Hello. :)
I'm 23 years old and have been progressively developing weird neurological issues since the age of 14. At first, speaking became difficult. I could still do it, but I stuttered a good bit at times, had trouble enunciating certain words (especially words with an s sound), and people were often asking me to repeat myself. No one seemed to really notice I was struggling to speak but me, though. At least they never said anything. I guess they just thought they had trouble making out what I was saying sometimes because I had always been kind of quiet; I don't know. Then one day, my sense of taste just quit working. I was sitting at lunch in the 9th grade and noticed the food tasted like nothing to me. I thought maybe the food was just really bland that day, so I went home and shoved a bunch of hot candies in my mouth, and I couldn't taste them at all. I told my parents I was scared I had tongue cancer, and they laughed at me and asked where I came up with this stuff. This went on for several years. Eventually, my sense of taste started to return, although I don't think it's normal yet. I eventually, I guess, relearned how to enunciate, but I still have issues pronouncing words sometimes, especially when my tongue gets numb, which is another complication I developed several years later.
When I was about 17, I started experiencing random dizzy spells and also began having extreme eye pain when walking outside in the mornings, I guess because my eyes couldn't handle the abrupt change in lighting from indoors to outdoors. I also developed this nagging pressure/pain in my right knee that never went away. I went to a doctor for it, who told me it was just something that teen girls get sometimes. Eventually, that pressure let up, but it comes back sometimes..like right now I have it.
Then once I started college, I began having issues with balance, 24/7 headaches on the right side of my head, and cognitive problems. I used to be so freaking mentally sharp, and now I can barely follow the plot of a movie or book because I forget which character is which and what happened in previous scenes. I used to be a really good writer, and now I struggle to just come up with the words to communicate my thoughts all of the time. I catch myself writing the wrong word a lot, too, like there were times where I meant to say something like "clinic" in a school paper, and I wrote "minute" instead. Weird stuff like that, and SUPER frustrating as an English major. I also began peeing very often and began having difficulty "holding it" long enough to get to a bathroom. I get bad pressure in the center of my chest, too, as well as ringing in my right ear. Randomly, I will experience numbness as well. Most of the time, when I get numbness, it's more of a decreased sensation in my skin in general, but there have also been times when a random body part like my thigh or my tongue went completely numb for a while.
There are other issues as well, but you get the idea. I'm freaking broken.
I've been to a gazillion doctors, so far to no avail. My GP said it was anxiety and gave me Xanax. My first neurologist said he detected cerebral atrophy on my CT scan (without contrast), but he just shrugged it off as insignificant and told me to come back to him in 5 months if I still felt I had a problem. My cardiologist did an echo and stress test, said they looked fine even though my heart rate shot up to 200 bpm pretty much instantaneously on the stress test, and he didn't feel he had to run anymore tests given my age. My acupuncturist said it sounded like chronic Lyme disease, but I quit going to see him because, after 3 months, I didn't feel as though I was seeing any benefits from his herbal remedies or acupuncture treatments. My second neuro just recently ordered an MRI, and now I'm waiting on the results of that. He wouldn't test me for Lyme because he said only people in New Hampshire get it, so I went to this complete jerk of a doctor with a walk-in clinic to get tested for it, and now I'm waiting on the results of that test as well. I recently consulted the opinion of a chiropractor as well. He found some curvature issues in my spine as well as a twisted bone in my hip and a bone that doesn't move properly in my neck, but I doubt correcting those things will cure all of my problems. He said he could test me for adrenal fatigue as well; we're holding off on doing any of his treatments until the results of my MRI are in, though.
So anyway, when I went to have my MRI done a couple of days ago, I freaked out when the lady pushed me into the machine and told her to take me out NOW. She phoned my neuro and asked if a CT scan with contrast would be sufficient, and he said no because he can't detect MS on a CT scan. So I guess he suspects I have MS; he never told me that, although it's definitely something I've considered in the past.
Anyway, if I do wind up having it, is there any hope that I'll be able to get some relief from at least some of these horrible cognitive issues, or am I doomed to spend the rest of my life afraid to leave my house or interact with others because I feel like they all think I'm slow and stupid?