MS PAIN

[meanit]

What can be done for MS Pain?  The pain they is not really part of MS?  Yeah right?  Has anyone ever heard of a pain patch that is time released that will meep the pain at a tolerable level?  Our neuro may prescribe this for my husband.  He cannot take steroids, neurontin or cymbalta.  He presently is allowed two low does hydrocodone per day-that its and no more.  That gives him 1-2 hours of diminished pain not pain free.  

MS Pain it is real------can anyone answer the above or comment.  Thanks!

[HARRYBEADS]

  I am a male with extreme pain in all joints and the Doc told me it's not from the MS but due to the muscle spasms and cramps and constant shaking plus the weekness that MS causes.Tecniqualities eh!. Hope your husband gets relief. Has he tried a MSCONTIN they last for 12 hours.Thats what works for me.

Harry

[AnRNwithMS]

After complaining about spinal cord pain for a year, I switched to a neurologist affiliated with a university. I then got a pain managment specialist, who after seeing so many MSr's, was thoroughly convinced about dyskinesias, spinal cord pain from spinal cord lesions and without me even having to beg or feel bad about myself, put me on a small dose of Methadone (a long-acting opiate) with Norco (a short-acting opiate) and provided an ointment for topical use that has Gabapentin,Ketamine, Ketophren and Lidocaine. This man has saved my sanity and improved the quality of life. Any neurologist who insists that there is no pain with MS does not stay informed with the most recent neurology literature and research studies. Imagine my spinal cord with 4 lesions as an electrical cord with 4 cut-outs in the insulating fiber. Ask your neurologist to plug that defective cord into a wall outlet and let him hold it.....then let's see if there's pain.......(try to find a more informative neurologist)

[maydas2002]

I had to laugh today when I went to the Dr, because of all the recent spasms and twitchings and she told me "if you have possible MS then you should have no pain!! because MS patients have no pain!" And she repeated it like a thousand time.  I could not believe it. She said if you have pain you definetely do not have MS, but I will send you to have those MRI's just in case. Things that happen. I just wanted to share it with the poeple that have been diagnosed already because it amazed me!!
See you, Hope you all have a better day today!

Mayda

[meanit]

Thank you for your kinds words.  I am so glad you enjoyed my poem.  All I can say is anyone with this disesase deserves "A Day Without Pain" and those that love them and can help them, should never give up trying to help them achieve that day.  Those suffering too should stay strong, try and have faith and keep taking it one day at a time!  

[meathead]

Hi there i was browsing throuh today and saw your poem like you im new to this site but it is a lovely site full of very caring and wonderful people. I would like to say your poem made me cry and i bet im not the only one, I hope you find comfort from this site as you need it as much as Tim . Although its Tim in the pain and un sureness of this horrid disease you go through the emotions to i know my husband does good luck speak soon

[meanit]

Thank you so much for your replies.  I am so glad you liked the poem.  I consider the poems that I write a gift and I am grateful for it and I am glad to pass this one on to you. No -selfishness Kitt in wanting to move forward, find courage for yourself and and be inspired.  You do what ever it takes.  And never give up!

As far as Tim's pain---we are still in a hold pattern.  No pain patches will be prescribed or any other pain meds until they see how he does on the Rebiff for three weeks.  In other words, they might has well have said, "Just suffer for three more weeks".  And again we got from the doctor that there is not usually pain with MS!  Tim begins his 11 month of pure pain in November with no doctors ever believing him------- -there is pain with MS and don't ever let anyone tell you there is not!  Stay strong.  Meanit

No wonder I write poems-Or I could would seriously-choke a doctor.  Thank God for this website.  We are new to it but it has been so helpful.    

Well-a new day is dawning the coffee is brewing, I am not sure what today will bring for any of us----but take it one small step at a time, watch the leaves Fall,  kiss your children if you have them, count your blessings and if your skies are not blue where you are today---don't worry they will be and you will have a day without pain-someday and so will Tim.  Thanks again.

[kitten o]

DAM U GOT ME CRYING SO HARD
I CANNOT TELL U HOW U ACED IT IN YOUR POEM. I AM GOING
TO COPY IT.   AND POST ON MY BOARD AT HOME.
THAT WAS GREAT . HOPE I AM NOT BEING SELFISH.
THANKS AGAIN    YOUR FRIEND KITT

[TonkaSpirit]

I love your poem, brought on the tears...How wonderful that you are so loving & supportive.  Yes, I was given patches for pain a couple of weeks ago. Mine are called, well ok, I just went to look for them, and can't find em.  I am a chronic mis-placer now-a-days.  Well, you can cut them smaller if you want & you stick them to your skin overnight for 12 hours and then keep them off for 12 hours.  Are those the ones you think?  My neuro gave me these to help with pain in my back and my arm but they weren't very effective.  Of course, maybe I didn't give them much of a chance.  Do they work for your husband?  I hope so.
Cheers, Terrie

[meanit]

Type-o:  mean't to say they say pain is not really part of MS.  and "keep" not "meep"
than I type.  Thanks everyone and anyone who is out there.  

The following is for my husband and for all of you in pain!  

A DAY WITHOUT PAIN

A DAY WITHOUT PAIN IS WHAT I WISH FOR YOU,
A DAY WHEN YOUR SMILE IS GENUINE AND TRUE.

A DAY WHEN YOUR LEGS ARE WORKING JUST FINE,
A DAY WHEN YOU HAVE NO MORE MOUNTAINS TO CLIMB.

A DAY WHEN YOU BREATHE THE FRESH AIR WITH EASE,
A DAY WITHOUT WORRY THAT BRINGS YOU TO YOUR KNEES.

A DAY WHEN YOUR LAUGH IS SO LOUD AND CLEAR,
A DAY WHEN A TOUCH WON’T BRING YOU TO TEARS.

A DAY WHEN YOUR MIND IS SHARP AS A TACK,
A DAY WHEN YOU HAVE NO TROUBLE LOOKING BACK.

A DAY WHEN YOU RUN ACROSS THE WARM SAND,
A DAY WHEN YOU DON’T NEED TO HOLD ANYONES HAND.

A DAY WHEN YOUR TROUBLES HAVE ALL MOVED AWAY,
A DAY FULL OF ANSWERS AND HELP HERE TO STAY.

A DAY WHEN YOU STOP SHAKING INSIDE AND OUT,
A DAY YOU LOOK AHEAD WITHOUT FEAR AND DOUBT.

A DAY WHEN YOUR HEAD IS FREE FROM PAIN,
A DAY FULL OF SUNSHINE AND NO MORE RAIN.

A DAY WITHOUT PAIN IS WHAT I WISH FOR YOU,
A DAY FULL OF SKIES THAT ARE NOTHING BUT BLUE.

To no more pain, to no more worry, to no more fear.  To answers, to help and to the future!  I love you Tim-ALWAYS……Amy 5/07 (copying with permission only please)