OPTIC NEURITIS

[kitten o]

HELL EVERYONE
HOPE ALL ARE WELL TODAY.
I HAVE A QUESTION, I HAVE ON, AND HAVE BEEN
HAVING PAIN IN MY RITE EYE, ON AND OFF FOR 3 MONTHS.
TODAY IT HURTS MORE ESPECIALLY IN MY RITE EYE.
ALSO HAVING WEEKNESS ON MY LEFT SIDE.
I AM LEGALLY BLIND IN MY LEFT EYE,
I ONLY SEE LITE. ( I WAS BORN THAT WAY)
IS THIS A FLAIR -UP? CAN OPTIC NEURITIS CAUSE  ME TO LOSS
MY SIGHT PERMENTLY.
THANKS, NO DOING WELL TODAY,  DO I SEE
AN EYE DOCTOR TO GET RETESTED (VEP) TEST?
THANKS KITT

[kitten o]

GOOD MORNING EVERYONE.
DOING WELL TODAY, THANK GOD.
I SLEPT LIKE A PRO LAST NITE.
I TOOK XANAX IT HELPS WHEN I GET
LIKE THAT. THE ONLY THING IS
I WOKE UP SOAKED WITH SWEAT,
HAD TO CHANGE MY BEDDING. PRETTY GROSS.
I SHOULD BE USED TO SWEATING THAT
IS A BIG PROBLEM  FOR ME ALSO.ANYWAY WILL
FIND EYE DOC. THANKS EVERYONE.
LOVE YOU GUYS
KITT

[kitten o]

WHAT TO SAY THANK YOU ALL FOR EVEYTING,
I WILL BE CALL AN EYE DR TOMORROW.
AS FOR MY MS NEURO, HE IS A JERK.
I SEE IM IN MARCH.
GOODAY THANKS, I AM SORRY FOR YOUEYES ALSO.
AS FOR THE WEAKNESS YOU REALLY
ANSWERED THAT,  THROUGHT IT WAS MY MONSTER MAKING ME WEAK.
AND YOU AM RITE,
THANKS TO FOR EVERYONE, CARING SO MUCH.
YOU ARE MY FAMILY
GOD BLESS KITT

[young at heart]

YOU HAVE ALREADY GOTTEN THE GREATEST ADVICE.

YES, SEE AN EYE DR.  PREFERABLY AN OPTHAMOLOGIT.

I GOT HIT WITH BILATERIAL ON IN DECEMBER, BASICALLY ON IN THE RIGHT EYE,NOT QUITE HEALED FROM NUMEROUS ATTACKS IN THAT EYE.

ITS NOT UNCOMMON AFER TIME TO HAVE THE ON TO EFFECT THE OPPOSITE EYE.

KITT,THIS REALLY IS OF URGENCE TO HAVE IT CHECKED THOUROUGHLY

T

[Heather3418]

KITT, LISTEN TO ALL THIS GOOD ADVICE YOU ARE GETTING.  WE ALL CARE ABOUT YOU SO MUCH.

FEEL THE LOVE AND HOPEFULLY THE STRENGTH WE SEND TO YOU, MY DEAR, PRECIOUS FRIEND.

BIG HUGSSSSSSSS ALWAYS....
HEATHER

[Jenn0030]

Hi,
I am so sorry to hear that you are having trouble.  Working in the eye field for the last 12 years in different areas,  I know that most doctors will get pts in the same day when they are monocular and having pain in their good eye.  It is important that you are seen.  Even if there is not a problem it will give you a piece of mind that is needed.

[gooddays]

Hi kitten o.

My best recommendation is to seek an eye doctor asap or even call your neuro, ON if not treated right away may damage your optic nerve and this damage may be permanent. I have been dealing with MS for the last 12 years and most of my relapses are ON related.  I have always recovered my sight, but in my case it has never been as it was before.  My last relapse was really bad and it happened this past December.

You may have read some of my previous posts where I have written that I have to wear an eye patch on my left eye for at least 18 hours a day for the next 6 months to year to see if I can recover my "normal vision" or at least some of it and at the beginning it was very hard to get used to it.  I just take it one day at a time.  I hope the treatment works.  

Weakness is part of most of us MSers, the fatigue makes us weak, not having enough rest makes us weak, stress, spasticity, so many other symptoms that may affect each and everyone of us differently make us weak.  

