Avatar universal

Overly Anxious!

I've had 3 MRI's done now and they a pretty much unchanged. I have multiple predominately supratentorial white matter intensities and a large periventricular parietal plaque. The enhancement  in the periventricular leasion has diminished moderately since the last MRI (6 months ago). Some presumed supratentorial lesions from last MRI show no enhancement now.
I do have a confirmed area of demyelination in the cervical spine as well.  
Here is my issue: I am a 52 year old single professional mom (in medical research). I have a beautiful home with my precious 14 year old daughter. I lead a clean lifestyle devoit of alcohol and drugs. In addition to "possible MS" I was diagnosed with Lupus at the same time as all the MS stuff. My ANAs are definiive for Lupus. I have an elevated CRP now. All other tests (Lyme's, HIV etc.) are negative.
I am incontinent of Urine and have significant muscle weakness in all 4 limbs. I do walk short distances though.
I love my daughter, my job and my salary and want to avoid disability for as long as I can. Disability would not fit my way of life.
Have you seen any scenarios like mine?
What are my chances of having MS?
I want a diagnosis ASAP so that I can start with treatment and go on with my wonderful life.
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1312898 tn?1314568133
Hi Teri,  Welcome to our forum!   I am not a medical person but it really does sound like you have the MS types of plaques.  I seem to remember something about Lupus that it can become neurological.  

Hopefully, someone with more knowledge will chime in soon

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Avatar universal
Thanks! Such a quick response. I am in good hands here!
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1396846 tn?1332459510

You are in very good hands here, the people here are wonderful and supportive.

I am glad you have a positive attitude about wanting a diagnosis so you can go on with your wonderful life. It is awesome to have such an attitude.

I truley hope you can get your dx soon. I am still in limbo and have been for 2 years now but hopefully you have a better doc than me.

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572651 tn?1530999357
Hi Teri, let me add my welcome here and then jump into your question.  Red is right - these lesions locations and how they enhanced in the past but not now, sound suspiciously like MS.

Is the neurologist youare being treated by an MS specialist?  This is such a confusing disease it really takes an MS doc to help sort it out.

It sounds like there is plenty of evidence to meet the Mcdonald criteria for MS - I would  continue to work closely with an MS doc and get the answers sooner rather than later.

Before you get much further into this make sure your disability insurance coverage is adequate for your needs.  It can be next to impossible to add it after you are dxd'.

welcome again and be well,
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Avatar universal
Thanks to everyone!! What a warm wonderful group!
My neurologist is wonderful, just very cautious. I'm in Canada and have fabulous healthcare. Not sure I could survive on disability here though. I'm in the process of accounting for my investments and ensuring they are moved into lower risk opportunities.
I see my Neurologist on Thursday so I'm hopeful. I will see a Rheumatologist next month as well for the Lupus.
I don't enjoy being the patient!!!!!
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