I have MS and I have atypical migraine. With atypical migraine I go blind in one eye and my whole left side goes numb. Sometimes I get a head ache other times the other symptoms. Sometimes I have headaches last a week with symptoms.
The difference is now that I have migraine medicines which work is when the medicine starts working symptoms go away. My visions clears up and my numbness and weakness on the left goes away.
My MS symptoms do not respond to migraine medication.
People with MS get diagnosed with just Migraines by accident. I have never heard of accidently being diagnosed with MS when you just have just Migraines. I had a doctor think my MS was strictly migraine but she was a headache specialist and ignored my MS MRIs with legions
Many people with MS have migraines as well.
When I first developed MS symptoms I was DX'ed with migraines. The MRI they did showed only that I had abnormal atrophy of the brain for my age, no lesions or any other problems noted. I also was not experiencing any kind of headache at the time. In fact the migraine medicine actually gave me headaches. LOL
So yes people do get misdiagnosed with other things, including migraines when they actually have MS. I have been misdiagnosed with about half a dozen things before my MS DX in 2010.
Hi and welcome to our little MS community,
Unfortunately, misdx can happen but you need to keep in mind that MS has many mimic, and with many other conditions producing similar sx's, working out the correct dx can take some time. With test evidence, the MRI is only one part of determining the dx, lesion location, demyelination etc are heavily weighted evidence but MS produces clinical signs of lesions, so a persons medical history and clinical evidence is also important.
I generally think with any dx, it's in peoples best interest to get a second opinion, even if its only going to clear up a lot of the doubts in your mind, but with the discrepancy of what you've been told regarding MS, It would be better if you seek a second opinion with a Neurologist that specialises in MS.
That's not to say that MS is the most likely dx, Migraines do cause lesions and similar sx's to MS, as do mini strokes (TIA's) but if MS has been suggested as an alternate dx it just makes sense to me to find out. I'd also recommend you get copies of all your 'prior' MRI's, neurological assessment reports etc because the evidence gathered over time, sx history and changing clinical signs should all be useful in helping to determine what is going on with you.
Hi whilst i was looking up something for someone else i came across this on migraine and MS, that i thought might be of some insight......
"Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache.
One report noted that migraine headaches were more than twice as common in a group of MS patients than in a matched group of people without MS. Other investigators found a prior diagnosis of migraine in one-third of the MS group being studied. A third study found that 20 percent of a sample group of people with MS had a family history of migraine, compared to 10 percent of controls, suggesting that there may be a common predisposing factor to both MS and migraine. Vascular or migraine type headaches have even been reported as the first symptom of MS."
Those are called hemaplegic migraines (I may have not spelled that right, but the % of people who have them is unusually low. I was diagnosed with them back in 1981. My entire right side would go numb along with the eye problem but no headache, thus atypical, but hemaplegic is their name. I don't feel so alone now! Someone else I know has them!
Thank you to everyone for your posts. I am definitely getting a second opinion. Lesions alone do not alarm me because like you said they can be caused by several ailments. What concerns me is the myelin deterioration. Also the fact that here I am over a week out with same or worse symptoms
Now I feel like my food gets stuck. .. This is the most uncomfortable symptom any suggestions for relief?
It is simple but make sure you drink water while you eat and not with ice. Water is better than other liquids. Eat small bites and drink water in between.
Thank you this helps a lot!
And keep your chin tucked in when you eat as this opens things up as much as possible for food to pass through.