Aa
Please I need informations
Hello,
My sister was just diagnosed with multiple sclerosis. I cannot tell you how worried we are. I feel nauseous with worry.
During the past few months, she lost weight and at times couldn't walk normally at all. This diagnosis is a HUGE shock.
Please I need more informations on the disease. One read different things on the internet. What is true and what isn't? Is it mortal? Will she be paralyzed? How will it affect her life? How to live with it?
My head is spinning.. So many questions and the doctor wasn't very helpful.
Thank you for your time and help.
My sister was just diagnosed with multiple sclerosis. I cannot tell you how worried we are. I feel nauseous with worry.
During the past few months, she lost weight and at times couldn't walk normally at all. This diagnosis is a HUGE shock.
Please I need more informations on the disease. One read different things on the internet. What is true and what isn't? Is it mortal? Will she be paralyzed? How will it affect her life? How to live with it?
My head is spinning.. So many questions and the doctor wasn't very helpful.
Thank you for your time and help.
There's no apology needed - I was just suggesting you start something fresh so others might be willing to read it as well.
Here's hoping the wait for the neurology appointment isn't too long - I know that can be very frustrating.
Here's hoping the wait for the neurology appointment isn't too long - I know that can be very frustrating.
I'm sorry for the many posts in here. I didn't pay attention. Next time, I'll start a new topic.
And thank you for your replies and clarifications. We do not have a family history of neuro degenerative desorder so I seriously hope that opinion the neuro emitted (spino-cerebellar degeneration) was a simple opinion and that it's not true.
She's still waiting for an appointment. It's taking forever. For now she's taking vitamin D, B6 and B12 and doesn't seem too concerned (staying away from google :p ). The supplements seem to help her a lot as her walk improved and she doesn't get very tired.
Anyways, I'll try to stay positive! You guys are great and your patience incredible. Thank you!
And thank you for your replies and clarifications. We do not have a family history of neuro degenerative desorder so I seriously hope that opinion the neuro emitted (spino-cerebellar degeneration) was a simple opinion and that it's not true.
She's still waiting for an appointment. It's taking forever. For now she's taking vitamin D, B6 and B12 and doesn't seem too concerned (staying away from google :p ). The supplements seem to help her a lot as her walk improved and she doesn't get very tired.
Anyways, I'll try to stay positive! You guys are great and your patience incredible. Thank you!
Hi. I agree that it would be a good idea to start another thread. Have just one comment here about something you wrote above.
Showing a progressive pattern in MS is pretty much standard. In fact, if there has been only one event it isn't MS, because the disease definition requires lesions in more than one place at more than one time. So from that viewpoint, everyone's MS is progressive.
This is not, however, the same idea as saying that someone has a progressive *form* of MS. What form the disease takes is a technical concept that can be determined only after diagnosis, and after the neurologist watches the patient over time. It's way too soon to determine that now in regard to your sister.
And just as information, people with primary progressive disease tend to have fewer rather than many lesions on MRI. That means that there often is less inflammation but greater nerve damage or destruction, which MRIs are not good at imaging. This is a broad statement, though, and as with everything else involving MS, each patient's details will be different.
ess
Showing a progressive pattern in MS is pretty much standard. In fact, if there has been only one event it isn't MS, because the disease definition requires lesions in more than one place at more than one time. So from that viewpoint, everyone's MS is progressive.
This is not, however, the same idea as saying that someone has a progressive *form* of MS. What form the disease takes is a technical concept that can be determined only after diagnosis, and after the neurologist watches the patient over time. It's way too soon to determine that now in regard to your sister.
And just as information, people with primary progressive disease tend to have fewer rather than many lesions on MRI. That means that there often is less inflammation but greater nerve damage or destruction, which MRIs are not good at imaging. This is a broad statement, though, and as with everything else involving MS, each patient's details will be different.
ess
I see you have had quite a bit of advice sent to you as well as some fairly solid information. I just want to suggest that you might want to start a brand new question thread since this one is lengthy and has taken many twists and turns.
Many people who might be able to add something new will perhaps not take the time to read all that have been shared in the 54 responses here.
I would definitely like to see if you can take a deep breath, try to be available to your sister to hear her concerns as well as offer her encouragement. For now, that is the best you can do for her - whatever she is going to find on this journey, she will need you to be a calm companion.
