Mayo reviews

[eham05]

Hello,

I'm new here and have been reading through old postings. I'm curious as to why so many people are against the Mayo Clinic? I myself am a patient there currently undergoing diagnostics, though I received a clinical MS diagnosis upon first appointment in November, at this time my other cranial issues and viral issues are also being examined. My Neuro there was able to detect issues in one visit that other facilities could not in several other states- including Stanford
Over the course off seven years.

I am part of the campus clinic/hospital in Jacksonville, FL, so I'm not sure if there's a varying degree of treatment at the other campuses.

Have any of you been Mayo patients or known others whom have? Is there something I'm missing? I'd appreciate input, thanks.

[BittyBee]

thanks for the responce. As soon as I get some time I will make sure to look up the clinic in Jacksonville.

[Mystery970]

Yes they did, I was there for 7 days.  The visiting neuro (from Rochester campus) said in a report that i received 3 months after getting home that this could be MS presenting as fatigue. I am currently on the wait and see train as none of my MRI's are showing lesions.  I actually was fairly impressed with the diagnostic work up but extremely disappointed in coming home with nothing and still so sick :(

[doublevision1]

ON the other HAND

damn autocorrect!

[doublevision1]

I think one of the main issues some people have with Mayo is its conservative approach to treatment.  Mayo claims that in early MS with mild symptoms, no treatment is necessary.  This flies in the face of what is generally agreed to by other MS facilities, that treating MS early provides patients with the best chance of slowing down the disease process, minimizing the number of releases in RRMS, and mitigating permanent neurological damage.  There is no way to predict so-called 'benign' MS, and any neurologist who applies that label at the front end of the disease is doing their patients a huge disservice.  Benign MS is a label that can only accurately be applied in hindsight.  

In the other and, patients with the MS mimic NMO are in good hands at Mayo.  They are world leaders in NMO research.  

[eham05]

Mystery,
Sorry you had a bad experience! I don't know much about the AZ campus. Did they run any tests at all?

[eham05]

Here's my doc:

http://www.william-cheshire.com/MD/Welcome.html

He specializes in trigeminal neuralgia, dysautonomia, Neuro ethics, and diagnostics. He said he will oversee my case but in addition send me to a mayo ms specialist later after testing is complete. There's a Centers fir MS campus in Jacksonville co-ran by the MS specialist at Mayo. It's a 6 hour drive one way for us and the process is costly in travel. After two trips for diagnostics, I'll have access to four different specialist consults though so i must do it. I like that my results and records are accessible through my patient account, the same day!

[Mystery970]

I went to The Mayo Clinic in Scottsdale 1 year ago.  They told me they didn't know what was wrong, give it 2 months and come back if I was still having problems.  It's been a year since and I'm still sick and really can't afford another trip out of state for this!   The diagnostic process was incredible since it was all at one place but they did nothing different than what my local doctors had already done and I didn't "find my answer at Mayo".  I guess I am bitter towards all the doctors - Mayo or not - that throw their arms in the air and say "I dunno"!

[BittyBee]

I personally have not been there. I've been wondering about an MS specialist for myself. I live in Florida and I could probably manage to get to Jacksonville. I always like to hear good things from patience that have seen a doctor before I go, and since you like your doctor, may I ask who you see (as I suppose there are probably a couple there)?

I still want to look for someone closer, but I would still like to hear your experience if you don't mind sharing.