Aa
Mass Media Blitz
The good news relating to Jack Osborne's recent revelation is that MS is in the mass media spotlight. The bad news is that there is a lot of misinformation and partial truth being disseminated.
Time Magazine went right to the source and posted as simple and accurate description of MS as I've seen in the mass media. They spoke with Dr. Timothy Coetzee and Dr. Rosalind Kalb from the Nat'l. MS Soc.
You can seed it here:
Read more: http://healthland.time.com/2012/06/19/jack-osbournes-ms-after-the-diagnosis/#ixzz1yKu61suH
http://healthland.time.com/2012/06/19/jack-osbournes-ms-after-the-diagnosis/
Kyle
Time Magazine went right to the source and posted as simple and accurate description of MS as I've seen in the mass media. They spoke with Dr. Timothy Coetzee and Dr. Rosalind Kalb from the Nat'l. MS Soc.
You can seed it here:
Read more: http://healthland.time.com/2012/06/19/jack-osbournes-ms-after-the-diagnosis/#ixzz1yKu61suH
http://healthland.time.com/2012/06/19/jack-osbournes-ms-after-the-diagnosis/
Kyle
COMMUNITY LEADER
hmmmm doesn't everyone get a cheer squad roaring with applause when ever they walk/stumble/wheel into a room? Oh what a bummer! lol
Over here there isn't any other 'Osborne' news, apart from yesterdays announcement and a couple of short clips in the entertainment section on the evening news, which was of Sharon's very emotional state on the talk show, other than that its not getting much media attention over here, though not totally unexpected because we dont really know them.
It may not seem right to speak of it, but public attention of any condition usually needs someone famous to either be dx with or take up the cause, it does get people talking. Talking isn't a bad thing, I'd rather misinformation didn't happen but I dont think any topic is ever immune, at least people are talking about MS and maybe, just maybe Jack will be raising more awareness that will lead to an easier road to for people with MS to travel.
Oh the other week we had more news attention on harvesting a persons own stem cells as being a possible solution for MS, research showing very promising results and even though i'm loath to say it, a possible cure in some cases, i'm staying tuned to this one.
Cheers........JJ
ps Jane your a hoot lol
Over here there isn't any other 'Osborne' news, apart from yesterdays announcement and a couple of short clips in the entertainment section on the evening news, which was of Sharon's very emotional state on the talk show, other than that its not getting much media attention over here, though not totally unexpected because we dont really know them.
It may not seem right to speak of it, but public attention of any condition usually needs someone famous to either be dx with or take up the cause, it does get people talking. Talking isn't a bad thing, I'd rather misinformation didn't happen but I dont think any topic is ever immune, at least people are talking about MS and maybe, just maybe Jack will be raising more awareness that will lead to an easier road to for people with MS to travel.
Oh the other week we had more news attention on harvesting a persons own stem cells as being a possible solution for MS, research showing very promising results and even though i'm loath to say it, a possible cure in some cases, i'm staying tuned to this one.
Cheers........JJ
ps Jane your a hoot lol
Well, I really like Jack Osbourne now. He sounds like he could fit right in on our forum. What if he's been here and we just didn't know it was him???
I just read that Time article Kyle. It's the best one I've seen yet I think. I was surprised though that Osbourne was referred to as 'young' for a MS dx and that it was referred to as 'early onset MS.' If someone asked me what that was, I'd have said early onset is pediatric MS.
note to Canadians: when I try to watch these clips on my computer I get an 'out of geographic region' message, but can watch it fine on my iPad.
Ojibajo, a few clips available:
http://www.cbs.com/shows/the_talk/video/2248304462/the-talk-jack-osbourne-on-ms-diagnosis
http://www.cbs.com/shows/the_talk/video/2248308462/the-talk-jack-o-had-ms-symptoms-for-years
http://www.cbs.com/shows/the_talk/video/2248312402/the-talk-jack-osbourne-and-fianc-
http://www.cbs.com/shows/the_talk/video/2248304462/the-talk-jack-osbourne-on-ms-diagnosis
http://www.cbs.com/shows/the_talk/video/2248308462/the-talk-jack-o-had-ms-symptoms-for-years
http://www.cbs.com/shows/the_talk/video/2248312402/the-talk-jack-osbourne-and-fianc-
I wish I could have seen the segment. I wonder if it is online. As much as I wouldn't wish this on my worst enemy, I am hopeful this will bring more attention and EDUCATION regarding MS.
