Hello !!!!

[nicky0421]

Hello Everyone my name is Nicky and I am from Louisiana, I was wanting to chat with people diagnosed with MS, I was wondering how many lesions classifies you with MS, I just had an MRI with a new lesion now  I have 3 . I was hoping to hear some stories. Also does any of you suffer from headaches? Thanks and I look forward to chatting


Nicky*****

[huff1711]

Hi Nicky and welcome to the forum. I'm lucky, I hardly if ever get headaches. I've been diagnosed for over a year now and have 6 lesions on my brain, and 2 on my spine. It sounds like a lot but it's nothing compared to most people on here.

[rendean]

PS If you are comfortable doing so, could you share a little bit of your history and if you are diagnosed or not.

Ren

[rendean]

Hi Nicky!

Welcome!  Yes you've landed in the right place. Lots of people to chat with , commiserate with, laugh with and share feelings no else can understand. Below is one of the links, Lu was talking about:

http://www.medhelp.org/health_pages/Multiple-Sclerosis/Diagnosing-MS---The-McDonald-Criteria-revised-2005/show/370?cid=36

There is a wealth of information in the Health Pages. If you can't find something in the Health Pages then  there is another feature called the "Search this Community" found at the top of the right hand column that includes Recent Activity. Here you can ask a specific question and it searches the archives for matches.

I have headaches and migraines. MY headaches were new onset at 45 so I was sent to a general neuro who said lots of people with MS have my type of headaches. I had no other symptoms for about 5 months when I experienced syncope (passed out momentarily) and subsequently splitting my head open and giving me a ticket to a 4 night stay at the hospital.

Before I even went to the hospital (which found nothing significant), the neuro said this is MS. He told me that up to 35% of MS patients suffer from migraines and headaches.
Take my experiences with the caveat that this is how MY MS presented itself. Everyone's MS is unique to that person but we all share similar experiences. And the most important fact about this forum is we can not diagnose you, we are not professionals or doctors with one exception (Quix but she is on leave right now).

Five years later, I finally received my "official" diagnosis. I had only one lesion "specific" for MS but it was in the corpus collosum which is prime real estate for MS to sit itself. My diagnosing neuro is older and is used to making the diagnosis without MRIs.

So, this is a tidbit of my history. So, I didn't meet the lesion count.

Sorry about the length. That is common here too, lol. Just separate your post in to small paragraphs so it is easier to read. Some of our posters have vision problems and some even have to use all caps. They are not yelling, they simply need the caps so they can read it.

Welcome again,
Ren

[Lulu54]

Hi nicky, I have had an "almost headache" all day - I've had this one for about a month now.  Many doctors will tell you MS doesn't involve headaches but there are many here who feel different.

The number of lesions, according to the McDonald criteria varies according to the other "evidence" of MS.  Have you read the criteria?  it can be incredibly confusing, but there is a copy of it in our health pages ----- access them through the yellow icon on the upper right side of this page.

Lots of people here to chat with but the weekend gets slow.

be well, Lulu