Thank you for your thoughts regarding my concerns Quix. Yes, he is being followed by hematology (because of his TTP) and infectious disease docs. He was on IV Vanco while hospitalized this past week...but since the blood cultures were all negative they sent him home on oral meds that are for the staph infection of his wound (not MRSA thank goodness)....thank you for responding to my question...I appreciate it... Patty
Hypothermia and a severe decubitus ulcer?? My overriding fear would be sepsis - the same thing that killed Christopher Reeves. This would presume that the oral antibiotics are not appropriate for whatever the real infection is. They should be repeating blood cultures regularly for a while. Sometimes they don't catch the bug right off.
If not, failure of temperature regulation is an autonomic problem - small unmyelinated fibers. While autonomic neuropathy does occur in MS it is VERY rare. I'm inclined to believe that all this is not a direct effect of MS, but either unrelated or secondary (like the ulcers).
Has he been seen by both hematology and infectious disease. I find it all very worrisome.
Quix
Hi there,
I really don't have an answer but did a quick look - could it possibly be related to hypothroidism? I find that mentioned several places with low body temperature.
It may very well be a completely separate disorder from his MS.
Perhaps someone else here will have some other ideas.
my best,
Lulu