Aa
Neuroradiologist's Comparison
Prior MRI from XXXXX Imaging dated 06/04.2008 is now available for comparison. This study consists of sagittal, and axial FLAIR, axial and sagittal T1 weighted, axial T2 and diffusion weighted sequences.
This study reflects scattered punctate foci of abnormal signal in the periventricular white matter bilaterally. It is evident however, that there has been interval development/progression of a few foci of abnormal signal particularly in the right periventricular white matter at the level of the centrum semiovale (slice position 59.5566 on the 2008 study and slice position 39.33 on the 2011 study).
There is a punctate focus of abnormal signal in the right posterior frontal lobe periventricular white matter at the level of the corpus callosal body on slice position 29.43 of the most recent examination that was not present on the 2008 study.
Ventricular and sulcal configuration is unchanged.
That's it. Now just got to wait for my Neuro to contact me on what he thinks.
This study reflects scattered punctate foci of abnormal signal in the periventricular white matter bilaterally. It is evident however, that there has been interval development/progression of a few foci of abnormal signal particularly in the right periventricular white matter at the level of the centrum semiovale (slice position 59.5566 on the 2008 study and slice position 39.33 on the 2011 study).
There is a punctate focus of abnormal signal in the right posterior frontal lobe periventricular white matter at the level of the corpus callosal body on slice position 29.43 of the most recent examination that was not present on the 2008 study.
Ventricular and sulcal configuration is unchanged.
That's it. Now just got to wait for my Neuro to contact me on what he thinks.
The second opinion I went to see in NYC (in Sept) is refusing to send my medical records to my old Neuro (the one Ive had since 2006 to 2008). My Neuro's office had called him, I have called (multiple times) and the secretary states that she does not send medical records only the doctor does. She took my number but no return phone call.
I do not know why they are refusing to send the consult summation to my Neuro...but that's what I'm dealing with right now.
As far as my Neuro is concerned, he stated that he was "considering" to start me on Copaxone if there were any changes on my MRI. Not that he "would" definitely do so. He did ask me if that MS Specialist in NYC said anything about starting me on Copaxone and I said no....He only told me "Possible MS" and to repeat MRI in January. (sighs)
I then asked him what was his differential diagnosis and he said Sjrogens Syndrome. I then took out my blood work where my ANA panel and CSF ruled that out (other than the lip biopsy which he did not say he wanted done).
He wants me to go see a Neuro-opth for my intermittent blurred vision vacillating from left to right and occasional diplopia. That's tomorrow on Monday.
I had the mild left corner of mouth and left eyebrow droop that appeared to have resolved within hours afterward. (Plus the slurred speech or sloppy speech thing I had a week ago that lasted for 10 minutes).
I informed my Neuro about that too and he said I should be seen, but I felt since I had no pain and had the ability to close my eyes and symmetrically smile, I felt there was no reason for it. I did take a picture :P
I am totally at a loss in what I could possibly have. I wish someone could gently push me in the direction I should go in. Seriously.
Thanks for asking Ren.
I do not know why they are refusing to send the consult summation to my Neuro...but that's what I'm dealing with right now.
As far as my Neuro is concerned, he stated that he was "considering" to start me on Copaxone if there were any changes on my MRI. Not that he "would" definitely do so. He did ask me if that MS Specialist in NYC said anything about starting me on Copaxone and I said no....He only told me "Possible MS" and to repeat MRI in January. (sighs)
I then asked him what was his differential diagnosis and he said Sjrogens Syndrome. I then took out my blood work where my ANA panel and CSF ruled that out (other than the lip biopsy which he did not say he wanted done).
He wants me to go see a Neuro-opth for my intermittent blurred vision vacillating from left to right and occasional diplopia. That's tomorrow on Monday.
I had the mild left corner of mouth and left eyebrow droop that appeared to have resolved within hours afterward. (Plus the slurred speech or sloppy speech thing I had a week ago that lasted for 10 minutes).
