I have autonomic dysfunction secondary to MS. I see an electrophysiologist for this. He has me on drug to slow the heartrate. My bp is either very high or very low. Extremely labile. I experience fainting with it also. I get hot and cold inappropriately etc. I have many other symptoms which are miserable. We control symptoms as best we can but its taking a huge toll on my quality of life.
If you haven't have her see a good electrophysiogist. They seem to be able to handle this best.
Hi Lanky,
I have MS and with this last relapse I have developed full blown autonomic dysfunction. Symptoms had been waxing and waning for a few months prior, but the heart rate in the 30s and a BP of 155/106 are definite signs of the dysfunction. I , like GG, have issues with cold as well, and tachycardia to accompany the bradycardia.
Just recently they implanted a loop recorder, basically a baby Holter monitor, to have me on telemetry 24/7 so they can figure out the exact problem or arrythmia.
Sorry she has to go through this and you have to just stand by and watch! My DH said it was the worst thing I've been through being in the hospital and hoping my heart rate would hit at least 40. He felt helpless.
It sounds as if they're are trying their best to fix the problem. You might ask for a consult with a cardiologist specializing in electrophysiology if you don't already have one.
Good luck! Come back and update us us things unfold if you'd like. Send her my best wishes.
Ren
Hi, Lanky,
I have autonomic dysfunction, and I have MS. I have supraventricular tachycardia (sounds like what you describe with your wife), bradycardia and problems regulating temperature, too.
Sorry she's going through this!
Hi, Lanky. You ask some really good questions based on her symptoms. The part of your brain that controls the autonomic functions of our body, such as heart rate,can be affecte by lesions and cause these types of problems. I don't have this problem buit we do have others who are affected by this- I hope they will weigh in and share their experiences.
,I hope we see you around, Laura