Try to establish a good communication channel between you and your doctors in order to get the best care and symptoms control that would best suit you.  Remember that your physician responds to your needs , not the other way around.  Try to find an MS specialist, The National MS Society may have a chapter in your state and may be able to provide information as to whom you should contact.

Try not to put yourself in a very stressful situation due to what you are going through, it would only get worst, call your neuro and explain what you are feeling.  You should be able to get at least an explanation and hopefully treatment for it.

Take good care of your self and I hope you get better.  Keep us posted.

Remember:  We have MS, but MS does not have us!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Zulma (Gooddays>)

[kitten o]

I HAVE A MD APPT. ON THE 15TH.
SHOULD I FIND AN EYE DR. AND WHAT KIND?.
MY VISION IS SLIGHTLY BLURRY.
I CAN SEE OK. LITE HURTS.
I ALSO STARTED WITH ON IN MAY.
THAT WAS PART OF HOW I GOT DX WITH MS.
THE WEAKNESS SCARES ME THE MOST.
I CAN NOT RECALL FEELING LIKE THIS THE LAST TIME.
LOVE YOU GUYS,
THANKS AGAIN KITT

[LATW]

HI KITT,
YOU SHOULD SEE YOUR EYE DOCTOR. ON CAN CAUSE PERMENANT DAMAMGE. AS I UNDERSTAND IT GENERALLY YOU DO REGAIN SOME, IF NOT ALL, OF YOUR VISION AFTER ON.

I AM ON MY SECOND BOUT IN THE PAST 7 MONTHS. I STARTED WITH ON IN MAY. RECOVERED MUCH OF MY SIGHT BY AUGUST. BUT STARTED WITH EYE PAIN AGAIN 2-3 WEEKS AGO. NOW I AM SHOWING DAMAGE TO MY OPTIC NERVE.

I STARTED WITH MY EYE DOCTOR BOTH TIMES.  HOPE YOU CAN GET SOME ANSWERS. I AM SO SORRY YOU ARE HAVING THIS KIND OF TROUBLE. IT IS BAD ENOUGH TO LOSE A LOT OF VISION IN ONE EYE, BUT BOTH EYES WOULD BE JUST AWFUL.



L

[sllowe]

HEY KITT,

HI GIRLFRIEND,
YOU SHOULD AT LEAST CALL
THE DR., SEE WHAT HE HAS TO SAY
SINCE IT'S GOING ON FOR AWHILE,
I THINK IT'S TIME TO LET THEM KNOW
I'M SURE YOUR SICK OF THE DRs, BUT
MAKE THE APPT AT LEAST. . .

YOPU'D BETTER LET ME KNOW IF YOU NEED ME,

LOVE YA,
SL

[kitten o]

THANKS SO MUCH , YOU INSPIRE ME ALSO, FOR BEING THERE
ALL THE TIME. I THINK YOU ARE MUCH STRONGER
THEN I AM. I AM OK, STAYING IN BED. STILL FEEL WEAKNESS ON MY
LEFT SIDE. MY HONEY IS TAKING GOO CARE OF ME.
IS WEAKNESS PART OF MS?
THANK YOU ONCE AGAIN MY DEAR FRIEND
FOR BEING YOU. GOD BLESS YOU
KITT

[Heather3418]

OH SWEETHEART...WHAT MORE CAN YOU ENDURE?  I SO MUCH ADMIRE YOUR STRENGTH IN EVERYTHING THAT YOU GO THROUGH.  

I CANNOT OFFER ADVICE ABOUT WHAT THE O.N. IS GOING TO DO TO YOUR SIGHT.  I KNOW THAT QUIX IS MORE KNOWLEDGEABLE ABOUT THINGS SUCH AS THIS.

THE BEST I CAN OFFER YOU IS MY SINCERE PRAYERS.  KITTEN HONEY, YOU INSPIRE ME WITH YOUR COURAGE.  IF THAT MEANS ANYTHING....THROUGH YOUR TRIALS, YOU GIVE ME STRENGTH.  I WILL PRAY IN EARNEST FOR YOU AND FOR A RELIEF OF THESE PROBLEMS.

GOD LOVE YOU SWEETHEART,
HEATHER