I informed my Neuro about that too and he said I should be seen, but I felt since I had no pain and had the ability to close my eyes and symmetrically smile, I felt there was no reason for it. I did take a picture :P
I am totally at a loss in what I could possibly have. I wish someone could gently push me in the direction I should go in. Seriously.
Thanks for asking Ren.
Have you heard anything from the neuros and MRIs and any changes that would point to a dx, especially with your new symptoms?
Ren
Ren
Aww.. thanks Opie.
I'm just one of many that go through the ups and downs of why these neurological mishaps are happening to me.
Sooner or later....it will happen. LOL.
Meanwhile back at the funny farm ranch Shelly Belly, how was your son's bday? Now that he's got a permit....should we all wear head gear on the road if we're in the state of NJ? (Hahahaha)
I'm just one of many that go through the ups and downs of why these neurological mishaps are happening to me.
Sooner or later....it will happen. LOL.
Meanwhile back at the funny farm ranch Shelly Belly, how was your son's bday? Now that he's got a permit....should we all wear head gear on the road if we're in the state of NJ? (Hahahaha)
My neuro-optho is the one that Dx me. He is also my treating doc. I hat that you are going through this.
Lisa -
I'm still floored since you told me. Can you send the recent imaging to the NYC doc who stated possible?
I don't blame you to not want to go to one more doctor - it's understandable.
The fact remains the same, as you stated in the report above that in comparison to 08s study - there is an increase in lesion.
Gather up your battle gear, or let us do that for you. And, when you are ready - call the NYC doc office. State that you've had additional imagine ordered by another neurologist and there is an increase in lesions. That you'd like to make arrangements to see him to discuss.
I do fully respect your feelings to bow out. But, I have to be straight up with you because I care, and say hold on - hang tight until you can get back to the doc who wanted more imaging in Jan.
-Shell
I'm still floored since you told me. Can you send the recent imaging to the NYC doc who stated possible?
I don't blame you to not want to go to one more doctor - it's understandable.
The fact remains the same, as you stated in the report above that in comparison to 08s study - there is an increase in lesion.
Gather up your battle gear, or let us do that for you. And, when you are ready - call the NYC doc office. State that you've had additional imagine ordered by another neurologist and there is an increase in lesions. That you'd like to make arrangements to see him to discuss.
I do fully respect your feelings to bow out. But, I have to be straight up with you because I care, and say hold on - hang tight until you can get back to the doc who wanted more imaging in Jan.
-Shell
As some of you may know (well 2 at least), my Neurologist rescinded on what he said to me two weeks ago when I saw him two days ago. He stated that he said to me, "I said, if the Neuroradiologist states any changes, I MAY CONSIDER treatment". Now I know that is not what he said, because immediately after the visit, I wrote what he said in my journal when I got into my car. I didnt make it up, nor do I have auditory hallucinations.
He thinks I should get a second opinion, even though I told him I paid out of pocket to a well known MS Specialist in NYC who stated, "Possible MS" and to repeat MRI in January. He knows of my last MS Specialist who felt that this was psychiatric in nature (which I know it is not). He (the present Neuro) is now the third one (although he has known me professionally and personally since 2006). I refuse to go to another damn doctor.
This is so frustrating that I want to laugh and cry at the same time. I'm no where farther than I was in April when hospitalized.
I have to make an appointment with a Neuro-opth because of the continuing, yet intermittent blurred vision and diplopia.
I am still and appears that I will be forever more stuck without any diagnosis.
Lisa
He thinks I should get a second opinion, even though I told him I paid out of pocket to a well known MS Specialist in NYC who stated, "Possible MS" and to repeat MRI in January. He knows of my last MS Specialist who felt that this was psychiatric in nature (which I know it is not). He (the present Neuro) is now the third one (although he has known me professionally and personally since 2006). I refuse to go to another damn doctor.
