My husband is beginning the process of being tested for MS

[joey94]

But nothing seems to be coming to any kind of conclusion and I think they are going away from that thought.  Anyway, they have found corpal tunnel!  Great!  What about the fact that he can't remember things, slurrs when he talks, sometimes acts like he is about two years old (and I am not joking about that, almost a mentally retarded type of action), is verbally abusive, has no energy, his body hurts all the time, his face sags sometimes, his eyes wander (two different directions) and I could go on.  But it comes and goes.  He always has something, but has good days and bad and then really bad.  Does this sound like MS?  He was tested for Stroke...Nothing.  I'm not sure I can take not knowing much longer.  Any help? Anyone?

[sllowe]

Hi there,

Welcome to the MS forum.  I'm so sorry for what you and your husband are going through.  Please know you are in good hands here with us.

He's in the lengthy workup and it does take so much time, all the while, he's not getting any better.  It's so frustrating, and hard on everyone.  

Are you keeping copies of his records throughout?  What has been done so far? MRIs? Labs, etc?

Can you start a timeline for him?
You can start this by listing out his symptoms and the approx date it started and then list the dates of tests, exams, etc.

Something is surely going on w/him.  I had slurred speech, couldn't walk straight, think, react, and my world was upside down.  I thought I had a stroke, but I didn't and was dx'd w/MS in 07.  Not saying this is what has, just giving you an idea as to the company you are in.

Thanks for joining and hope to see you around.  
Here for you,
Shelly

[buriedinfur]

I've been in limbo for nearly 6 years now - which I know isnt something you may want to hear. I don't have any clear cut answers for a lot of what is happening to me. I've been diagnosed with fibro, but it doesn't answer for a lot of my issues that I currently have.

I'm afraid that a lot of the time there isn't a quick diagnosis, as hard as that is on the patient and on the family. Keep seeking answers - get second opinions. Go to MS specialists if need be.

As for the mental aspect -- you can't put up with him being abusive. I do get cranky sometimes when I'm in a lot of pain, both with hubby and kids, but it's a short lived quick bark sort of reaction rather than abuse (think pms). That sort of activity needs to stop if it's happening.

One thing that you guys can do that is proactive is try to find some sort of pain management group or therapy for him. Dealing with all of this stuff is really hard and overwhelming. You can learn a lot of pain management and other techniques to manage some of the aspects of these symptoms even without knowing what it is. You don't have to wait till he's labeled.

Hope that you guys do well.