OT Cancer

[HVAC]

My Cancer has spread. It is in the Spleen and has grown in two months. The doctor says once it hits the spleen it is in the blood and can go anywhere. I am out of the study. I start back on one of my original chemos. They wanted me on both original but I want my hair for xmas.

Alex

[summerluvr]

Sorry to hear :( I feel like Cancer is just the huge shadow which follows you around. I hope you don't get so sick again from chemo. It sounds like your "team" is much more focused on taking care of you now. That is such BS that you got the placebo.  so you were taking an approved chemo (doxil) and a placebo and other arms got the new drug plus doxil?  I hope if the tial is showing good results they can fast track the drug and everyone can get it, that it is far enough along in trials.

[calamfred]

Just read your latest update...
Sometimes there really are no words that can say what our hearts feel...
I still "see" your strength and perseverance...
And continue to keep you and yours in our thoughts and prayers.
Regards,
Calam and hubby

[Lulu54]

Alex, you have been on my mind and why i am checking in after a long absence. Despite the news not being good,  I continue to sense your peace and ability  to take this one day at a time.  Thank you for allowing us all to accompany you on this journey.  hugs, Laura

[HVAC]

It depends on the Cancer some Cancers actually like vitamin C and grow faster. I have looked at Vitamin C. It has been studied since the 1960's. I do believe in a low inflammation diet. I was on one when I got Cancer but it is genetic.


My Cancer has to problem one is it is genetic. The other is it is something called Clear Cell which grows way faster than other Cancers. Plus I was expose to jet fuel in my drinking water at Camp Lejeune for two years as a child. Plus my mother smoked two packs a day, drank alcoholically, and took speed to keep the birth weight down. I only weighted a little over 4 pounds full term. My GP's question is why are I not more messed up.

My grandmother died of Ovarian when she was 51, my aunt breat and ovarian at 52, my father had prostate for 17 years, my cousin had both breasts removed, and my brother had prostate cancer aggressive and young. We have the BRCA 1 genetics. Men can have BRCA 1 cancer mutation.

A normal woman has a 1.6% chance of Ovarian Cancer in her life time. BRCA 1 40% of Ovarian and 90% of breast cancer.

The good news is I have beat my expiration date which was less than two years and have against the odds reponded to treatment. I have had Cancer in over 16 places and it is a kind of cancer carried by your blood. The good news is the way you die is either bowel blockage and they have gotten way better in treating bowel blockage or acsites fluid build up blocking your lungs. They have to drain the fluid so you can breath. I have neither so I have a long ways to go.

My Doctors are shocked because I read an Ovarian Cancer textbook and understood it. I also do a lot of research my husband works at a Medical school Health Sciences Library. What I do not understand I can get a librarian to explain to me.

I had bowel blockage in the beginning hence the two years of vomiting and weight loss. They took out. the tumor and part of my rectum. MY problem is the blamed the throwing up on MS.

I even surprised my doctor. She told me twice if I got in this one Clinical Trial I would definitely be put on a parp inhibitor. I said no it is double blind placebo really 2/3. Two get the parp the third get placebo. I said what if I get the placebo and go through all I went through with this clinical trial. She finally looked it up and said I was right about it being double blind.
  She was pushing a study she did not understand the qualifications for.


Alex

[Poppy7402]

Alex, have you tried anything like high dose IV vitamin C?  

There was a policeman on TV here a short while ago who was given six weeks to live and so with nothing to lose he went on to extremely high dose IV Vitamin C and as far as I know didn't eat any grains or so called 'inflammatory' foods and now..... they can't find one cancer cell in his body.  Even the medical profession here are starting to sit up and take notice.

Best wishes

Poppy

[jensequitur]

Crap... nothing to say except I'm sorry, and this *****.

[SarahL2491]

it aint over yet…….Alex is still with us and there are still miracles to be had……….hang in there my friend, hugs from Diesel too

[Dagun]

Dear Alex, I´m so sorry to read this..I have not been here for quite some time now and thought I should see how everyone is doing and then this is the first I see. I can´t believe it was a Placebo all the time and you were getting better. Then it was just your strong will that got you so far.