~Laura
Many people who might be able to add something new will perhaps not take the time to read all that have been shared in the 54 responses here.
I would definitely like to see if you can take a deep breath, try to be available to your sister to hear her concerns as well as offer her encouragement. For now, that is the best you can do for her - whatever she is going to find on this journey, she will need you to be a calm companion.
~Laura
COMMUNITY LEADER
Before this you were already worried about the MS being progressive, please do not get ahead of your self and overly focus on wording you may be taking out of context!
Technically, you can say that MS causes slow progressive damage, to any areas of the brain and or spinal cord that a lesion has formed, so i'd have to say that although it isn't the common language, i'd have to say yes.
"Anyway, I'll focus on something else. I know there is no point worrying to death. What's meant to be will be. But just when you think things can't be any worst, life proves you wrong. "
I honestly thought when reading the first part, that you'd taken a step back and realised where your head space was running, and was now starting to breath. Everything after the 'but' from my perspective is very pessimistic doom and gloom..........Life is what you make of it, your worst is probably someone else's doing great and don't forget, when you've hit bottom, the only way left for you is up!
Take care of your self............JJ
Technically, you can say that MS causes slow progressive damage, to any areas of the brain and or spinal cord that a lesion has formed, so i'd have to say that although it isn't the common language, i'd have to say yes.
"Anyway, I'll focus on something else. I know there is no point worrying to death. What's meant to be will be. But just when you think things can't be any worst, life proves you wrong. "
I honestly thought when reading the first part, that you'd taken a step back and realised where your head space was running, and was now starting to breath. Everything after the 'but' from my perspective is very pessimistic doom and gloom..........Life is what you make of it, your worst is probably someone else's doing great and don't forget, when you've hit bottom, the only way left for you is up!
Take care of your self............JJ
Hello Supermum,
Thank you for your reply. So far, I've stopped myself from googling. The few sentences I read on spino-cerebellar degeneration are worrisome enough, I don't want to make things worst.
Does MS cause slow progressive damage in the cerebellum?
Anyway, I'll focus on something else. I know there is no point worrying to death. What's meant to be will be. But just when you think things can't be any worst, life proves you wrong.
Thanks again and best wishes ^^.
Thank you for your reply. So far, I've stopped myself from googling. The few sentences I read on spino-cerebellar degeneration are worrisome enough, I don't want to make things worst.
Does MS cause slow progressive damage in the cerebellum?
Anyway, I'll focus on something else. I know there is no point worrying to death. What's meant to be will be. But just when you think things can't be any worst, life proves you wrong.
Thanks again and best wishes ^^.
COMMUNITY LEADER
Firstly, slow down and hold those worrying thoughts!
The problem with being a lay person interpreting tech speak, is that you can easily get it wrong, your even more likely to get it wrong, if you are also translating it into another language!
BREATH!
Previously you mentioned your own psychological issues and all this googling and investigating to the 10th degree is not going to be helping YOU or your sister at all. If the discovery, is only sending you on one worrying avenue after another, then instead of being stronger and more prepared with the knowledge, your actually only feeding your fears and focusing on worse case scenarios long before you even know your sister's true diagnosis and that's not going to help anyone.
"Ataxia often occurs when parts of the nervous system that control movement are damaged. People with ataxia experience a failure of muscle control in their arms and legs, resulting in a lack of balance and coordination or a disturbance of gait. While the term ataxia is primarily used to describe this set of symptoms, it is sometimes also used to refer to a family of disorders. It is not, however, a specific diagnosis."
http://www.ninds.nih.gov/disorders/ataxia/ataxia.htm
MS is one of the causes of ataxia but you need to remind your self to stay focuses on what you know for sure and try to not let your self worry for worry sake, about any thing that is guess work and speculation, because those things may have absolutely nothing to do with your sister and you'll have been worrying for nothing.............focus on what you know to be true!
Hugs............JJ
The problem with being a lay person interpreting tech speak, is that you can easily get it wrong, your even more likely to get it wrong, if you are also translating it into another language!
BREATH!
Previously you mentioned your own psychological issues and all this googling and investigating to the 10th degree is not going to be helping YOU or your sister at all. If the discovery, is only sending you on one worrying avenue after another, then instead of being stronger and more prepared with the knowledge, your actually only feeding your fears and focusing on worse case scenarios long before you even know your sister's true diagnosis and that's not going to help anyone.
