Does anyone know about sarcoidosis or neurosarcoidosis? Or has your doctor questioned whether or not you may have that instead of MS? I’m wondering if I might have that instead of MS. I scheduled an appt with my neuro for early April to discuss a differential diagnosis with him. It’s on the list for MS mimics.
Several reasons why I’m kind of wondering if it is:
About 2005 I started going to my doctor for shortness of breath. She thought it might be asthma & gave me albuterol.
Since a little after that (about 2006?), I also have had several appts for heart issues, including visits to the ER – racing heart & palpitations & feeling like I was going to have a heart attack. (And I wore a heart rate monitor for a few days). They just said they didn’t know what was causing it.
2008 I started being seen for night sweats (sometimes drenching). They did a chest x-ray & tested me for TB and did a CT scan. They found multiple hemangiomas on my liver. Are these and granulomas easily differentiated? I know that granulomas are seen in sarcoidosis. They’ve also found hemangiomas in my spine on an MRI.
I seem to always have a low grade fever.
Problems with my eyes – optic neuritis, blurring, & burning.
Muscle weakness and pain off & on in my knee, hip, & sometimes ankle.
Changes in that time of the month.
Fatigue, excessive thirst, & high urine output - about 2.8-3.0 liters (Urologist said this should be addressed by my regular doc, and she tested me for diabetes with a glucose test, but it came back negative).
Swollen lymph nodes in my groin.
Plus all my other MS type of symptoms, but I think you get the idea. I do have lesions in my spine (t-spine & c-spine) and in my brain. I was just wondering if I might have this since to me, my symptoms feel like they’re chronic. I’m labeled as RRMS, but would my symptoms be worse or at least just as bad as my initial presenting “relapse”? Shouldn’t they be better, or am I constantly in a relapse for the last year or two? That doesn’t make any sense to me.
Hope some of you have some ideas or thoughts on this. Sorry it’s so long…