Welcome, this is a good place for support. If you haven't already looked, you may find the Health Pages in the top right to be very useful. There are topics on explaining tests and on "Lesions vs Symptoms". If you are dx then many will concur that you should be on a DMD (disease modifying drugs). The purpose of the drugs are to slow down the progression of the disease. Even if you have no symptoms MS is continuing. The brain is very large and your MS may never affect an area you notice, then again it might.
Others will be along to offer more advice and insight. I'm still in Limbo Land and others with a confirmed dx can offer more advice.
Thanks Jules .. Limbo Land is a weird place to be, isn't it? The more I google the more confused I become :)
when do you see the Neuro for your results...sorry, I couldn't read your whole post...my eyes aren't doing so well today and if the post is long...it blurs ...
Have you seen your Neuro for results??
have they mentioned MS?
let us know..
Welcome to a good place to ask questions. I'm sorry to hear you have been diagnosed with MS, but please know it is a very treatable disease.
My symptoms, like yours, are very mild, and don't cause me much problems yet. That is the purpose of the DMD's - to slow or halt the progression.
Right now I have lots of brain and cervical lesions, some enhancing, as well as black holes, and most of them are not eloquent - they are not speaking out in ways that my body hears (yet). I keep using the word YET, because I believe in my case I will worsen if I don't start drugs soon.
You lab results sound a lot like mine ....
I hope you will read a lot here and learn all you can aboout MS. Once you have the knowledge you will be so much better at figuring out what you want to do next.
When do you see your neuro to discuss all of this?
Stay in touch,
I have MRI of spine tomorrow, then appointments with two different neuros next week to discuss all the results and treatment options.... looking forward to some definite answers :)
Hi, Assemblage, and welcome;
It seems you are very organized in your quest to be sure what is going on with your body. Absolutely continue to keep all your medical records, test results and so on, for you own use and so other doctors can make copies of them.
You certainly have a very abnormal brain MRI. Some of the lesions mentioned are in places typical of MS, others aren't. You ask how this could be MS, considering your mild symptoms. The answer is that lesions on the brain very often are 'silent' rather than 'eloquent.' That's a good thing. We want to keep them silent, no matter what their cause.
The radiologist reading your brain MRI is suggesting 3 possible reasons for the abnormality.
**demyelination (he doesn't mention MS specifically but that would be the logical infence) of an abnormal appearance and thus not typical
**Some kind of atypical infection
**Small tumors that have broken off from a bigger one elsewhere.
That's all the radiologist knows about you. No other test results or impressions to go from
Then the neuro takes over. Yours apparently has agreed that all 3 of the radiologist's suggestions should be investigated. That's why you had that extensive CT scan, looking for a primary tumor. Luckily, none was found. He also seems to have ruled out a TB infection, as well as mnay other infectious possibilities. Good. I too am unsure about your LP results, and will look up intrathecial synthesis, but in any event your LP was not normal. You mention several other tests that came out normal, especially the vision tests. That's fine. Many MSers but not all have vision issues.
Have you had thyroid tests, or a Lyme disease check? These need to be ruled out. Also, a number of possible MSers turn out to have other diseases with similar symptoms, including lupus and fibromyalgia. You don't mention these, but possibly your've had the tests.
Your neuro's final conclusion seems to be that you have MS, presumably by a process of elimination that includes his findings on neurological exam. Did he remark that any of his tests (strength sensation, balance, etc) were abnormal?
I'm not sure whether you've gone through this whole mental process on your own. Very possibly you have, but there are other readers here who might be in your position, so it doesn't hurt to restate things.
If you feel you have had all possible MS tests, yet still hesitate to start on medication, then I suggest taking all your test results to another neuro for an evaluation and another neurological exam. In any case, if it seems that MS has been proven beyond a reasonable doubt, make sure your doctor is a MS specialist. Neurology is a big field.
I do understand that what you thought was some minor disorder has now grown into a life-altering monster. Most often the members here have the opposite experience of many disturbing symptoms yet lack of treatment. It's good for us to meet more of you for whom MS was just sprung on unawares.
One final thing--Once you are satisfied as to diagnosis, please do start one of the disease modifying meds. They can make a lot of difference. We have complete info on these and a great many other topics in our Health Pages v(click at upper right).
Good luck to you. And let us know how your next MRIs turn out.