"Ataxia often occurs when parts of the nervous system that control movement are damaged. People with ataxia experience a failure of muscle control in their arms and legs, resulting in a lack of balance and coordination or a disturbance of gait. While the term ataxia is primarily used to describe this set of symptoms, it is sometimes also used to refer to a family of disorders. It is not, however, a specific diagnosis."
http://www.ninds.nih.gov/disorders/ataxia/ataxia.htm
MS is one of the causes of ataxia but you need to remind your self to stay focuses on what you know for sure and try to not let your self worry for worry sake, about any thing that is guess work and speculation, because those things may have absolutely nothing to do with your sister and you'll have been worrying for nothing.............focus on what you know to be true!
Hugs............JJ
Thank you Poppy. I'm so sorry for your illness and it's very nice of you to reach out. I hope you're well.
Best wishes Poppy.
Best wishes Poppy.
We must have been writing at the same time. I'm so slow it takes ages to write anything.
Progressive cerebellar damage does, I think, tend to point to ataxia.
Despite hanging out on this forum, I have ataxia, but choose to hang out here as the issues I have are for the most part, identical to those of MS and everyone is so nice. :-) I was also told I had MS originally so that explains how I ended up here.
I have lesions by the bucketload, pain for Africa, difficulties stringing sentences together at times, memory issues, cog fog, fatigue, wake up choking at night, you get the picture.
That said, I still work part-time, have kids and lead a reasonably normal life, so it's not all bad.
Best wishes
Poppy
Progressive cerebellar damage does, I think, tend to point to ataxia.
Despite hanging out on this forum, I have ataxia, but choose to hang out here as the issues I have are for the most part, identical to those of MS and everyone is so nice. :-) I was also told I had MS originally so that explains how I ended up here.
I have lesions by the bucketload, pain for Africa, difficulties stringing sentences together at times, memory issues, cog fog, fatigue, wake up choking at night, you get the picture.
That said, I still work part-time, have kids and lead a reasonably normal life, so it's not all bad.
Best wishes
Poppy
Yes actually the doctor states "degenerescence spinocerebelleuse" which would mean I think cerebellar or spino-cerebellar degenration What does that involve?
Thank you so much for your reply. It's very very hard to try not to panic. I've just started to make my peace with MS and learn more about it.
Thank you very much for your help Poppy.
Thank you so much for your reply. It's very very hard to try not to panic. I've just started to make my peace with MS and learn more about it.
Thank you very much for your help Poppy.
I'm amazed the Radiologist took the time to count all the lesions, normally they just say there are 'numerous' lesions, as they did with my reports. Your sister in law definitely needs to get back to someone and get some more information, for more than just herself as some of the SCA's are hereditary.
If she has SCA, what you need to find is some mention of cerebellar degeneration in her report. I'm not sure what this would be in French.
The good news though, is that some of the SCA's are idiopathic, meaning no genetic cause can be found for them. This obviously means no heredity but it also means that it could be caused by environmental things (food and/or drugs, prescription or otherwise) and as such, can be halted.
Try not to panic yousyous, all will be revealed in time and with modern medicine most things can be kept under control and/or halted. What you have to remember is that there are much, much worse things out there than MS and SCA.
If she has SCA, what you need to find is some mention of cerebellar degeneration in her report. I'm not sure what this would be in French.
The good news though, is that some of the SCA's are idiopathic, meaning no genetic cause can be found for them. This obviously means no heredity but it also means that it could be caused by environmental things (food and/or drugs, prescription or otherwise) and as such, can be halted.
Try not to panic yousyous, all will be revealed in time and with modern medicine most things can be kept under control and/or halted. What you have to remember is that there are much, much worse things out there than MS and SCA.
I'm sorry I forgot to mention that he wrote:
"there is a slow PROGRESSIVE damage in the cerebellum and a certain part of the spinal cord.
"there is a slow PROGRESSIVE damage in the cerebellum and a certain part of the spinal cord.
Hello everyone,
I'm back again with some interrogations. Please bear with me.
I've just read my the neuro's report. (The one that never contacted her back and left it to her GP to break the news...)
It is all extremely confusing.
In the beginning, the report states that they've identified more than 50 lesions (!!!!) in her cervical spinal cord and other places. Terms too technical for me to translate (it's in french. She's in Quebec right now). There is also a cortical atrophy. In this report, the doctor (I think a radiologist) says that she suspects the presence of MS.