Oh, forgot that Osbourne mentioned right when he was dx'ed he had just booked a job he was supposed to start. I guess he was candid about what was going on with his health. His mother who is his manager got an email from the company that had hired him withdrawing the work saying it was too much responsibility with all he had going on. He said he was quite offended and stated "Dont tell me what i can and cannot do" to great applause. The point was made that this probably wasn't legal. Wow, discrimination right from the get go, the reason why so many people don't feel they can disclose. So outrageous in this day and age!
PS to Jane: you are a riot, that actually made me laugh out loud. I'd actually like to hire you to dramatize my mundane life in prose. It involves a lot of afternoon naps, Words with Friends, the occasional pathetic attempt at yoga, having actual out loud conversations with my standard poodle for lack of daytime human companionship, Facebook, and a magazine addiction that has reached the point where professional intervention is required. OK there's just no way to make of that worthy of a People cover. Never mind. ;-)
Just watched him on the Talk and thought it was a really great segment. The audience went a little over the top with the cheering and standing O, maybe they expected him to come out in a wheelchair or something which of course he didn't as his legs are just fine. Once the audience calmed down he quipped, "Geez, you guys are acting like I have MS or something." which I thought was cute.
I liked that they didn't rush through it like on other shows, actually he had two full segments before and after commercials. In thought he did a really good job explaining what MS is considering how new this is to him. He talked about the diagnostic process, MRI, LP, etc. He figures he's had it for 3 or 4 years but only dx'ed 5 weeks ago after a bout of ON which caused him to lose 60% ofnhis vision, which he said is now back to 80% normal.
He spoke about the uncertainty from day to day, and how one can't know what their prognosis will be, and how every patient's experience is unique.
His wife was also on, said they're doing fine, focused on their new baby girrl who was born just 2 weeks before Osbourne was dx'ed.
To your point, Kyle, he said one of the reasons he wants to be vocal about his dx is to raise awareness because so little is known about it.
He mentioned he is treating it with a daily shot - didn't say Copaxone specifically. Sara Gilbert, one of the hosts, said she has a friend with MS who uses yoga and good diet to manage her disease and is symptom free and drug free and teaches others to do so. It always irks me when someone talks about someone having MS but being 'drug free' like some badge of honour. Anyway, this is when Osbourne talked about his treatment and that he's using both alternative and prescription medicine. He described his DMD as an amino acid that's really just like a supplement. That might be a little misleading but a minor detail really.
Overall he did very well and I impressed by his calm and sense of humour. 5 weeks in I couldn't utter those two little letters without bursting into tears!
They mentioned he learned of his dx on May 10. Funny, I was looking at some pics of the Nancy Davis Foundation's Race to Erase MS event this year and I noticed he looked quite somber in some of them. Now I realize he'd just been dx'ed the previous week, and of course hadn't gone public with it yet. That must have been a pretty surreal experience for him. His parents were actually scheduled to host it last year but had to bail for Sharon to cover the royal wedding. Hopefully they'll support future events. I'll be attending again next year....would be pretty cool for a chance to meet Ozzy , if only to elicit a little jealousy on the part of my husband. ;-)
I liked that they didn't rush through it like on other shows, actually he had two full segments before and after commercials. In thought he did a really good job explaining what MS is considering how new this is to him. He talked about the diagnostic process, MRI, LP, etc. He figures he's had it for 3 or 4 years but only dx'ed 5 weeks ago after a bout of ON which caused him to lose 60% ofnhis vision, which he said is now back to 80% normal.
He spoke about the uncertainty from day to day, and how one can't know what their prognosis will be, and how every patient's experience is unique.
His wife was also on, said they're doing fine, focused on their new baby girrl who was born just 2 weeks before Osbourne was dx'ed.
