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Multiple Sclerosis Community
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Avatar universal

MS flare up symptoms?

Hi.I was diagnosed with MS in Dec 2014 and have been doing ok. This last week though I have been having the worst and most scary flare up of my life. My symptoms are burning pins and needles in my arms and  feet are painful and uncomfortable heat sensations that are mostly in my feet. Are these common symptoms of MS flare ups? Now I am very stressed about the thought of medication. I was looking at copaxone but read studies that it increases the risk of breast cancer being an immuno suppressant so I am very scared. It also says it can cause weight gain and people have painful injections with huge hives and welts. I looked at tecidferca too and know girl s who couldnt push through the side effects if stomach pain and flushing they were so bad. I am very scared. Please help with any advice especially if you are on the drug. Not sure they are worth the risk. I am losing my mind my flare up is so bad right now. Its like I want to crawl out of my skin.
3 Responses
5112396 tn?1378021583
Copaxone is not an immunosuppressant. It's technical name is Glatiramer Acetate, and it is an "immunomodulator". It functions in a way that is not suppression of the immune system. Think of it as more of a decoy. It shifts T cells from Th1 to Th2. In other words, it's a little more sophisticated than just tamping down the immune response.

If you are in a severe current flare up, any disease-modifying treatments you begin now will not effect it. That is what courses of corticosteroids are for. Methylprednisolone (a.k.a. Solu-Medrol) administered by IV is what is typically prescribed for acute, currently active relapses. This may be something to discuss with your neurologist or MS nurse.

As for disease-modifying treatments, there are so many options available these days; multiple orals drugs, injections, infusions. It can be a little overwhelming finding one that's right in any stage of MS. But fear is not the best decision-maker. Any treatment decision is a very personal one, but having a decades-long relationship with an unpredictable illness is tough enough without thinking that my future includes the question "What if?". What if I'd fought this thing with everything at my disposal? What if I'd understood the risk was worth the benefit? The fact that I'll never have to do that have already providing immeasurable psychological benefit. I'm not rolling over for this disease. Side-effects can happen. Sometimes you have to kiss a few frogs to find the prince, but again, don't cede your decision to fear.
12099710 tn?1423427020
Flare ups are scary and its understandable why it's so nerve-wracking. Before you worry, try giving your doctor a call. They can talk with you about the symptoms you're having and options for management, which may include medication. But if you have a good doctor you like, then they'll be willing to work with you discuss all your options, including any concerns or worries you have - ultimately to find what's right for you. I'm sorry you're going through this, and hope the symptoms let up soon..
Avatar universal
I have MS and have had it for more years than I care to tell. I have taken tecfidera but was taken off after a month due to the white cells going crazy, the nurse did not explain but I wouldn't take it. I was also on avonex but the side effects made me ill and unable to walk. Now I am on tysabri infusions and I think it is a miracle drug even though it has killed about 8 people and was taken off the market because of that then put back on since the people loved it so much.  It helped me although I am now unable to walk and am in a wheel chair. I can answer anything about MS. hope this helped
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