Then the neuro's report, he seems to think that even though everything points to MS, he thinks that what she suffers from is spinocerebellar ataxia (i'll say it in french: degenerescence spinocerebelleuse). He also mentions that her visual and somatosensory event related potentiel are abnormal.
After 2 min googling, I find myself PRAYING she actually has MS where there are actually treatments available!!!! I never thought I'd ever say this. How is it that doctors identify such huge problems and do not make further exams and are not reachable??!
I'm back again with some interrogations. Please bear with me.
I've just read my the neuro's report. (The one that never contacted her back and left it to her GP to break the news...)
It is all extremely confusing.
In the beginning, the report states that they've identified more than 50 lesions (!!!!) in her cervical spinal cord and other places. Terms too technical for me to translate (it's in french. She's in Quebec right now). There is also a cortical atrophy. In this report, the doctor (I think a radiologist) says that she suspects the presence of MS.
Then the neuro's report, he seems to think that even though everything points to MS, he thinks that what she suffers from is spinocerebellar ataxia (i'll say it in french: degenerescence spinocerebelleuse). He also mentions that her visual and somatosensory event related potentiel are abnormal.
After 2 min googling, I find myself PRAYING she actually has MS where there are actually treatments available!!!! I never thought I'd ever say this. How is it that doctors identify such huge problems and do not make further exams and are not reachable??!
Hi Ree - Welcome to our group :-)
I'm sorry to hear that you don not respond to your first DMDs. As immisceo said, no drug is proven to stop the progress of MS. They are aimed at slowing it down. Which of the available drugs have you tried? There are now many available and it may just be a question f finding the one you respond to.
There are stronger supporters of a holistic approach to fighting MS than I am. Hopefully some will chime in. I am a firm believer in keeping my self as healthy as possible, through diet and exercise, while my body fights MS. I do this in conjunction with traditional drug therapy.
I was diagnosed a little more than 2 years ago and I am on my second therapy. For the first 20 months I was getting Tysabri infusions. When They stopped working I switched to Rituxan. So far so good. If the Rituxan stops working I'll try something else...
Try and stay positive :-)
Kyle
I'm sorry to hear that you don not respond to your first DMDs. As immisceo said, no drug is proven to stop the progress of MS. They are aimed at slowing it down. Which of the available drugs have you tried? There are now many available and it may just be a question f finding the one you respond to.
There are stronger supporters of a holistic approach to fighting MS than I am. Hopefully some will chime in. I am a firm believer in keeping my self as healthy as possible, through diet and exercise, while my body fights MS. I do this in conjunction with traditional drug therapy.
I was diagnosed a little more than 2 years ago and I am on my second therapy. For the first 20 months I was getting Tysabri infusions. When They stopped working I switched to Rituxan. So far so good. If the Rituxan stops working I'll try something else...
Try and stay positive :-)
Kyle
This has been VERY helpful and I wish I had found it a long time ago! I Am 24 and was diagnosed with Ms 2yrs ago. ANd I took different medicines until 9 months ago. Well the timing was bad because I got highly stressed out, now I am on A walker. I refuse to accept this and realize walking is not going to be a simple process and I have to keep calm and not get discouraged. Does anyone have any advice from a hollistic approach?
Diagnosing MS can be a very long process. Not always, but it often is.
Have they diagnosed her with CIS (clinically isolated syndrome) yet? This is often (but again, not always) the step before an MS diagnosis. It means that a neurological event or symptom consistent with MS (along with other test results that narrow the possibilities down) has occurred, but it occurred on it's own, in isolation. On it's own, it doesn't fit the pattern of MS. Once a second episode occurs or MRI results change, then the official MS diagnosis can be made.
For example, one episode of optic neuritis (with no other causes showing up in test results) can be CIS. Two months later, having foot drop = a likely MS diagnosis. One episode of optic neuritis and nothing else ever, well then the diagnosis stays CIS (unless the MRI shows changes).
Typically, though I know she's in another country, neurologists only prescribe disease modifying drugs with a CIS or MS diagnosis. While it's great and most effective to start them as soon as possible, MS is generally speaking a slow moving disease. There were a few months between my CIS episode and getting on medication and that's not really going to be detrimental to my long-term outcome.
No MS meds stop the progression. We're not there yet. But they do slow progression.
