MS? Trouble finding out.

[Lanbro]

This last summer I was working as a car salesman. All summer was spent outside and as the summer went I ended up with numb, tingling feet. I feel a few times. I was so tired I could do nothing more then sit around at work and at home. They started doing some tests and ended up with a spinal tap that didn't show ms signs. I had a MRI and was told that they found stuff and they felt it was ms. They set me up to go to a neurologist. I ended up going to a different one becauseI could not get in for 5 months.
The dr. office and hospital were supposed to forward all test results and images to neurologist. When I showed at his office he had nothing. I told him my symptoms and what I was told from dr. He did some physical tests, strength and such and said he believed it was ms but would need the results and images. That was 2 weeks ago and he still does not have the things requested. I have hounded the dr. office and hospital and they always say they have sent it. When at the neurologist we did paper work to start shots and now I have an appointment for them to come and teach me how to do them but I still don't have a diagnosis.
Please some one give me some ideas.

[SarahL2491]

You can go to the radiology department and get your own MRI on a cd and take it to the dr

Many of us always keep MRI and lab records with us all the time

[LilMinnie]

I totally understand your frustration.

I am STILL trying to get my lab work and LP results from the hospital to my neurologist. I have filled out a Release of Information form requesting the records for myself. STILLhhaven't heard back, and have been playing phone tag with the Medical Records department. Looks like I'm just going to haveto go there  and hopefully not get thrown out by Security ;-)

Is there an online account you can sign up for?

I did that but apparently some of my results are not available becausetthey are "sensitive," but it could be worth a try for you.

All the best,
Minnie

[Lanbro]

I guess I should give my full symptom list. Feet and lower legs tingling, numb, heavy. Ankles stiff. Walking at times is impossible with out a cane. Knees weak. My right side is so much worse then the left. Pain through out the body but mostly in the legs. Sciatica like pain on right side. Dizzy, fatigued all the time.
I have been on pregnazone most the time with solu-medrol anywhere from 250 to 500 and even 1000 from 3 to 5 days at a time. I am on a couple narcotic pain meds too.
When they do the test to check reflexes, my right side is "over active" and the left side does not respond at all.
To put my pants on I have to pick up my feet, no strength and very painfull.
I am 44 can not work. I have to sit to pee because of loss of strength and pain.
How do I get the people to cooperate so I can find something out?