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Hi Nat Ty and Zach's Mom:
I didn't want to give my feedback until I could give a solid response. I was unsure that it was working at first. However, I take it during the week and have seen a vast improvement! I feel like I'm able to focus at work once again. I still long for bed at 11 pm and am once again refreshed in the morning. I recently told my husband I finally feel human again.
I hope this message finds you well and you are enjoying the weekend!
Regards,
Lizzie
Provigil saved my life! And now that it is generic it is cheaper :)
Blessings!
Gave me a bit more energy but jitters all day and bad crash around 4 pm. I can be sensitive to stimulants, though. :)
I take 200mg twice each day. It's not a miracle drug, but it does make a difference.
I just started Nuvigil (armodafinil) about 2 weeks ago which is basically the same thing as Provigil (modafinil).
The first 5 days it was great. I could drive to/from work without falling asleep, I could sleep a normal 8 hours instead of 12 (that's still left me feeling exhausted), I probably got more work done in those 5 days than I do all month lol!
BUT now I feel nothing. For several days I thought I forgot to take it because I was getting sleepy come noon time. So I don't know what to think at this point!
As for getting approval, my doc said the easiest way was to put that it was for "Shift Work Disorder" so that's what he did for me. The nurse had put for "MS Fatigue" and he had her change it because he said this was the easiest and it was, dropped off script and picked it up the following day.
And it's not false, for me anyways, technically Shift Work Disorder applies to anyone that works outside the "normal" 9-5. So if you start before 9am or work past 5pm then it does apply to you.
Well good luck to everyone and have a Merry Christmas!
I've taken it for years--since 2008 and it works wonders for me. I think better and don't have that icky beyond explanation fatigue.
The only problem is that it's been horribly difficult for me to get approved. The sleep doctor just called and told me that the insurance company denied it after sending the prior authorization forms.
I told my neurologist, and she told me that she'd give it a try. I just got a call from Express Scripts and they said that they received the necessary paperwork for a drug prescribed me and it was approved. I'm looking daily to see what was approved, but can't find it on their web page. This leaves me confused and sitting on pins and needles.
I will have to retire if I'm not taking this medication!
Deb
Hi! I have tried it a few days but opted to wait for really bad days to take it for now.
My energy levels are better while it is cooler out so I will ikely be taking a lot of it starting in May.
I guess I still have a lot of learning to do with meds. The first day I took it I was so excited and felt good so I totally overdid it and paid for it even while taking it for another couple of days.
I guess it really isn't meant for you to do more while taking it, but doing better with the "normal" stuff and get through the day better.
Lesson learned and I am grateful for any relief it can give on the days that I need it.
Corrie
I take 100 mg in the morning. Some days it works like a charm, other days it doesn't do squat! I could up the dose to 200/day, like these days when I'm due for my Tysabri.... we'll see if it works.
How's it working for you? Still is doing good for me. If I take half of the two hundred I am tired half way through the day, but when I take the two hundred I am able to get through the day.
My insurance had to have prior auth first too! They then approved it. It was either approve it or not being able to make it through the day. I can tell a difference when I do not take it!
Lulu so far so good!!! I am so thankful. I still get tired, but not nearly as bad. Before I was in tears! My daughter has bball a couple times a wk and I just stay after school and work, sometimes I would lay in the floor I was so tired!
Thanks everyone for the advice and encouragement!
I tried it but it didn't work for me.
I take it. It's definitely not a miracle pill by any means, Like I was hoping for, but it made it possible for me to get through the work day. I still suffer from fatigue but I can at least make it through the work day. I am however usually ready for a nap when I get home from work though. I take 200mg twice daily.
I am happy this is working well for you.
Corrie... U will probably be approved anyway... Our insurance really just wants the paper work to back up the decision usually. :) but either way you have extra justification for it :)
Lizzie... Extra spoons are wonderful! I hope it works well for you!
It must be that time of year! I just got my RX for Modafinil yesterday and took 100 mg about an hour ago. Still waiting for special authorizatiin but I suggested to the doc that I had read somewhere probably on this forum that using my sleep apnea for the reason to prescribe it but work easier than for MS since I did not try Amantadine previously.
Good luck to everyone!
Update:
I emailed my Neuro this afternoon and she faxed in an Rx for this medication this evening. At this point, I will take any extra spoon as C referred to it above.
Cheers to All,
Lizzie
Thanks for the sweet words and good info, Mommy of NatTyzach!
Sweet LuLu, I'm only jumping on the MS Fatigue bandwagon because the baby is 9 months now and she's really easy. She slept all night since she was 7 weeks, is always happy and tells us what she wants. LOL. She's a super baby :)
However, my naps are seldom but have gone from an hour and a half or so to now, 5- 6 hours. And I still wake up feeling groggy. Work fog starts at 10am now and lasts until I leave at 5. Boo. I so appreciate your advice, you are ALWAYS so helpful to me.
Hope you are all doing well!
Lizzie
Lizzie, I wouldn't be so quick to jump to the MS Fatigue explanation if you are also dealing with a new baby. There are so many changes going on in your life, perhaps some of those are creatingcompounding the fatigue. Be sure to talk with the doctors and see what you might try - the fatigue can be awful, regardless of the cause. hugs, Laura
Thank you, Lizzie! I feel completely different while taking it. I have energy now. Congrats on the new baby!
Thanks for posting this thread. Fairly newly dx'd and am just beginning to feel fatigue. I was blaming my tiredness on having a new baby but sadly now, I know it is not the case.
I hope all is well with all of you, you guys are always in my thoughts and not far from my heart.
Lizzie
I'm glad to hear that is done and now you can see if it works for you. It does for most people, but not everyone!
Thanks! They just approved it today.
It was approved today! I asked the other day how much it was and it was over $800!!!! I thought they would say 20 or so. That's crazy! I am thankful to try it. I am tired!
I as well was denied alertec and they chenaged to Modafinil bc it is cheaper and needs to be tried first (the are the same.. Just cheaper)
My neuro still had to send in authorization papers to have coverage approved. It was no problem for ms related fatigue.
I did try amantadine first which did not help so that could have been helpful in having the Modafinil covered.
Hope it goes though for you!! It is great for me!! :)