Hi and welcome,
You might find reading our health pages, top right of your screen the yellow icon, helpful in understanding the dx process for MS. You'll find lots of really helpful information in our health pages, id start with 'How Can a Person with MS Have a Negative MRI?'
I cant even offer an opinion on if your sx fit MS because you haven't elaborated, if you are comfortable letting us know what your sx are, you might get a few more helpful hints on what eles it could be, there are a lot of MS mimics.
I haven't a clue what RN is, lol to me that means registered nurse, so i cant even tell you if that is or isn't a sx of MS or if its common to one of the mimics. sorry!
It is definitely possible for early MS not to be detected by MRI. This is my personal experience. I had a clean MRI of head and neck after being referred due to onset of Lhermitte's. Symptom later remitted. A year later, more symptoms, another MRI, this time lesions on my brainstem and c-spine were obvious, and after LP and clinical exam and based on my history of the previous attack, was fairly promptly given my MS diagnosis.
The initial neuro I saw was careful not to say that I didn't have MS. She said something like, 'I see no evidence of neurologic disease at this time,' leaving the door open to the possibility of a diagnosis of a neurological condition in the future.
I am not in the USA and can't comment on good MS specialist in the area you're moving to, but someone else here can probably help with that. Perhaps a fresh set of eyes in your new state will be helpful, and if not MS as you suspect, then to work with you to figure out what is causing your symptoms rather than cop out like this guy seems to doing.
Oh I see. Thank you. BTW, RN is retrobalbar neuritis (sp?).
If a Doctor tells me no way is it such and such and I say okay than what can it be and they can't give me any direction to go in I find a new Doctor. period.
If you had retrobulbar ON, did they do a VEP? A VEP is proof of demyelinating disease. About 50% of patients with ON, have white matter lesions. ON ends up being the first presenting sign of MS about 30% of the time after 5 years.
Not knowing what you other symptoms are, I can can say that there are other causes for ON, including Lyme's disease, Lupus, syphilis, other autoimmune diseases and idiopathic causes.
Many of us have had to deal with "watching and waiting" for things to become clear for the neurologists. I had one lesion and then 5 six months later. I also had symptoms get worse over that time. There is no "requirement" in the McDonald Criteria for lesions on the MRI. Lesions (specifically Dawson's finger lesions) help to make the diagnosis easy.
MS is a diagnosis of exclusion. Once the other diseases are excluded and MS is the only thing left and you have met the dissemination in space and time, the doctor can diagnose you with MS. This is why it can be important to be seen by an MS specialist or at an MS Center. MS doesn't always present in the clear and definite ways that are taught in the medical text books.
Errrrrr...is your neuro aware of some with MS have zero lesions on their brain? You can have lesions on your spine only?
Doesn't seem like your nuero cares, id find one who does.
Welcome to the forum. Sorry you are having a difficult time with getting a dx. That is not uncommon unfortunately.
I am here to tell you you can indeed have MS and not have brain lesions. They did MRI's for 18 yrs on my with no findings of lesions. Finally they did one of my spine and found 3?
And just because they don't see lesions on MRI doesn't mean they aren't there. Some machines better than others than detecting them.
I would find a new dr. Sorry, not in your area so I cannot help with a referral.