To your point, Kyle, he said one of the reasons he wants to be vocal about his dx is to raise awareness because so little is known about it.
He mentioned he is treating it with a daily shot - didn't say Copaxone specifically. Sara Gilbert, one of the hosts, said she has a friend with MS who uses yoga and good diet to manage her disease and is symptom free and drug free and teaches others to do so. It always irks me when someone talks about someone having MS but being 'drug free' like some badge of honour. Anyway, this is when Osbourne talked about his treatment and that he's using both alternative and prescription medicine. He described his DMD as an amino acid that's really just like a supplement. That might be a little misleading but a minor detail really.
Overall he did very well and I impressed by his calm and sense of humour. 5 weeks in I couldn't utter those two little letters without bursting into tears!
They mentioned he learned of his dx on May 10. Funny, I was looking at some pics of the Nancy Davis Foundation's Race to Erase MS event this year and I noticed he looked quite somber in some of them. Now I realize he'd just been dx'ed the previous week, and of course hadn't gone public with it yet. That must have been a pretty surreal experience for him. His parents were actually scheduled to host it last year but had to bail for Sharon to cover the royal wedding. Hopefully they'll support future events. I'll be attending again next year....would be pretty cool for a chance to meet Ozzy , if only to elicit a little jealousy on the part of my husband. ;-)
LOL! You are dramatic and awesome! I think from now on we should call you Mundane Jane.
Yeah, the histrionics are totally lame. I want to hire that writer to follow me around and provide commentary to my life, so I sound dramatic and awesome.
... "Once again fighting for her life, the irrepressible (and coincidentally gorgeous) JANE, daughter of no-one-particularly-important, suffers quietly through yet another mundane day at her desk. Yea, humanity is lucky indeed to be blessed with her continued presence".
... "Once again fighting for her life, the irrepressible (and coincidentally gorgeous) JANE, daughter of no-one-particularly-important, suffers quietly through yet another mundane day at her desk. Yea, humanity is lucky indeed to be blessed with her continued presence".
Quick note re: Osbourne, he is on the Talk today discussing his dx. Heading out to my MRI and will post after I get a chance to watch it.
It stinks that he has MS. Because he is a celeb, with broader reach than Ann Romney, a lot of people are hearing about MS. All aspects of it. This is a very good thing.
I'm just not sure People magazine does anyone, other than themselves, any favors with the "fighting for his life" histrionics.
I'm just not sure People magazine does anyone, other than themselves, any favors with the "fighting for his life" histrionics.
I saw some other article where Jack was paraphrased talking about suffering symptoms for a "long time" before the diagnosis, and how he was very sad and angry during the final stages of testing from having to wait so long to find out what was wrong. I thought it was nice to see that experience mentioned, since it is something so many of us go through that rarely gets attention.
I know that people with MS struggle to see and walk. My complaint is with fighting for his life crap! MS is not a death sentence :-)
Hate it when they get it wrong. But, I can relate to fighting for the vision. Depending on what he was dealt, he can be in that situation.
A friend of mine was fighting to walk, and see, you name it - tried everything, and the only resolve he had was stem-cell transplant in Chicago by Dr. Burt. Saved his life, literally.
Not sure of the severity of Osbornes dx., but do understand it can be 'that' bad for some individuals.
A friend of mine was fighting to walk, and see, you name it - tried everything, and the only resolve he had was stem-cell transplant in Chicago by Dr. Burt. Saved his life, literally.
Not sure of the severity of Osbornes dx., but do understand it can be 'that' bad for some individuals.
OMG! People Magazine has done the exact opposite! The cover blurb on the new issue says:
"I won't let my son die
Exclusive Interview
Sharon and Jack Osborne on the diagnosis that has the 26 year old fighting to save his vision, his future and his life."
This is such inaccurate, alarmist bulls_hit!
"I won't let my son die
Exclusive Interview
Sharon and Jack Osborne on the diagnosis that has the 26 year old fighting to save his vision, his future and his life."
This is such inaccurate, alarmist bulls_hit!
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