I know you will find a new way to hold the cancer back as long as you can, you are such a fighter. I have never known anyone like you, as strong and as focused on keeping the spirit up. I´m sending you warm hugs from over the Atlantic and wishing for a better outcome in your next checkup.
My best wishes for you always,
Your friend,
Dagun    

[4happygnomes]

I'm so sorry to hear that your cancer has spread, even throughout your own struggles you have reached out to help others.  You are a true blessing!  The power of possibilities appear to have helped you during the clinical trial, hold unto that faith and may it carry you forward.  You have a lot of people who are thinking and praying for you!  

[karryon55]

Alex I am so so sorry. I wouldn't have thought that the doctors would be able to disclose that sort of information from the clinical trial but maybe I'm wrong.

I guess that says a lot about who you are Alex with being on the placebo but you still managed to get so far with your cancer. Please don't get discouraged by what the doctor said rather turn it around & see how well you have done through all of this.

My heart goes out to you & I can only imagine how hard this is for you.

((((HUGS)))) Karry.

[Cache916]

Alex,

I have only been in this community for a few hours and just saw your post. My heart goes out to you. I pray for your strength and that God keep your family in his protective arms.

[HVAC]

The Doctor felt she had to tell me I was getting the Placebo. I was no the placebo effect and that really blew it for me. I was doing so well for over a year. She said it was the Chemo the Doxil. I could have gone in only once a month not had all the extra tests like CT Scans every two months and the weekly screw ups by my nurse. I so wanted yell at my nurse with every screw up. But I might be on the miracle drug, But I was not.

Alex

[calamfred]

I, too hated hearing this latest news. You're such a source of strength and inspiration to us, selfishly I not only hate hearing it for all of us who you've uplifted. But more importantly I hate it for you, your loved ones, and your fur "babies".

As I've said since I "met" you, you're a tough gal, and I know you'll face this head on. I wish I had half the strength I see in you.

And remember it's ok to have some times of "Right now I don't feel like or want to be strong, dangit!". We all are after all, only human...

Sending healing thoughts your way, and also praying that you definitely find the compassion for yourself that you so freely share with others... You deserve it!
Calam and hubby

[yousyous8]

Oh Alex, I'm so sorry to read this. Please stay strong. If anyone can beat this, you can! You are always so positive and helpful.
I'll keep you in my prayers. Best best wishes!

[nyangel60]

Alex I so sorry at this unfortunate news. Keep strong and you are in my prayers. (((HUGS)))

[HVAC]

Yesterday I took Fiona for an hour walk then we had an hour of training. We have a neat class called "Dog about town". We train in the city with cafes, stores. people, wheelchairs, canes, cars, stairs and other dogs. The first to classes she barked loudly since she is deaf and was on two legs most of the night. My arms feeled like I had been wresting. This class she under control. She even did well in down stay. Mike had Grady he did really well.

I am working on self compassion something I am not good at.

Alex

[johnniebear]

you've always been so strong here,   I really don't have the right words to give you comfort other than you should  know how many people wish  you the best and some how hope  you can still beat this.

Sending prayers and   Im Cussing at the damn cancer....


Your friend
JB

[zerodegrees]

I am so sorry to hear this.  I will keep you in my prayers.

[Princepaso]

My heart and soul reaches out to you and your family
And all family animals
Your experience strength and hope are second to none
Always
K

[Joiedecour]

Alex, so sorry to read this news, and especially that you are out of the study which seemed to be such a positive thing for you. If anyone is strong enough, it has to be you. I hope you have the hairiest of Christmases in the best possible way. We need you here, keep up the fight. Hugs.

[mikeysmom1995]

Oh Alex, I am so sorry to hear this news. You are a true fighter so keep fighting. We are all in your corner. My best thoughts and prayers are with you.

HUGS barb

[beema36]

So sorry to hear this news Alex! Praying for you

[supermum_ms]

Oh babe, not good news but your strong.....YOU can beat this!!

**********************HUGS*****************

If you change your mind and think you'd rock being a strawberry blonde.........let me know because without reservation, I'd give you my hair!

Hugs............JJ

[karryon55]

I'm really sorry to hear this news Alex. I hope you have your hair for Christmas as well as lots of love & happiness.

Hugs,

Karry.