This is so frustrating that I want to laugh and cry at the same time. I'm no where farther than I was in April when hospitalized.
I have to make an appointment with a Neuro-opth because of the continuing, yet intermittent blurred vision and diplopia.
I am still and appears that I will be forever more stuck without any diagnosis.
Lisa
Excellent response form your neuroradiologist. Does he have any relatives in GA that would like to spread their wisdom?
It's very unusual to get such a call asking for specifics because he/she seems to care.
You need to update us on Monday!
Ren
It's very unusual to get such a call asking for specifics because he/she seems to care.
You need to update us on Monday!
Ren
A peculiar thing happened today. The Neuroradiologist called me who did the comparison.
He said he had a couple of questions. He asked me what were my symptoms and he also asked if I had diabetes, hypertension or history of migraines -- which my answer to all three were "no".
When I went through the list of symptoms he said, "I see a lesion on your brain that is probably causing your left leg issues."
He just said that he will give my Neuro a call on Monday which I told him that I was going to see him on that day too. He said good.
I was just shocked that he took the time to call me....Wish my other MDs were like this.
Lisa
He said he had a couple of questions. He asked me what were my symptoms and he also asked if I had diabetes, hypertension or history of migraines -- which my answer to all three were "no".
When I went through the list of symptoms he said, "I see a lesion on your brain that is probably causing your left leg issues."
He just said that he will give my Neuro a call on Monday which I told him that I was going to see him on that day too. He said good.
I was just shocked that he took the time to call me....Wish my other MDs were like this.
Lisa
Hey Shelly Belly
It appears any diagnosis is apparently hard to get. I've been going through this for 15 months now.
I readily admit when I came to this particular group, it was because I thought I had MS due to my primary stating she felt that way. I don't know anymore but time will tell will it not?
Now I'm just here because I love ya all. -winks-
It appears any diagnosis is apparently hard to get. I've been going through this for 15 months now.
I readily admit when I came to this particular group, it was because I thought I had MS due to my primary stating she felt that way. I don't know anymore but time will tell will it not?
Now I'm just here because I love ya all. -winks-
Woman - You don't even need the changes for dx :) It is what it is, sometimes.
Though smoking is not good for MSers, or anyone for that matter, glad to hear it wasn't blamed on smoking. Shows this doc is on the ball :) and looking out for you.
Doc Quizzle sticks has a good write up on smoking from back in the day - If I can put my fingers on it, I'll bump it.
Uh, and, I'm offended you don't want what we got, lol Only kidding.
(((Hugs)))
-Shell
Though smoking is not good for MSers, or anyone for that matter, glad to hear it wasn't blamed on smoking. Shows this doc is on the ball :) and looking out for you.
Doc Quizzle sticks has a good write up on smoking from back in the day - If I can put my fingers on it, I'll bump it.
Uh, and, I'm offended you don't want what we got, lol Only kidding.
(((Hugs)))
-Shell
Hi beachcomber13. Thanks for taking the time to respond.
I'm not sure if the new T2 hyperintensity is considered "within" the corpus collosum. It only states that it is "at the level" of the corpus collasal body. Not quite sure if the locations are different with the lingo neuroradiologist used.
It is interesting that my (old) Neurologist stated that I should quit smoking because he wouldn't be able to differentiate the abnormal signals between smoking or MS.
I do know from 2007 to 2010 I stopped smoking, so when the MRI was done in 2010 (subsequent MRIs with no change from 2010 to 2011) there was a small interval of development and the 2010 shows a new abnormal signal at the level of the cc body when compared to the 2007/2008.
Who knows.
Lisa
I'm not sure if this has any significance.
I'm not sure if the new T2 hyperintensity is considered "within" the corpus collosum. It only states that it is "at the level" of the corpus collasal body. Not quite sure if the locations are different with the lingo neuroradiologist used.
