MS diagnosis

[meg321]

I just got home rom UCSF and i got my diagnosis for MS...I was so happy to find out what I am dealing with.  I knew it but i needed to be sure.   I sort of feel like one on the 'BIg Guys' now.  I know most are not this excited about the diagnosis but I am.

There is one thing left to do, i have to have a chest xray to rule out sarcosis or something like that, cant spell it.  But she said she is so sure about the MS that she is not concerned but she needs to rule it out.  She had already ruled out everything else.

She is going to start me on Copaxene as soon as we rule out the other.  I hate waiting but I have to.

I am so happy i have a name for it all.  I can finally get on wit it and do what I need to do.

So i am not going anywhere, you are stuck with me !!!

If anyone has any feedback, that would be fine.....

hugs, meg

[sunshine8]

It sounds strange, but I am glad that you are out of limboland and got the diagnosis. As someone who was recently (Oct 2008) diagnosed, I totally understand. I was mainly relieved to be diagnosed, but I soon found out that many other emotions came out of the woodwork.

One thing I have learned, this forum is a great place to be no matter what your emotions are.

You'll all have to let us know how treatment goes.

-Amy

[deborah0904]

I definitely understand what you are saying!  I'll be praying for you as you begin your treatment.  Take care!

[meg321]

I totally agree with you,  I would love to find or start a support group here.  Its a small town and it will probably have to
start one.  BUt i wil first look and ask around to see what I can  find.

I have no problem at work, my boss works with me and my illness, even correcting errors I make now...like overpaying someone by $200.00.  He just tried to fix it.  He will learn my job yet.

I dont know what I did but yesterday after work i was very tired and tried doing more.  I couldnt breathe good and finally had to lie down, then my chest hurt and my whole body and I woke up sore thi morning, cannot move my neck much at all.  Slowed me me down this morning, damn and i wanted to do things.

but it will get better..you have a good day !

hugs, meg

[Fluffysmom]

You have a lot to look forward to; learning about Copaxone, hopefully stopping the progression of your MS right in it's tracks; having a diagnosis!

You could join an MS support group if there's one around you, and make new friends, talk about this new journey in person.

You could become an activist; learn about your rights at work, sign petitions for increased MS research, get MS newsletters.

You can share your continued journey with those of us still in limboland.

You have a large family here that you'll always be a part of.

Kathy

[sllowe]

Uh, you weren't going to be let outta here anyway, Missy! You are stuck w/US!

Thank goodness, for these answers, Meg.

I'm glad you have a confident neuro....

On to the next phase!

Here for you,
Shell

[meg321]

Now i dont have anything to look forward to so its a different journey now.  Feels strange ..

meg

[doni54]

Hi Meg,

I am so very glad that you got your dx and got out of this place called limboland!!  I don't really know how I will feel if and when I get a dx, but probably much like you.  Putting a name to the monster will be a great day for me.

Take care and know we are all here for you.

Hugs,
doni

[Wobbly]

well, good for you to finally get out of limboland... I hope you care ok with this..you seem to be fine so far... take it easy and know that we are here for you..

how long did it take for you to get a DX..did you have lesions in your brain, spine?

let us know..just an update...OK

take care
wobbly
undx

[meg321]

Thanks everyone, i will be glad when it is really final.

I am not sure, Rendean, if i should congratulate you are not, bu neither of us are going anywhere.  It is good to know though.   And i am not in your shoes either...i hope you can work it out with the bosses.  Good luck with that !

hugs, meg

[Trace420]

I'm glad that you have answers.

As a limbolander, I THINK that's how I'll feel if I get a diagnosis, but who knows?

We are here for you if you do get to feeling blue.

[rendean]

Hi,
I, too, got my dx today. Unlike you, I am ambivalent about the dx. I expected it, but the reality of it is the pits.  It IS good to finally put a label to it but it also opens a whole other can of worms when it comes to  my bosses . They've noticed and accomodated for my "bad days' they naively thought were temporary.

I'm happy for you to find relief in your dx. It DOES help to know one is not crazy and  there is something really wrong.

Guess we'll both be here for a long while to come.

Rendean

[Erin0313]

Meg,

Congratulations! Yes that sounds weird but we all know that limbo land is a tough journey and like you said at least you know what you are dealing with. It is so much easier to say I have MS then the doctors aren't sure.

I do agree with Lulu though. Once the initial high of finally be diagnosed wears of the reality can be harsh and scary so remember to tell your doctor how you are feeling physically and emotionally and most of all if you do get blue or overwhelmed reach out to all of the great people here that care and have been there.

Good luck. Keep us posted with the FINAL dx and take care

Erin :)

[Lulu54]

and we're glad we're stuck with you even though the MS dx su cks!

[Lulu54]

Hi Meg,
Well you've made it to the other side of the mountain - don't be surprised if the new reality of this hits you on occassion and makes you blue.  I know for now you are just relieved to have the dx.  

The sarcodoisis dx needs to be taken off the table because it can mimic MS in many ways.  When your copaxone starts be sure and stick with it - it can take a while to adjust but it can be done.  

Be well my friend,
Lulu

[ChunkyMonkeysMommy]

Yay! (yay?!) I know what you mean. It may sound strange, but it is nice to put a name to it and know what you're facing. And nice to know that you're not crazy! At least, that's how I felt. My old docs always dx'd me with some silly things or treated me like it was all in my head because they didn't see anything wrong on a normal blood panel. So, welcome to the "I'M NOT CRAZY!" club! :)