MS without brain lesions?

[cassrox]

I suffer from classic clincial symptoms of MS - numbness and burning in my arms, legs, feet and hands, numbness in the right side of my face, blurry vision in the right eye, dizziness, clonus in the left foot....I struggle to walk, stay exhausted, have trouble sleeping, have throat constriction and feel like I'm choking, but no lesions showed up on my brain MRI.

I've been diagnosed with fibromyalgia, and until I got the results of the brian MRI, my neuro was leaning very strongly toward MS, but now he says that's not what's wrong. I was scheduled for an evoked potential test, but he cancelled that when the MRI cam back normal. That was about six months ago. He put me on topamax, and send me on my way.

Since then, I haven't gotten any better. When I saw my internist recently, she told me it was extremely important to keep my muscles strong in case I was diagnosed with MS - Is it possible the neuro thinks MS is still a possibility?

When I saw him Friday, he doubled the topamax dosage, scheduled a neck MRI and is sending me to a speech therapist to see what's going on with the throat constriction. I've heard the lesions could be on the spin with MS. I just wish I knew what was going on. I'm so miserable and confused.

[SassyGranny]

I can not ever have a mri because I have metal in my face, it is the wrong type of metal plates.  This added to the difficulty in diagnosis but I have lesions on the spine.  The s;pinal tap showed very high protien levels, I had and have many cat scans which show nothing.  I had evoked potenials and every test possible.

I was diagnosed almost 3 yers ago with the onset around 10 years ago.

I have a friend that is active and has not had any relapses in 10 years now.
I have another friend who has not gotten any worse and has not had any relapses for 8 years now.

I hope you are feeling better soon!
Sharon
My Spirit remains unbroken!

[CareBayer]

In the health pages on the upper right side of page there is a article dedicated to is it possible to have MS without brain lesions. You should check it out. Its very informative.