It is interesting that my (old) Neurologist stated that I should quit smoking because he wouldn't be able to differentiate the abnormal signals between smoking or MS.
I do know from 2007 to 2010 I stopped smoking, so when the MRI was done in 2010 (subsequent MRIs with no change from 2010 to 2011) there was a small interval of development and the 2010 shows a new abnormal signal at the level of the cc body when compared to the 2007/2008.
Who knows.
Lisa
I'm not sure if this has any significance.
To me it sounds like you have tiny spots (scattered punctuate foci of abnormal signal) in an MS area (periventricular white matter) on both sides of your brain (bilaterally).
But it is clear (evident) that there has been growth (development/progression) of a few spots (foci of abnormal signal), especially in one MS area.
And there is one spot in the back part of the right front brain area near the fluid-filled areas in the middle of the brain which happens to be an MS area (right posterior frontal lobe periventricular white matter). That spot is near the main communication junction between the right and left halves of the brain (corpus callosum), and it is new since the 2008 MRI.
That's my understanding, just from what I know about the brain... but I'm not a neurologist or radiologist. :)
But it is clear (evident) that there has been growth (development/progression) of a few spots (foci of abnormal signal), especially in one MS area.
And there is one spot in the back part of the right front brain area near the fluid-filled areas in the middle of the brain which happens to be an MS area (right posterior frontal lobe periventricular white matter). That spot is near the main communication junction between the right and left halves of the brain (corpus callosum), and it is new since the 2008 MRI.
That's my understanding, just from what I know about the brain... but I'm not a neurologist or radiologist. :)
Hey there..thanks for your input.
I'm still holding onto the hope that it could be something else other than MS. I don't want it. (But you know this already).
I'm not sure if the "changes" are significant enough to begin "Copaxone".
Am going to make appt. w/ Neuro tomorrow anyways.
@ Drsdonthelp:
Yeah its a bunch of jibberish. How have you been sweetie?
I'm still holding onto the hope that it could be something else other than MS. I don't want it. (But you know this already).
I'm not sure if the "changes" are significant enough to begin "Copaxone".
Am going to make appt. w/ Neuro tomorrow anyways.
@ Drsdonthelp:
Yeah its a bunch of jibberish. How have you been sweetie?
Well, to me, it sounds like.... jibberish. lol .... I wish I understood all of that .. anyway, I am here for you as well waiting for the phone call. I hope and pray you get some answers. I am always thinking of you and hoping that you are feeling good.
Hugs, Pam
Hugs, Pam
Lisa,
I am by no means an expert in reading MRIs nor their significance. However, the language used regarding the corpus collosum reads similiar to my MRI and I was told that involvement in the corpus collosum was almost a sure sign of MS.
Your neuroradiologist states:
"This study reflects scattered punctate foci of abnormal signal in the periventricular white matter bilaterally. It is evident however, that there has beeninterval development/progression of a few foci of abnormal signal part
"There is a punctate focus of abnormal signal in the right posterior frontal lobe periventricular white matter at the level of the corpus callosal body '
HOWEVER, please DO NOT take my word as the gospel truth, I am only relying on my own experience. As hard as it is , please wait from your neuro to interpret this for you.
Waiting with you,
Ren
I am by no means an expert in reading MRIs nor their significance. However, the language used regarding the corpus collosum reads similiar to my MRI and I was told that involvement in the corpus collosum was almost a sure sign of MS.
Your neuroradiologist states:
"This study reflects scattered punctate foci of abnormal signal in the periventricular white matter bilaterally. It is evident however, that there has beeninterval development/progression of a few foci of abnormal signal part
"There is a punctate focus of abnormal signal in the right posterior frontal lobe periventricular white matter at the level of the corpus callosal body '
HOWEVER, please DO NOT take my word as the gospel truth, I am only relying on my own experience. As hard as it is , please wait from your neuro to interpret this for you.
Waiting with you,
Ren
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