Have they diagnosed her with CIS (clinically isolated syndrome) yet? This is often (but again, not always) the step before an MS diagnosis. It means that a neurological event or symptom consistent with MS (along with other test results that narrow the possibilities down) has occurred, but it occurred on it's own, in isolation. On it's own, it doesn't fit the pattern of MS. Once a second episode occurs or MRI results change, then the official MS diagnosis can be made.
For example, one episode of optic neuritis (with no other causes showing up in test results) can be CIS. Two months later, having foot drop = a likely MS diagnosis. One episode of optic neuritis and nothing else ever, well then the diagnosis stays CIS (unless the MRI shows changes).
Typically, though I know she's in another country, neurologists only prescribe disease modifying drugs with a CIS or MS diagnosis. While it's great and most effective to start them as soon as possible, MS is generally speaking a slow moving disease. There were a few months between my CIS episode and getting on medication and that's not really going to be detrimental to my long-term outcome.
No MS meds stop the progression. We're not there yet. But they do slow progression.
Hello everyone,
I'm back with another question.
My sister went back to her GP to get a copy of her reports. He told her that the neuro did not diagnose her with MS for sure, but it's a serious assumption given her symptoms. But the MRI doesn't show anything.
I'm sure she has MS even though she has not been properly diagnosed yet. My question is: if she starts a treatment now (even though no lesions appear on the scan) could it stop or slow down the progression? I mean will the meds be more effective?
Her GP adressed her to a neuro and advised her to choose a treatment and do a lot of physical activities.
Thanks for your help guys!!
I'm back with another question.
My sister went back to her GP to get a copy of her reports. He told her that the neuro did not diagnose her with MS for sure, but it's a serious assumption given her symptoms. But the MRI doesn't show anything.
I'm sure she has MS even though she has not been properly diagnosed yet. My question is: if she starts a treatment now (even though no lesions appear on the scan) could it stop or slow down the progression? I mean will the meds be more effective?
Her GP adressed her to a neuro and advised her to choose a treatment and do a lot of physical activities.
Thanks for your help guys!!
Thank you all for your answer. I feel like I'm bipolar... maybe I am. One second, I'm feeling very optimistic and ready to face whatever comes my way... the other second, I feel like crap, forgive my language.
What is weird is my sister is busy right now and has stayed away from google, so she doesn't quite "get it" yet, while, all I've been doing is googling and imaging life 50 years from now. During my sleepless nights, I've even micro-planned every single day for next 30 years and doing a 3 cases scenarios. (I've studied actuarial science, I'm pretty good at scenarios)
Anyway, enough feeling sorry for myself. She'll be okay. And if she's not, I'll deal with that then. Right? (this second, feeling rather hopeful I must say... hope it last through the night)
Thanks again :)
What is weird is my sister is busy right now and has stayed away from google, so she doesn't quite "get it" yet, while, all I've been doing is googling and imaging life 50 years from now. During my sleepless nights, I've even micro-planned every single day for next 30 years and doing a 3 cases scenarios. (I've studied actuarial science, I'm pretty good at scenarios)
Anyway, enough feeling sorry for myself. She'll be okay. And if she's not, I'll deal with that then. Right? (this second, feeling rather hopeful I must say... hope it last through the night)
Thanks again :)
Hi YY -
Those of us who have experienced MS related fatigue know exactly what you mean. You're half way across a busy street and think seriously about lying down right there to take a nap :-) It is very hard to explain to the outside world.
I wouldn't jump ahead to PPMS yet. Only about 10% of people diagnosed with MS have PPMS. Relapses, left untreated, can last for months. Your sister needs to see a neurologist. Searching the internet for short term fixes will likely only uncover more horror stories of questionable merit.
Kyle
Those of us who have experienced MS related fatigue know exactly what you mean. You're half way across a busy street and think seriously about lying down right there to take a nap :-) It is very hard to explain to the outside world.
I wouldn't jump ahead to PPMS yet. Only about 10% of people diagnosed with MS have PPMS. Relapses, left untreated, can last for months. Your sister needs to see a neurologist. Searching the internet for short term fixes will likely only uncover more horror stories of questionable merit.
Kyle
If you are concerned about this to the point of getting little sleep for days on end, it may help if you find a professional to speak with. You can not be the best support to your sister if you aren't taking care of yourself as well. Honestly, taking on a chronic illness is stressful when it involves someone you care about. But MS is a chronic, treatable illness, not a terminal one. If facts and reassurances aren't helping you deal with this turn of events and you find yourself obsessing, perhaps a form of counselling might be called for.
