Hi, firstly I've got to tell you your profile says your male and i've no clue why your photo has cropped off your head like it has, never seen that before, some what unfortunate end result. lol
Seriously though, I noticed that you've been dx with chronic fatigue, 1 herpes simplex, reactivated mono (EBV) and low vit D levels. I'm thinking that even though the chronic fatigue was dx a very long time ago, and hasn't been as bad since, any one of these added dx could be why your 'suffering' more now, basically flairing up the CFS.
My advice to you would be to find out if any of these dx's are affecting your CFS, which is an MS mimic btw and if it at all explains your situation. The other thing, is if your tests show evidence of nerve damage, what explanation have you been given for this, is it common for CFS too?
Sorry probably not very helpful, maybe someone else will chime in on this.
I used to live in beautiful downtown Highlands, on Shore Drive :-)
Have you had an MRI (with and without contrast) of your c-spine?