Introduction

[sennefer]

Hi,

I would just like to introduce myself to the group.  Even though, it has been done via setting up an account here, I felt that it maybe necessary to do it formally.  I am a neurology patient who start having neurological attacks while on active duty in the Army.  I eventually was sent to Walter Reeds HOspital at Washington DC.  There I was treated at the neurology clinic and the Army decided after the beginning of a workup there.  I would do better for treatment.  My neurologist narrowed my condition down to either demyelinating or migrainous diseases. That was 2005.  
Finally, I hope to be enlighten by this group.  Please accept me as part of the family.  Anything you like to know, just ask.  Thanks.

[sennefer]

Hi,

Yea I got that when I entered the forum name into the search box.  And, I did use your link to the forum too.  It was the same forum gotten when looked for it.  
But, where do you enter comments?  Is it the box labelled Medhelp question located over to the right.  Or, is there a like box like this one?

Thanks.

[sllowe]

Sure...not a bother at all, should of left the link initially...

http://www.medhelp.org/forums/SURVIVING-NEUROLOGICAL-LIMBO-LAND---NO-DX/show/553?controller=forums&action=show&id=553&camp=msc

[sennefer]

Hi,

An update.  I looked up the forum invited to by entering the name into the search box.  I did get the site I think.  But, I could not at add comments.  So, if it is not a bother could you supply intel?

Thanks,

[sennefer]

Hi,

Yes, my I take meds for symptoms related to MS.  Meds like baclofen, Tizinadine, gabapentin, and others for spasms and spacity caused by neurological abnormalities.  I take diruetic and metlezine for balance problems related to neuro as well.  I am also on steroids for neuro anomalies  also.  The neuo doctor want explain my past 19 MRIs results but insists that I continue yearly MRI diagnostic studies.  I was saratripan for migraines and back of eye pain.  And, my eye doctor although saids I have optic neuritis, defers treatment to neuro clinic.  As for other diagnostic studies, my neuro doctor ordered a nerve conduction study.  It reveals bilaterally p100 disfunction.  So, there are lesions on my optic chiasm and eye nerves.  I have had as stated earlier 19 MRIs.  About 12 lesions have formed and according the my neuro doc three of them have now been enhancing for one year now.  A study I review from another site said that there is a two percent chance of MS patients to have that MRI result.  

Yes I would love to join in with you on the other site mentioned.  And, yes I will make sure to give you a shout out upon registering there.  Thanks for the offer and your kindness.

[figuerpa]

Welcome! This is a great community. I come and go out of here, depending on my daily life. Seems to be very hectic as of late but I am around and lurking most of the time :)

Hope to see you around here often :)

Paula

[sllowe]

Hey Sennefer,

GLADLY welcome you with open arms :)

Thank you very much for your service. I am one proud American, and enjoy the freedoms you work for.

How are you feeling? I'm sorry your experiencing neuro problems, but glad to read the doctor has narrowed this down for you. Are you taking anything for symptom relief?

Since MS is a disease of the CNS, I'm sure with a neuro problems and joining us, you must experience some of the same things we do. Hope our forum provides you some comfort as we post tips, coping mechanisms etc. Hopefull more will come on to welcome you. You may also find some addtl. support in the Limboland forum. That forum is made up of those who are undx'd but experience what we do as well. Many members there, were here as well, so they opened up their own group - it's great there too. Hope you have the opportunity to pop-in there too. Be sure to say hello from us if you do.

Hope to see you around.
-shell

[SarahL2491]

Keep good notes, if you read posts from our forum vets, you will see they go thru many trials trying to get things done!

Welcome to our little corner of the web