Hello there, once again.
Please, you really, *really* need to stop fixating on what's unknowable right now. It doesn't help your sister at all. What will help her is getting the right medical evaluation and treatment, which I'm sure you're working on. But in the meantime, try to be upbeat with her, and help her to focus on what she can do despite her fatigue. Do you know of any books she might like, or movies or TV she hasn't seen? New fashions? All lighthearted things, I know, since I imagine this isn't the time to go into deep subjects, but to find distractions.
You could use some distractions too :-) Of course keep coming here and asking questions if we're being of help to you. But also just try to support your sister in ways that have nothing to do with health problems.
As so many have commented, having MS, if she does have it, is not the worst thing in the world, even a progressive form. There are much worse situations. You are a wonderful sister to her, so try to smile and be a little silly.
Hugs,
ess
Please, you really, *really* need to stop fixating on what's unknowable right now. It doesn't help your sister at all. What will help her is getting the right medical evaluation and treatment, which I'm sure you're working on. But in the meantime, try to be upbeat with her, and help her to focus on what she can do despite her fatigue. Do you know of any books she might like, or movies or TV she hasn't seen? New fashions? All lighthearted things, I know, since I imagine this isn't the time to go into deep subjects, but to find distractions.
You could use some distractions too :-) Of course keep coming here and asking questions if we're being of help to you. But also just try to support your sister in ways that have nothing to do with health problems.
As so many have commented, having MS, if she does have it, is not the worst thing in the world, even a progressive form. There are much worse situations. You are a wonderful sister to her, so try to smile and be a little silly.
Hugs,
ess
Thank you both for your replies. It helps to know insurance companies cover the DMDs.
But the fatigue I'm talking about is not like "ok I'm tired I need to sit" but more" I'm tired, I can't take one more step"
What worries me is that it's been 6 months. But to tell the truth, I've noticed that she can't walk when she thinks about it a lot, or is stressed / anxious.
This is what worries me and makes me think maybe she has PPMS. Or maybe I'm just too stressed myself and several days lack of sleep don't really help think straight.
But the fatigue I'm talking about is not like "ok I'm tired I need to sit" but more" I'm tired, I can't take one more step"
What worries me is that it's been 6 months. But to tell the truth, I've noticed that she can't walk when she thinks about it a lot, or is stressed / anxious.
This is what worries me and makes me think maybe she has PPMS. Or maybe I'm just too stressed myself and several days lack of sleep don't really help think straight.
Feeling tired while walking is not unique to a any particular type of MS (or MS in general).
To answer an earlier question of yours, insurance in the U.S. does cover the DMDs in general. Some companies may not cover some of the newer DMDs, or they may not cover them until a patient has tried an older DMD. My insurance plan requires a $100 monthly copay for my DMD. All of the drug companies have financial assistance programs.
To answer an earlier question of yours, insurance in the U.S. does cover the DMDs in general. Some companies may not cover some of the newer DMDs, or they may not cover them until a patient has tried an older DMD. My insurance plan requires a $100 monthly copay for my DMD. All of the drug companies have financial assistance programs.
After a diagnosis of MS, it usually takes a good bit of time for a neurologist to establish that a patient has the progressive form of the disease. Most people, by default, are diagnosed with relapsing-remitting MS to begin with. It's only over time that disease patterns can be taken into account.
When sequential episodes happen that do not resolve or improve, the neurologist may lean towards a primary-progressive diagnosis. But again, this is almost always the result of long-term monitoring. Unfortunately, there's not yet a simple test that can be done that gives us much insight into the course our MS will take.
But before you get ahead of yourself, please remember she's not yet been formally diagnosed with any form of MS by a neurologist. You and your family need a lot more concrete information before questions about types of MS become relevant, strictly-speaking.
When sequential episodes happen that do not resolve or improve, the neurologist may lean towards a primary-progressive diagnosis. But again, this is almost always the result of long-term monitoring. Unfortunately, there's not yet a simple test that can be done that gives us much insight into the course our MS will take.
But before you get ahead of yourself, please remember she's not yet been formally diagnosed with any form of MS by a neurologist. You and your family need a lot more concrete information before questions about types of MS become relevant, strictly-speaking.
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