I am on Ampyra. I have seen a great deal of improvement. My legs are not all the way better because of other issues but at least I don't need my cane anymore.
has anyone tried ampyra and had improvements with this problem?
Hi everyone
OMG.....i couldnt beleive what i read what luvnGod wrote, i thought i was going mad....i had a MRI scans on my brain to see if i have MS and it came back negative, in 2008. WHO in the world can tell us why are our muscles weak? Its driving me crazy....i diagnosed myself with Fibromyalgia after going to my G.P for two years and not getting anywhere, so i looked at the symptoms and found a answer which was Fibromyalgia. My Dr asked me if ive been on the internet and what did i come up with...lol...lol..he agreed lol..!!
This morning I was reminded of a good example of this in real time. In the morning, I do some stretches. In one, I lie on my back with my legs straight and try to point my toes toward my nose. When I do this, after a bit my feet ever so gradually start slipping downwards, despite my ongoing intention of pushing up. This didn't used to happen and doing this everyday doesn't seem to build up my ability to do this exercise.
sho
As I tell my neuro, "I can do most anything -- for a minute."
And as Toby Keith says, "I ain't as good as I once was but I'm as good once as I ever was."
I sometimes have the stiffness too but it isn't confined to a certain time of day. That can come from spasticity but is also associated with degenerative arthritis.
Hi
I am not diagnosed but waiting around for answers. I am terrible with limb tiredness and weakness. Blow drying hair any physical demands on my left leg and arm make them ache and tired. It's really wierd and I like some others used to be so active I am 33, but only a couple of years ago I was playing badminton ice skating etc and enjoyed keeping fit. I was also a gymnast as a child and well into my teens. Now if I try badminton or other stuff after a couple of minutes my legs can't keep me up I fall over they shake along with my arms because I have been using them, it really is awful, even typing this my left arm is resting on my leg it always needs support when using the computer. But I definately know what you mean about blow drying hair!! Its a real nuisance.