your comment is at the end of this thread. More people will see your post and have an opportunity to comment if you create a new question.
Welcome. Looking forward to your "Post a Question."
Hi, I'm new here. I'm 35 years old and am terrified of MS. My left pinky and sometimes one foot or the other feels "weird". I can still walk and control them though. This has been going on for at least 12 years. Don't seem to have numbness or tingling in my body. Have had eyelid twitching and major muscle pain. Wonder if it's Fibromyalgia rather than Ms. Any ideas?
Let's see:
How does my tingling feel? It feels mostly like pins and needles, though sometimes I get a wet feeling, twitching or stabbing pains.
Where are they located? Face: scalp, tongue, uvula, lips & eye lids. Torso: left side of upper back. Limbs: left arm, both feet, and left leg up to my knee.
How often? Every single day for my feet. The other areas maybe every other day or so. My facial ones are the least often. However, I might feel this way because I'm better able to ignore them now that I know why I have them.
HTH,
ST
Hi there,
I get lots of tingling in my left leg, foot and side. It feels more like a constant thrumming vibration but fairly mild.
I recently went through a period of "firework" like tingling in my scalp, calf and stomach where it felt like a small firework bursting with a tingle then fading out to the thrumming feeling.
I have tremors in my head and left hand now too. Periods of numbness in my foot, burning feeling on various parts of my body. And to add today, I have on and off felt like I have a wet leg. My lower leg feels like I just got out of the shower and forgot to dry off that leg ... strange.
These things can really drive you crazy, huh? I'm undergoing diagnosis now ... delayed some at my fear of needles and my dislike for the doctors here in Germany.
Hang in there. I know it's all so strange. There are great folks on here who can definitely identify with the strange things you are feeling.
Blessing,
ArmyGirl73
I am brand new MS, so I'm not sure which tingling deals with what. There is a few different I feel. But the most frequent feels like it starts around my chest, and in a straight down across my body, feels like one line of vibration shoots down to around my knees. Happens a couple times an hour minimum. Sometimes it happens 2-3 times a minute. The others haven't happened enough for me to really figure out where exactly it is or what if feels like. Just know that it had happened and took me by suprise.
Hi Sammy,
I wont go into everything but.........
Q. How does your tingling feel?
A. pins and needles, numb, dead limbs to pain, hot to cold
Q. *Where is your tingling located?
A. Both legs, Both arms, both hands (thumbs & 2 fingers), both feet, nose tip, left cheek, right crows feet area, buttock, left waist between ribs and hip, left ribs (baby hugs)
Q.*How often do you expirience it?
A. Legs everyday for about 20 years, arms everyday for about 15 years, everything else only during episodes starting 6 years ago and adding to my list of weird things
Q. *Do you only get it on your extremities?
A. Mostly but now have the face tingles, baby hugs started 2008, tingle between rib and hip is new to this episode
Q. *Do you only get it on your torso?
A. See above [note: baby hugs for me are both tingling and preasure]
Q.*Do you get it on both your torso and extremities?
A. Yes [see above]
I too am not dx but unless a new disease with my name on it comes along, it's looking like i've had MS for half my life, i'll know at the end of the month.
Cheers.....JJ
I get tingling on my back, as I said - it's usually in a line around my torso, a little bit above the braline.
It's in the same area that also gets muscle cramps, and it's in a line with the esophageal spasms I get right behind my sternum. So my 'uneducated' guess is that I have a lesion there, but my oh-so-wise neuro believes I do not, after looking at the .7T MRI results that he scheduled me for. No, I'm not bitter!
Wow, thanks for all your replys guys, you all have such different symptoms, i can relate to the goose bumps in weired parts of my body, they appear in little patches, and i'm not cold when they happen. I get the hot and cold patches of skin, it sometimes feels like someone is putting warm water on my skin, or my skin feels like it is near a heater.
I also get muscle twitches in almost any part of my body and i too can see then just by looking at them.
My tingling sometimes comes in waves over my scalp and down my body but more commonly i get little tingles all over my body but not at the same time.
I get it on my legs, feet, arms, hands, stomach, ribs, underarms, hips etc.
I have not even been diagnosed with MS yet, I'm sure that i have it though.
None of you guys seem to get tingling on your torso???
I have so many other symptoms but i would be here forever....balance, vertigo, buzzing, spasms, etc etc etc....blah blah blah!