Ms question

[Meri1323]

I haven't been diagnosed yet, but every symptom seems to point to MS. I have had symptoms since June 2015. They mostly include numbness, weakness and tingling on both sides of my body, I have had cramping in the back of me legs and bottom of my feet, pin prick feelings on my arms/legs, itching on the back of my head, feelings of being overcharged (words tumbling out faster than I want to say them, arms feeling over active if that makes sense), I am hyper reflexive, difficulty concentrating, forgetting what I am doing. Recent symptoms include pains in the Center of my chest and over my heart.  My heart will race at random times.  It will feel tight, I am short of breath and when bad I will get palpitations which then make my hands and face go completely numb and I get dizzy/lightheaded. Of course anxiety and stress make these worse which *****. I have had MRI's (all clear), EEGs, the electrode test where they stick the needles in you to check your neurological function, every blood tests a few times (no Lymes, Lupus, ALS), clear ECG, Ultrasound of abdomen. The only thing that was ever raised was my Copper. After testing it a second time to make sure I didn't have Wilson's disease it was normal. As everyone can imagine I am frustrated, angry and extremely scared as no one can find the cause and my symptoms are getting worse. If anyone has experienced anything similar I would love to hear your story and insight you might have.  Thanks in advance!

[aspen2]

Tingling, cramping,  heart rate issues, and anxiety can also be a sign of mineral deficiencies -- be sure to have a full vitamin/mineral panel done including magnesium.

Supplementing magnesium helped me get rid of my "whole body" symptoms, which are not caused by central nervous system lesions as ms is.

There is an ms mimic caused by low copper and too high a zinc/coped ratio hiwever that's unlikely here.

How do you sleep?  A sleep study is recommended as well, because cardiac and neurological issues can both escalate in periods of sleep deprivation.

Keep us posted!  It's so frustrating not having answers.  

[supermum_ms]

Hi and welcome,

I know it's very frustrating being in limbo but honestly, if all your neurologically related test results have been normal ie neurological assessments corroborating abnormal clinical signs, brain and spinal MRI's, nerve conductor tests, visual testings etc etc etc and the symptoms your experiencing being bilaterally in both upper and lower, there wouldn't be anything suggestive or be consistent with the causation being due to a neurological condition like MS, and more to suggest it's inconsistent so from my understanding MS is less likely the cause of what you've experienced...

I don't know if it will help pin things down at all but if your hands and face go numb and you get dizzy/lightheaded during these heart racing/shortness of breath episodes, what you are describing are the common signs of 'hyperventilating'. You've mentioned experiencing anxiety so you 'might' be experiencing panic attacks if all your heart related test results are normal but because my son was dx with panic attacks that turned out to be an allergic reaction, to believe it or not to his anxiety medication, i would suggest you consider looking into side effects of any medication you are taking.

Infection or inflammation can temporarily effect your copper levels but i honestly don't know much about it to guess if there could be something more to it....If you are additional feeling buzzed, jittery, sped up, hyper and talking too fast, i'd definitely recommend looking into this potentially being an allergic reaction, i have too many family members who react to chemical, additives, colouring, preservatives, hair products, sprays etc etc and describe feeling the same way when expose to their trigger(s) to discount the possibility, worth considering at least, right?

Hope that helps....JJ  

[Courtstar21]

Have you been back to the doc since? Sounds like you still might have a nerve issue